Evaluating an Intervention Pilot for Parents of Children With Autistic Spectrum

2.50
Hdl Handle:
http://hdl.handle.net/10755/151501
Type:
Presentation
Title:
Evaluating an Intervention Pilot for Parents of Children With Autistic Spectrum
Abstract:
Evaluating an Intervention Pilot for Parents of Children With Autistic Spectrum
Conference Sponsor:Sigma Theta Tau International
Conference Year:2005
Author:Giarelli, Ellen, RN, EdD, CS, CRNP
P.I. Institution Name:University of Pennsylvania
Title:Adj Assistant Professor, Research Projects Manager
Co-Authors:M. Souders, MSN, RN, CRNP; Jennifer Pinto-Martin, PhD; Joan Bloch, PhD, CRNP
Parents of children who receive the diagnosis of autistic spectrum disorder (ASD) experience a situational crisis. This paper describes a randomized trial (n=31) that was conducted at a regional diagnostic center to a) refine a nursing intervention designed for parents of children with ASD and (b) to identify methodological revisions for a larger study. A secondary purpose was to test the effects of a post-diagnosis nursing intervention on parents' reports of stress, impact of event, and use of services after a child is newly diagnosed with ASD. Parent age ranged from 33-49 years and the 11 male and 4 female children ages ranged from 2-5 yrs. The intervention consisted of usual care plus three hours contact with a Pediatric Nurse Practitioner (PNP)for counseling, instruction, and assistance with implementation of recommended treatment plan. The control group received only the usual care post-diagnosis which consisted of a one hour consultation session to receive the results of diagnostic tests and a written copy of the recommended treatment plan provided by a developmental pediatrician and/or PNP. Data were collected at baseline and 3 months. The most urgent needs of parents were for emotional support from a professional with expert knowledge and guidance to individualize the treatment plan. Analysis of group differences were conducted on Perceived Stress and Impact of Events. The differences between groups in measures of ôimpact of eventö and ôperceived stressö were not statistically significant. This was attributed to a small sample size. A larger study is recommended with an expanded nursing intervention and a significantly larger sample recruited from an additional recruitment site. Nurses working with this special population must recognize that parents have information and counseling needs that begin after they receive the diagnosis of ASD for their child and can address these needs with a standardized nursing intervention.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleEvaluating an Intervention Pilot for Parents of Children With Autistic Spectrumen_GB
dc.identifier.urihttp://hdl.handle.net/10755/151501-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Evaluating an Intervention Pilot for Parents of Children With Autistic Spectrum</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2005</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Giarelli, Ellen, RN, EdD, CS, CRNP</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Pennsylvania</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Adj Assistant Professor, Research Projects Manager</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">giarelli@nursing.upenn.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">M. Souders, MSN, RN, CRNP; Jennifer Pinto-Martin, PhD; Joan Bloch, PhD, CRNP</td></tr><tr><td colspan="2" class="item-abstract">Parents of children who receive the diagnosis of autistic spectrum disorder (ASD) experience a situational crisis. This paper describes a randomized trial (n=31) that was conducted at a regional diagnostic center to a) refine a nursing intervention designed for parents of children with ASD and (b) to identify methodological revisions for a larger study. A secondary purpose was to test the effects of a post-diagnosis nursing intervention on parents' reports of stress, impact of event, and use of services after a child is newly diagnosed with ASD. Parent age ranged from 33-49 years and the 11 male and 4 female children ages ranged from 2-5 yrs. The intervention consisted of usual care plus three hours contact with a Pediatric Nurse Practitioner (PNP)for counseling, instruction, and assistance with implementation of recommended treatment plan. The control group received only the usual care post-diagnosis which consisted of a one hour consultation session to receive the results of diagnostic tests and a written copy of the recommended treatment plan provided by a developmental pediatrician and/or PNP. Data were collected at baseline and 3 months. The most urgent needs of parents were for emotional support from a professional with expert knowledge and guidance to individualize the treatment plan. Analysis of group differences were conducted on Perceived Stress and Impact of Events. The differences between groups in measures of &ocirc;impact of event&ouml; and &ocirc;perceived stress&ouml; were not statistically significant. This was attributed to a small sample size. A larger study is recommended with an expanded nursing intervention and a significantly larger sample recruited from an additional recruitment site. Nurses working with this special population must recognize that parents have information and counseling needs that begin after they receive the diagnosis of ASD for their child and can address these needs with a standardized nursing intervention.</td></tr></table>en_GB
dc.date.available2011-10-26T11:04:24Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T11:04:24Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.