Perceptions of Adult Cystic Fibrosis Patients Toward Transition from Pediatric to Adult Health Care Systems

2.50
Hdl Handle:
http://hdl.handle.net/10755/148303
Type:
Presentation
Title:
Perceptions of Adult Cystic Fibrosis Patients Toward Transition from Pediatric to Adult Health Care Systems
Abstract:
Perceptions of Adult Cystic Fibrosis Patients Toward Transition from Pediatric to Adult Health Care Systems
Conference Sponsor:Sigma Theta Tau International
Conference Year:2001
Conference Date:November 10 - 14, 2001
Author:Bartosik, Sandra
P.I. Institution Name:Children’s Medical Center
Background: Cystic Fibrosis (CF) can no longer be classified solely as a disease of childhood. Individuals with CF are living well into adulthood. These individuals, despite the chronic nature of their disease, are mastering the tasks of adulthood including living independently, joining the workforce, marrying, and raising families. These realities create new challenges for their healthcare providers who traditionally are from a pediatric background. Inevitably, adult healthcare providers will assume the care of these individuals in adult healthcare systems. In order for such transfers to happen successfully, the perceived issues of transition must be explored. Objective: To explore the process of transitioning adult CF patients from pediatric to adult healthcare systems. Design: A qualitative study. Methods: Semi-structured interviews were conducted with participants until a point of informational redundancy was achieved. All interviews were recorded and transcribed for data analysis. Analysis: Constant comparative methods were utilized to conduct the data analysis. Results: The participants in this study (n=7) described three major themes of their perceptions toward transition from pediatric to adult healthcare systems. They described a certain degree of trust in their pediatric providers that they felt would not exist between themselves and the new adult care providers. Participants questioned the knowledge level of the adult staff in relation to cystic fibrosis disease management and they question whether they will have a comparable level of care as that they have grown accustomed to. Participants described social networks developed in the pediatric setting that may be compromised at the time of transition to the adult setting. Conclusion: For the transitioning process to be successful, obstacles to transition must be minimized and individuals facing this reality must begin to re-establish trustworthy networks.
Repository Posting Date:
26-Oct-2011
Date of Publication:
10-Nov-2001
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titlePerceptions of Adult Cystic Fibrosis Patients Toward Transition from Pediatric to Adult Health Care Systemsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/148303-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Perceptions of Adult Cystic Fibrosis Patients Toward Transition from Pediatric to Adult Health Care Systems</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2001</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">November 10 - 14, 2001</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Bartosik, Sandra</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Children&rsquo;s Medical Center</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">sbartosik@cmc-dayton.org</td></tr><tr><td colspan="2" class="item-abstract">Background: Cystic Fibrosis (CF) can no longer be classified solely as a disease of childhood. Individuals with CF are living well into adulthood. These individuals, despite the chronic nature of their disease, are mastering the tasks of adulthood including living independently, joining the workforce, marrying, and raising families. These realities create new challenges for their healthcare providers who traditionally are from a pediatric background. Inevitably, adult healthcare providers will assume the care of these individuals in adult healthcare systems. In order for such transfers to happen successfully, the perceived issues of transition must be explored. Objective: To explore the process of transitioning adult CF patients from pediatric to adult healthcare systems. Design: A qualitative study. Methods: Semi-structured interviews were conducted with participants until a point of informational redundancy was achieved. All interviews were recorded and transcribed for data analysis. Analysis: Constant comparative methods were utilized to conduct the data analysis. Results: The participants in this study (n=7) described three major themes of their perceptions toward transition from pediatric to adult healthcare systems. They described a certain degree of trust in their pediatric providers that they felt would not exist between themselves and the new adult care providers. Participants questioned the knowledge level of the adult staff in relation to cystic fibrosis disease management and they question whether they will have a comparable level of care as that they have grown accustomed to. Participants described social networks developed in the pediatric setting that may be compromised at the time of transition to the adult setting. Conclusion: For the transitioning process to be successful, obstacles to transition must be minimized and individuals facing this reality must begin to re-establish trustworthy networks.</td></tr></table>en_GB
dc.date.available2011-10-26T09:43:12Z-
dc.date.issued2001-11-10en_GB
dc.date.accessioned2011-10-26T09:43:12Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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