Understanding times of uncertainty: The end of life caregiving trajectory

2.50
Hdl Handle:
http://hdl.handle.net/10755/147764
Type:
Presentation
Title:
Understanding times of uncertainty: The end of life caregiving trajectory
Abstract:
Understanding times of uncertainty: The end of life caregiving trajectory
Conference Sponsor:Sigma Theta Tau International
Conference Year:2005
Author:Penrod, Janice, PhD
P.I. Institution Name:The Pennsylvania State University
Title:Assistant Professor
Co-Authors:Judith E. Hupcey, EdD; Annabelle Smith, MSN
Uncertainty is a feeling of doubt or not knowing that permeates the experiences of family caregivers. This paper explores states of uncertainty faced by family caregivers who provide end of life care. First, a series of research projects exploring the concept of uncertainty are summarized in a theory of caregiver uncertainty. Critical to this discussion are the critical conceptual components of the experience of uncertainty: Sensing confidence, Sensing control, Reading the situation, Shifting temporal perspectives, and Building a sense of normal. The interplay of these conceptual components mark states of uncertainty that range in intensity and duration across the caregiving experience. In order to understand the experience of uncertainty within the context of end of life caregiving, grounded theory study methods were used to explore variations in states of uncertainty experienced by caregivers who provided end of life care. The sample consisted of 48 family caregivers of adult patients with varied death trajectories: cancer, organ failure, ALS, and frailty. The caregiving experience was punctuated by three crisp transitions: diagnosis, recognition of the ineffectiveness of curative treatment, and the death of the loved one. Surrounding each of these transition points, the caregivers lived through phases described as: Something's not right, Challenging normal, Building a new normal, and Grieving the loss while building a new life. Changing patterns of the essential characteristics of uncertainty marks each of these phases.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleUnderstanding times of uncertainty: The end of life caregiving trajectoryen_GB
dc.identifier.urihttp://hdl.handle.net/10755/147764-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Understanding times of uncertainty: The end of life caregiving trajectory</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2005</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Penrod, Janice, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">The Pennsylvania State University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">jlp198@psu.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Judith E. Hupcey, EdD; Annabelle Smith, MSN</td></tr><tr><td colspan="2" class="item-abstract">Uncertainty is a feeling of doubt or not knowing that permeates the experiences of family caregivers. This paper explores states of uncertainty faced by family caregivers who provide end of life care. First, a series of research projects exploring the concept of uncertainty are summarized in a theory of caregiver uncertainty. Critical to this discussion are the critical conceptual components of the experience of uncertainty: Sensing confidence, Sensing control, Reading the situation, Shifting temporal perspectives, and Building a sense of normal. The interplay of these conceptual components mark states of uncertainty that range in intensity and duration across the caregiving experience. In order to understand the experience of uncertainty within the context of end of life caregiving, grounded theory study methods were used to explore variations in states of uncertainty experienced by caregivers who provided end of life care. The sample consisted of 48 family caregivers of adult patients with varied death trajectories: cancer, organ failure, ALS, and frailty. The caregiving experience was punctuated by three crisp transitions: diagnosis, recognition of the ineffectiveness of curative treatment, and the death of the loved one. Surrounding each of these transition points, the caregivers lived through phases described as: Something's not right, Challenging normal, Building a new normal, and Grieving the loss while building a new life. Changing patterns of the essential characteristics of uncertainty marks each of these phases.</td></tr></table>en_GB
dc.date.available2011-10-26T09:36:05Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T09:36:05Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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