Empowering Rural Communities through Identification of Quality of Life Issues for People with Life-Limiting Conditions

2.50
Hdl Handle:
http://hdl.handle.net/10755/147205
Type:
Presentation
Title:
Empowering Rural Communities through Identification of Quality of Life Issues for People with Life-Limiting Conditions
Abstract:
Empowering Rural Communities through Identification of Quality of Life Issues for People with Life-Limiting Conditions
Conference Sponsor:Sigma Theta Tau International
Conference Year:2007
Author:Oliver, Mary, PhD
P.I. Institution Name:University of South Australia
Title:Associate Professor
Co-Authors:Joy Penman, MN, BN, MSc (Pharm), BSc (Pharm); Cynthia Ofner,
[Leadership session research presentation] This paper describes a study conducted by a team of researchers at the University of South Australia, Centre for Regional Engagement in partnership with six regional Health Services over a two-year period. The primary aim of this research was to identify quality of life issues for rural people with life-limiting conditions and to enhance their knowledge of palliative care services by way of increasing access to these services. Methodology: A qualitative interpretative approach to research was utilised in this study. Through in-depth interviews and focus group meetings, qualitative data were obtained which were transcribed verbatim and returned to the participants for verification of interview content. Thematic analysis of the interviews and focus group meetings resulted in several recurring themes. The main themes that emerged from the data include caring for a loved one, support from family and friends, role change from partner to caregiver, quality of life issues, facing death, feelings of emptiness following death, emerging from the loss, and the supportive role of rural communities.The implications of this research demonstrate that through a rural partnership a process and means by which rural communities develop the necessary skills, expertise and capacity to support palliative care clients and caregivers can be established. Through our involvement in this research community engagement, development and support was mobilised for client and caregivers involving rural communities, health organisations, palliative care teams and health professionals. We have also identified policy development issues and have been advocating bringing these to the attention of local and state governments, Department of Health Services, Department of Human Services, and universities educating health professionals for action. These issues are equally relevant to palliative care international and will be discussed at the presentation.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleEmpowering Rural Communities through Identification of Quality of Life Issues for People with Life-Limiting Conditionsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/147205-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Empowering Rural Communities through Identification of Quality of Life Issues for People with Life-Limiting Conditions</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2007</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Oliver, Mary, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of South Australia</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">mary.oliver@unisa.edu.au</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Joy Penman, MN, BN, MSc (Pharm), BSc (Pharm); Cynthia Ofner,</td></tr><tr><td colspan="2" class="item-abstract">[Leadership session research presentation] This paper describes a study conducted by a team of researchers at the University of South Australia, Centre for Regional Engagement in partnership with six regional Health Services over a two-year period. The primary aim of this research was to identify quality of life issues for rural people with life-limiting conditions and to enhance their knowledge of palliative care services by way of increasing access to these services.&nbsp;Methodology: A qualitative interpretative approach to research was utilised in this study. Through in-depth interviews and focus group meetings, qualitative data were obtained which were transcribed verbatim and returned to the participants for verification of interview content. Thematic analysis of the interviews and focus group meetings resulted in several recurring themes. The main themes that emerged from the data include caring for a loved one, support from family and friends, role change from partner to caregiver, quality of life issues, facing death, feelings of emptiness following death, emerging from the loss, and the supportive role of rural communities.The implications of this research demonstrate that through a rural partnership a process and means by which rural communities develop the necessary skills, expertise and capacity to support palliative care clients and caregivers can be established. Through our involvement in this research community engagement, development and support was mobilised for client and caregivers involving rural communities, health organisations, palliative care teams and health professionals. We have also identified policy development issues and have been advocating bringing these to the attention of local and state governments, Department of Health Services, Department of Human Services, and universities educating health professionals for action. These issues are equally relevant to palliative care international and will be discussed at the presentation.</td></tr></table>en_GB
dc.date.available2011-10-26T09:30:09Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T09:30:09Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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