Nursing and Families of Children with Nephrotic Syndrome: New Elements and Horizons to Take Care

2.50
Hdl Handle:
http://hdl.handle.net/10755/149570
Type:
Presentation
Title:
Nursing and Families of Children with Nephrotic Syndrome: New Elements and Horizons to Take Care
Abstract:
Nursing and Families of Children with Nephrotic Syndrome: New Elements and Horizons to Take Care
Conference Sponsor:Sigma Theta Tau International
Conference Year:2007
Author:Rocha, Semiramis M. M., PhD
P.I. Institution Name:University of S?o Paulo at Ribeir?o Preto College of Nursing
Title:Associate Professor
Co-Authors:Rosa L. R. Ribeiro, PhD
[Clinical session research presentation] This study aims to understand the care of children with Nephrotic Syndrome, to identify new elements and horizons to reconstruct the nursing care, focalizing to the family. A qualitative study was realized, using hermeneutics according to Gadamer and Ricouer as a theoretical-methodological reference framework. Participants: families of children with Nephrotic Syndrome who attended the Pediatric Nephrology Service in, Brazil. Data were collected by means of: the families' nursing records, the construction of the genogram and ecomap, documentary analysis and talks with the families. 42 subjects participated, including six families and four health team members. The results were organized in three themes: 1. Presentation of the families. They are present by means of their projects, characters and context. They share a history of lost, distance from one's origins, death of important persons, separations, presumed fatherhood and other health problems, besides the child's disease. 2. The trajectory of the child's disease in the family. This topic presents the family?s experiences since the start of the disease, their efforts to overcome financial difficulties, changes in family life, the fear of relapses, the search for explanations for their occurrence and the family's pride when they get over the worst of it; 3. Care for the nephrotic child. It reveals the viewpoints of caregivers, family members and health professionals, as well as possible care on the basis of family arrangements. The health team also exposes its dilemmas and limits in facing the child?s care and approaching the family. Family and team members express the need for mutual interaction to construct the product of this broad dialogue, that is, care, which should exclude neither technical-scientific knowledge nor the families' perspective. What care is concerned, the exercise of formative assessment proposed by Ayres is recommended.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleNursing and Families of Children with Nephrotic Syndrome: New Elements and Horizons to Take Careen_GB
dc.identifier.urihttp://hdl.handle.net/10755/149570-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Nursing and Families of Children with Nephrotic Syndrome: New Elements and Horizons to Take Care</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2007</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Rocha, Semiramis M. M., PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of S?o Paulo at Ribeir?o Preto College of Nursing</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">smmrocha@eerp.usp.br</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Rosa L. R. Ribeiro, PhD</td></tr><tr><td colspan="2" class="item-abstract">[Clinical session research presentation] This study aims to understand the care of children with Nephrotic Syndrome, to identify new elements and horizons to reconstruct the nursing care, focalizing to the family. A qualitative study was realized, using hermeneutics according to Gadamer and Ricouer as a theoretical-methodological reference framework. Participants: families of children with Nephrotic Syndrome who attended the Pediatric Nephrology Service in, Brazil. Data were collected by means of: the families' nursing records, the construction of the genogram and ecomap, documentary analysis and talks with the families. 42 subjects participated, including six families and four health team members. The results were organized in three themes: 1. Presentation of the families. They are present by means of their projects, characters and context. They share a history of lost, distance from one's origins, death of important persons, separations, presumed fatherhood and other health problems, besides the child's disease. 2. The trajectory of the child's disease in the family. This topic presents the family?s experiences since the start of the disease, their efforts to overcome financial difficulties, changes in family life, the fear of relapses, the search for explanations for their occurrence and the family's pride when they get over the worst of it; 3. Care for the nephrotic child. It&nbsp;reveals the viewpoints of caregivers, family members and health professionals, as well as possible care on the basis of family arrangements. The health team also exposes its dilemmas and limits in facing the child?s care and approaching the family. Family and team members express the need for mutual interaction to construct the product of this broad dialogue, that is, care, which should exclude neither technical-scientific knowledge nor the families' perspective. What care is concerned, the exercise of formative assessment proposed by Ayres is recommended.</td></tr></table>en_GB
dc.date.available2011-10-26T10:05:05Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T10:05:05Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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