Experiences of spousal caregivers during hematopoietic stem cell transplantation

2.50
Hdl Handle:
http://hdl.handle.net/10755/151275
Type:
Presentation
Title:
Experiences of spousal caregivers during hematopoietic stem cell transplantation
Abstract:
Experiences of spousal caregivers during hematopoietic stem cell transplantation
Conference Sponsor:Sigma Theta Tau International
Conference Year:2007
Author:Heermann, Judith, PhD, RN
P.I. Institution Name:University of Nebraska Medical Center
Title:Associate Professor
Co-Authors:June Eilers, PhD, RN; Margaret E. Wilson, PhD, CPNP and Rita Million
[Research Presentation] Purpose/Objectives: The purpose of this qualitative study was to explore the experiences of the spouses of hematopoietic stem cell transplant (HSCT) recipients from admission to the transplant unit to discharge home. Design:áA qualitative design was used to explore the experiences of spouses of HSCT recipients. Sample:áParticipants were spouses (N=11; 8 female; 3 male) of individuals undergoing HSCT at a leading transplant center in the Midwestern United States. Method:áParticipants were interviewed 1 to 6 times beginning just after admission. The interviews (N = 28) were recorded and transcribed verbatim. The interviews were part of a larger study of caregivers of persons undergoing HSCT.á For this analysis only those caregivers who were spouses of the recipients were included. Analysis:áSpradley's domain analysis was used to identify themes from the interviews. After initial line by line coding, codes were compared and conceptual categories identified. These categories eventually became the themes that constitute the findings. All analysis was conducted in team meetings with four researchers. Results: Major themes were: 1) Feeling dislocated from normal life; 2) Riding a rollercoaster in the dark: Living the uncertainty; 3) Rituals: Structuring the uncertainty; 4) Forming a positive perspective; 5) Envisioning the future; 6) Caregiving; and 7) Balancing "me and my world" with "us and our world". Implications:áAwareness of the spousal caregiving experience can positively influence health care professionals' interaction with and support of the spouse-caregiver/recipient dyad. Knowing the importance of rituals in managing the uncertainty of the transplant experience can be used to structure both educational preparation of the dyad and day to day activities during the transplantation experience.áRecognizing the wide variation in spousal caregiversÆ response during this period can reinforce the necessity to individualize care.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleExperiences of spousal caregivers during hematopoietic stem cell transplantationen_GB
dc.identifier.urihttp://hdl.handle.net/10755/151275-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Experiences of spousal caregivers during hematopoietic stem cell transplantation</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2007</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Heermann, Judith, PhD, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Nebraska Medical Center</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">jheerman@unmc.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">June Eilers, PhD, RN; Margaret E. Wilson, PhD, CPNP and Rita Million</td></tr><tr><td colspan="2" class="item-abstract">[Research Presentation] Purpose/Objectives: The purpose of this qualitative study was to explore the experiences of the spouses of hematopoietic stem cell transplant (HSCT) recipients from admission to the transplant unit to discharge home. Design:&aacute;A qualitative design was used to explore the experiences of spouses of HSCT recipients. Sample:&aacute;Participants were spouses (N=11; 8 female; 3 male) of individuals undergoing HSCT at a leading transplant center in the Midwestern United States. Method:&aacute;Participants were interviewed 1 to 6 times beginning just after admission. The interviews (N = 28) were recorded and transcribed verbatim. The interviews were part of a larger study of caregivers of persons undergoing HSCT.&aacute; For this analysis only those caregivers who were spouses of the recipients were included. Analysis:&aacute;Spradley's domain analysis was used to identify themes from the interviews. After initial line by line coding, codes were compared and conceptual categories identified. These categories eventually became the themes that constitute the findings. All analysis was conducted in team meetings with four researchers. Results: Major themes were: 1) Feeling dislocated from normal life; 2) Riding a rollercoaster in the dark: Living the uncertainty; 3) Rituals: Structuring the uncertainty; 4) Forming a positive perspective; 5) Envisioning the future; 6) Caregiving; and 7) Balancing &quot;me and my world&quot; with &quot;us and our world&quot;. Implications:&aacute;Awareness of the spousal caregiving experience can positively influence health care professionals' interaction with and support of the spouse-caregiver/recipient dyad. Knowing the importance of rituals in managing the uncertainty of the transplant experience can be used to structure both educational preparation of the dyad and day to day activities during the transplantation experience.&aacute;Recognizing the wide variation in spousal caregivers&AElig; response during this period can reinforce the necessity to individualize care.</td></tr></table>en_GB
dc.date.available2011-10-26T10:57:13Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T10:57:13Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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