Parents’ Perception and Management of Chronically Ill Children in the Home

2.50
Hdl Handle:
http://hdl.handle.net/10755/148334
Type:
Presentation
Title:
Parents’ Perception and Management of Chronically Ill Children in the Home
Abstract:
Parents’ Perception and Management of Chronically Ill Children in the Home
Conference Sponsor:Sigma Theta Tau International
Conference Year:2001
Conference Date:November 10 - 14, 2001
Author:Joffe, Patricia, PhD
P.I. Institution Name:New Jersey City University
Advances in technology and knowledge have contributed to a growing population of children with chronic illness. Nurses caring for chronically ill children and their families in the home have witnessed a rapid increase in the occurrence and complexity of care that children receive in the home. A Challenge for pediatric nurses is to develop, teach and deliver health care that is sensitive to a multicultural population. The purpose of this study was to examine how African-American, Hispanic, and Caucasian families dealt with chronic illness of a child in the home. The study explains how family caregivers perceived the stresses of caregiving and how they managed the delivery of care for a child with a chronic illness – bronchopulmonary dysplasia. The 14 caregivers were interviewed in their homes using a semi-structured interview guide. Grounded theory was used to develop a theory from systematically generated descriptive data. A major finding in this investigation was the universality of stressors and needs. The theory generated proposed that parental caregiving for a chronically ill child is learned throughout phases over time as caregivers respond to the adaptive tasks, stresses, and needs inherent in the different phases. Important cultural themes emerged from data collected from each cultural group that have implications to assist nurses to help culturally diverse families become competent caregivers. Implications from this study may be categorized into 3 areas: (a) implications for nurses, (2) implications for caregiver education and support, and (c) policy implications for more effective management of chronic illness in the home.
Repository Posting Date:
26-Oct-2011
Date of Publication:
10-Nov-2001
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleParents’ Perception and Management of Chronically Ill Children in the Homeen_GB
dc.identifier.urihttp://hdl.handle.net/10755/148334-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Parents&rsquo; Perception and Management of Chronically Ill Children in the Home</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2001</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">November 10 - 14, 2001</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Joffe, Patricia, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">New Jersey City University</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">pjoffe@njcu.edu</td></tr><tr><td colspan="2" class="item-abstract">Advances in technology and knowledge have contributed to a growing population of children with chronic illness. Nurses caring for chronically ill children and their families in the home have witnessed a rapid increase in the occurrence and complexity of care that children receive in the home. A Challenge for pediatric nurses is to develop, teach and deliver health care that is sensitive to a multicultural population. The purpose of this study was to examine how African-American, Hispanic, and Caucasian families dealt with chronic illness of a child in the home. The study explains how family caregivers perceived the stresses of caregiving and how they managed the delivery of care for a child with a chronic illness &ndash; bronchopulmonary dysplasia. The 14 caregivers were interviewed in their homes using a semi-structured interview guide. Grounded theory was used to develop a theory from systematically generated descriptive data. A major finding in this investigation was the universality of stressors and needs. The theory generated proposed that parental caregiving for a chronically ill child is learned throughout phases over time as caregivers respond to the adaptive tasks, stresses, and needs inherent in the different phases. Important cultural themes emerged from data collected from each cultural group that have implications to assist nurses to help culturally diverse families become competent caregivers. Implications from this study may be categorized into 3 areas: (a) implications for nurses, (2) implications for caregiver education and support, and (c) policy implications for more effective management of chronic illness in the home.</td></tr></table>en_GB
dc.date.available2011-10-26T09:43:39Z-
dc.date.issued2001-11-10en_GB
dc.date.accessioned2011-10-26T09:43:39Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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