Quality of life of hospitalized persons with AIDS: An ethnographic analysis

2.50
Hdl Handle:
http://hdl.handle.net/10755/147439
Type:
Presentation
Title:
Quality of life of hospitalized persons with AIDS: An ethnographic analysis
Abstract:
Quality of life of hospitalized persons with AIDS: An ethnographic analysis
Conference Sponsor:Sigma Theta Tau International
Conference Year:1991
Author:Ragsdale, Diane, EdD
P.I. Institution Name:Texas Woman's University
Title:Professor
Problem Statement: Quality of life (QOL) refers to a patient'sability to exert meaningful control over aspects of the illnesssituation perceived as relevant. There are two analyticaldimensions to this concept: the patient's inventory of practicalproblems to address; and the patient's chosen or ascribed globalstrategy for managing these problems. These two features of QOLhave been addressed through an interview and observational study of21 patients admitted to a dedicated HIV/AIDS unit.Research Question: What types of practical problems do persons withAIDS (PWAs) face during hospitalization?Conceptual Base/Literature Review: A review of the literaturerevealed few studies related to the quality of life of HIV-infectedpersons. The results of these studies should be viewed withcaution as the verbal descriptors used to measure quality of lifewere not previously validated in studies with HIV subjects.To date no single instrument exists to measure QOL. In many healthcare settings there is a serious discrepancy between PWAs perceivedhealth care and the actual care provided. Thus the health caredollar is being inefficiently spent. PWAs desire input intodecisions concerning their care, however this input is notconsistently sought. Based on the present status of health care ofPWAs in the United States, it becomes imperative to include theresponses of PWAs as a way of identifying significant aspects ofpatient care.Because there is no cure and survival time can be lengthy, AIDSbecomes a chronic disease. PWAs some how must manage their illnesswhile conducting their personal lives. According to AnselmStrauss, this involves work in managing the following areas: crisismanagement, regimens, symptom control and time management. Nursesare involved in much of this work and it is their caringinteractions that help create the work product. Viewing QOLthrough Strauss's notion of work was the conceptual basis for thisstudy.Method/Design: Judgmental sampling was used to select 21 PWAs (19males, 2 females) admitted to a dedicated AIDS unit.Semi-structured interviews were conducted by an interdisciplinaryteam of six researchers. Data were verified via naturalisticobservations (62 hours) of everyday life on the unit. The logic ofgrounded theory guided analysis.Findings: QOL was viewed not as any measurable characteristic ofthe patient, but as the product of this interactional work.Results indicated that PWAs work very hard to manage severalpractical problems. These include: maintaining a sense of controlover the treatment regimen, the meaning of having AIDS, achievinga morally viable self-identity as a PWA, the ability to integratepast, present and future biography relevant to AIDS, adapting tothe cultural and physical environments in the hospital, andmanaging pain and discomfort. Based on these findings, QOL isimpacted by the work involved in solving the problems associatedwith being seriously sick. Nursing care can potentially affectboth the nature of these practical problems as well as patients'success in managing these problems.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleQuality of life of hospitalized persons with AIDS: An ethnographic analysisen_GB
dc.identifier.urihttp://hdl.handle.net/10755/147439-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Quality of life of hospitalized persons with AIDS: An ethnographic analysis</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">1991</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Ragsdale, Diane, EdD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Texas Woman's University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Professor</td></tr><tr><td colspan="2" class="item-abstract">Problem Statement: Quality of life (QOL) refers to a patient'sability to exert meaningful control over aspects of the illnesssituation perceived as relevant. There are two analyticaldimensions to this concept: the patient's inventory of practicalproblems to address; and the patient's chosen or ascribed globalstrategy for managing these problems. These two features of QOLhave been addressed through an interview and observational study of21 patients admitted to a dedicated HIV/AIDS unit.Research Question: What types of practical problems do persons withAIDS (PWAs) face during hospitalization?Conceptual Base/Literature Review: A review of the literaturerevealed few studies related to the quality of life of HIV-infectedpersons. The results of these studies should be viewed withcaution as the verbal descriptors used to measure quality of lifewere not previously validated in studies with HIV subjects.To date no single instrument exists to measure QOL. In many healthcare settings there is a serious discrepancy between PWAs perceivedhealth care and the actual care provided. Thus the health caredollar is being inefficiently spent. PWAs desire input intodecisions concerning their care, however this input is notconsistently sought. Based on the present status of health care ofPWAs in the United States, it becomes imperative to include theresponses of PWAs as a way of identifying significant aspects ofpatient care.Because there is no cure and survival time can be lengthy, AIDSbecomes a chronic disease. PWAs some how must manage their illnesswhile conducting their personal lives. According to AnselmStrauss, this involves work in managing the following areas: crisismanagement, regimens, symptom control and time management. Nursesare involved in much of this work and it is their caringinteractions that help create the work product. Viewing QOLthrough Strauss's notion of work was the conceptual basis for thisstudy.Method/Design: Judgmental sampling was used to select 21 PWAs (19males, 2 females) admitted to a dedicated AIDS unit.Semi-structured interviews were conducted by an interdisciplinaryteam of six researchers. Data were verified via naturalisticobservations (62 hours) of everyday life on the unit. The logic ofgrounded theory guided analysis.Findings: QOL was viewed not as any measurable characteristic ofthe patient, but as the product of this interactional work.Results indicated that PWAs work very hard to manage severalpractical problems. These include: maintaining a sense of controlover the treatment regimen, the meaning of having AIDS, achievinga morally viable self-identity as a PWA, the ability to integratepast, present and future biography relevant to AIDS, adapting tothe cultural and physical environments in the hospital, andmanaging pain and discomfort. Based on these findings, QOL isimpacted by the work involved in solving the problems associatedwith being seriously sick. Nursing care can potentially affectboth the nature of these practical problems as well as patients'success in managing these problems.</td></tr></table>en_GB
dc.date.available2011-10-26T09:32:26Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T09:32:26Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.