Decision Making Preferences of Chronically Ill Adolescents: A Qualitative Study

2.50
Hdl Handle:
http://hdl.handle.net/10755/151135
Type:
Presentation
Title:
Decision Making Preferences of Chronically Ill Adolescents: A Qualitative Study
Abstract:
Decision Making Preferences of Chronically Ill Adolescents: A Qualitative Study
Conference Sponsor:Sigma Theta Tau International
Conference Year:2008
Author:Domingo, E. B., PhD
P.I. Institution Name:Azusa Pacific University
Title:Assistant Professor
[Research Paper or Poster Presentation] Purpose: This study examined and determined the preferences of chronically ill adolescents for their participation in decision-making affecting their health and care. It unfolded a theory grounded on the voices of chronically ill adolescents. Methods: A qualitative content analysis was used through iterative and interpretive stance using the inductive process. Participants were eighty chronically ill adolescents, 14 to 19-years-old diagnosed with cystic fibrosis, asthma, leukemia, and sickle cell. Open and axial coding broke data into themes and categories and a core category emerged. Substantive codes conceptualized empirical substance. Results: The basic problem emerged with a core category achieving for participation and sub themes seeking for participation, seeking for autonomy, and seeking for shared decision making. Themes emerged such as: being heard, being involved, being informed, having a voice, and having a choice. A theoretical framework emerged that explains how the emerging problem is processed in a social setting. Conclusions: Achieving for participation fulfills the rights of the adolescent to shared decision making, self-actualization, dignity, respect, non-interference, and the right to make informed decisions. This implies the need for health policy makers and health care personnel to affirm the rights of the child for a partnership or shared decision-making. Keywords: Participation, shared decision making, self actualization
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleDecision Making Preferences of Chronically Ill Adolescents: A Qualitative Studyen_GB
dc.identifier.urihttp://hdl.handle.net/10755/151135-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Decision Making Preferences of Chronically Ill Adolescents: A Qualitative Study</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2008</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Domingo, E. B., PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Azusa Pacific University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">edefdomingo@hotmail.com</td></tr><tr><td colspan="2" class="item-abstract">[Research Paper or Poster Presentation] Purpose: This study examined and determined the preferences of chronically ill adolescents for their participation in decision-making affecting their health and care. It unfolded a theory grounded on the voices of chronically ill adolescents. Methods: A qualitative content analysis was used through iterative and interpretive stance using the inductive process. Participants were eighty chronically ill adolescents, 14 to 19-years-old diagnosed with cystic fibrosis, asthma, leukemia, and sickle cell. Open and axial coding broke data into themes and categories and a core category emerged. Substantive codes conceptualized empirical substance. Results: The basic problem emerged with a core category achieving for participation and sub themes seeking for participation, seeking for autonomy, and seeking for shared decision making. Themes emerged such as: being heard, being involved, being informed, having a voice, and having a choice. A theoretical framework emerged that explains how the emerging problem is processed in a social setting. Conclusions: Achieving for participation fulfills the rights of the adolescent to shared decision making, self-actualization, dignity, respect, non-interference, and the right to make informed decisions. This implies the need for health policy makers and health care personnel to affirm the rights of the child for a partnership or shared decision-making. Keywords: Participation, shared decision making, self actualization</td></tr></table>en_GB
dc.date.available2011-10-26T10:52:55Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T10:52:55Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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