Adolescents with Spina Bifida: Informational Needs and Functional Self-Care Ability in the Transition to Independent Self-Care

2.50
Hdl Handle:
http://hdl.handle.net/10755/150360
Type:
Presentation
Title:
Adolescents with Spina Bifida: Informational Needs and Functional Self-Care Ability in the Transition to Independent Self-Care
Abstract:
Adolescents with Spina Bifida: Informational Needs and Functional Self-Care Ability in the Transition to Independent Self-Care
Conference Sponsor:Sigma Theta Tau International
Conference Year:2001
Conference Date:November 10 - 14, 2001
Author:Thompson, Teri
P.I. Institution Name:Children’s Mercy Hospital
Congenital spina bifida encompasses a group of spinal lesions that vary in location, severity, and functional limitations. Spina bifida is the second most common congenital birth defect. Advancements in medical interventions and technologies have increased life span expectations. Over 50% of children born with spina bifida now reach over twenty years of age. Children, parents and health care providers are transversing the uncharted territory of transitional health care. It would be desirable for capable adolescents with spina bifida to slowly take responsibility of self-care, increasing if possible to total self-care. The main purposes of this research are to assess the perceived medical and non-medical needs and functional self-care ability, mobility, and cognition of the adolescent with spina bifida. Another purpose is to learn if a correlation exists between the perceived medical and non-medical needs and assessed functional self-care ability, mobility and cognition. The research utilized two instruments the Needs Assessment Questionnaire (NAQ) and the Wee FIM. The NAQ is a valid and reliable tool that assesses medical and non-medical needs and their perceived importance by the adolescent. The Wee FIM system is a reliable and valid instrument that measures functional abilities of self-care, mobility and cognition. The outcomes from this research can significantly impact the care provided to children with spina bifida as they will provide the health care provider with an insight into medical and non-medical needs, as well as functional self-care, mobility and cognitive abilities of the adolescent with spina bifida. The promotion of self-care and independence will serve to increase self-esteem, and optimal physical and spiritual well-being. The adolescent’s ability to complete or direct self-care will serve to decrease obstacles to their transition to young adult hood, while increasing self-esteem and self-confidence. In addition, the impact of this research on societies burden of care for the adolescent with spina bifida has critical significance. Increase in functional self-care ability and independence in the adolescent spina bifida population, through restoration and promotion of physical, spiritual and emotional health and well-being, only serves to decrease societies financial, emotional and physical burden. Health care dollars will be saved if the adolescent learns to make the necessary decisions that result in a decrease in the complications associated with spina bifida related to poor self-care. The adolescent’s contributions and the impact of the contributions on society cannot be estimated and are often immeasurable. Through the creation of higher functioning and better-prepared young adults, the contributions of this cohort group, should only increase.
Repository Posting Date:
26-Oct-2011
Date of Publication:
10-Nov-2001
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleAdolescents with Spina Bifida: Informational Needs and Functional Self-Care Ability in the Transition to Independent Self-Careen_GB
dc.identifier.urihttp://hdl.handle.net/10755/150360-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Adolescents with Spina Bifida: Informational Needs and Functional Self-Care Ability in the Transition to Independent Self-Care</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2001</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">November 10 - 14, 2001</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Thompson, Teri</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Children&rsquo;s Mercy Hospital</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">tlte56@umkc.edu</td></tr><tr><td colspan="2" class="item-abstract">Congenital spina bifida encompasses a group of spinal lesions that vary in location, severity, and functional limitations. Spina bifida is the second most common congenital birth defect. Advancements in medical interventions and technologies have increased life span expectations. Over 50% of children born with spina bifida now reach over twenty years of age. Children, parents and health care providers are transversing the uncharted territory of transitional health care. It would be desirable for capable adolescents with spina bifida to slowly take responsibility of self-care, increasing if possible to total self-care. The main purposes of this research are to assess the perceived medical and non-medical needs and functional self-care ability, mobility, and cognition of the adolescent with spina bifida. Another purpose is to learn if a correlation exists between the perceived medical and non-medical needs and assessed functional self-care ability, mobility and cognition. The research utilized two instruments the Needs Assessment Questionnaire (NAQ) and the Wee FIM. The NAQ is a valid and reliable tool that assesses medical and non-medical needs and their perceived importance by the adolescent. The Wee FIM system is a reliable and valid instrument that measures functional abilities of self-care, mobility and cognition. The outcomes from this research can significantly impact the care provided to children with spina bifida as they will provide the health care provider with an insight into medical and non-medical needs, as well as functional self-care, mobility and cognitive abilities of the adolescent with spina bifida. The promotion of self-care and independence will serve to increase self-esteem, and optimal physical and spiritual well-being. The adolescent&rsquo;s ability to complete or direct self-care will serve to decrease obstacles to their transition to young adult hood, while increasing self-esteem and self-confidence. In addition, the impact of this research on societies burden of care for the adolescent with spina bifida has critical significance. Increase in functional self-care ability and independence in the adolescent spina bifida population, through restoration and promotion of physical, spiritual and emotional health and well-being, only serves to decrease societies financial, emotional and physical burden. Health care dollars will be saved if the adolescent learns to make the necessary decisions that result in a decrease in the complications associated with spina bifida related to poor self-care. The adolescent&rsquo;s contributions and the impact of the contributions on society cannot be estimated and are often immeasurable. Through the creation of higher functioning and better-prepared young adults, the contributions of this cohort group, should only increase.</td></tr></table>en_GB
dc.date.available2011-10-26T10:22:37Z-
dc.date.issued2001-11-10en_GB
dc.date.accessioned2011-10-26T10:22:37Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.