2.50
Hdl Handle:
http://hdl.handle.net/10755/151126
Type:
Presentation
Title:
A Global Voice of Women: Access to Clinical Trials to Treat Ovarian Cancer
Abstract:
A Global Voice of Women: Access to Clinical Trials to Treat Ovarian Cancer
Conference Sponsor:Sigma Theta Tau International
Conference Year:2008
Author:Cesario, Sandra, RNC, PhD
P.I. Institution Name:Texas Woman's University - Houston
Title:Doctoral Program Coordinator and Associate Professor
[Research Paper or Poster Presentation] Ovarian cancer is the fifth leading cause of cancer death in women worldwide and the most deadly of the gynecologic cancers. The highest incidence of ovarian cancer is seen in Europe and North America, but rates are rising in developing nations. Few women diagnosed with ovarian cancer receive the benefit of cutting edge healthcare by a gynecologic oncologist and may be denied the opportunity to participate in clinical trials that might provide added benefit and prolong life. Overall accessibility to studies and stated inclusion/exclusion criteria create disparities in research participation. Whether it is decreased access to protocols or the exclusion of potential participants from available studies, women express frustration and anger at the lack of inclusion. Conversely, women may feel coerced into participating, lack choices or information to make autonomous decisions, or choose to participate out of fear or hopelessness. Others may participate because the standard treatment has failed or they do not have the financial means to access other forms of treatment. Understanding the physical, economic, geographic, political, and psycho-social parameters that facilitate participation or hinder access aids the researcher in planning rigorous, humanistic, and accessible protocols. The purpose of this study is to explore the thoughts and feelings of women diagnosed with ovarian cancer regarding access to drug trials and other cancer research. The overarching questions: (1) What has your experience been with research protocols since being diagnosed with ovarian cancer? (2) What do the phrases "inclusion criteria" and "exclusion criteria" mean to you? The Internet has removed geographic barriers to collecting data. A phenomenological design employing focus groups and online surveys designed to elicit qualitative data will be used. Colaizzi's method of analysis will be used to identify, extract, and organize themes via manual indexing and coding. This project is currently in progress.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleA Global Voice of Women: Access to Clinical Trials to Treat Ovarian Canceren_GB
dc.identifier.urihttp://hdl.handle.net/10755/151126-
dc.description.abstract<table><tr><td colspan="2" class="item-title">A Global Voice of Women: Access to Clinical Trials to Treat Ovarian Cancer</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2008</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Cesario, Sandra, RNC, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Texas Woman's University - Houston</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Doctoral Program Coordinator and Associate Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">scesario@twu.edu</td></tr><tr><td colspan="2" class="item-abstract">[Research Paper or Poster Presentation] Ovarian cancer is the fifth leading cause of cancer death in women worldwide and the most deadly of the gynecologic cancers. The highest incidence of ovarian cancer is seen in Europe and North America, but rates are rising in developing nations. Few women diagnosed with ovarian cancer receive the benefit of cutting edge healthcare by a gynecologic oncologist and may be denied the opportunity to participate in clinical trials that might provide added benefit and prolong life. Overall accessibility to studies and stated inclusion/exclusion criteria create disparities in research participation. Whether it is decreased access to protocols or the exclusion of potential participants from available studies, women express frustration and anger at the lack of inclusion. Conversely, women may feel coerced into participating, lack choices or information to make autonomous decisions, or choose to participate out of fear or hopelessness. Others may participate because the standard treatment has failed or they do not have the financial means to access other forms of treatment. Understanding the physical, economic, geographic, political, and psycho-social parameters that facilitate participation or hinder access aids the researcher in planning rigorous, humanistic, and accessible protocols. The purpose of this study is to explore the thoughts and feelings of women diagnosed with ovarian cancer regarding access to drug trials and other cancer research. The overarching questions: (1) What has your experience been with research protocols since being diagnosed with ovarian cancer? (2) What do the phrases &quot;inclusion criteria&quot; and &quot;exclusion criteria&quot; mean to you? The Internet has removed geographic barriers to collecting data. A phenomenological design employing focus groups and online surveys designed to elicit qualitative data will be used. Colaizzi's method of analysis will be used to identify, extract, and organize themes via manual indexing and coding. This project is currently in progress.</td></tr></table>en_GB
dc.date.available2011-10-26T10:52:39Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T10:52:39Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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