What Advice Adults With Neural Tube Defects Can Give Parents and Children With This Condition

2.50
Hdl Handle:
http://hdl.handle.net/10755/152575
Type:
Presentation
Title:
What Advice Adults With Neural Tube Defects Can Give Parents and Children With This Condition
Abstract:
What Advice Adults With Neural Tube Defects Can Give Parents and Children With This Condition
Conference Sponsor:Sigma Theta Tau International
Conference Year:2005
Author:Nehring, Wendy M., RN, PhD, FAAN
P.I. Institution Name:Rutgers, The State University of New Jersey
Title:Associate Dean
Much is known about neural tube defects (NTD) and the health care that is given to children with this condition. Less is known about this condition in adulthood. Through a descriptive, qualitative study of 16 Caucasian, 11 African-American, and 15 Mexican-American adults with NTDs, aged 20 to 75, information was learned that could be of use to parents and children with this condition as they age into adulthood. The purpose of this paper will be to explore developmental and health concerns for adults as described by this sample and the advice that younger individuals with NTDs and their families can take for their future life as an adult. A semi-structured interview guide in English and Spanish was used to obtain information on health status and secondary conditions, health care management, current level of functioning, sexuality, degree of independence, self-care, mobility, social activities and relationships, and cultural and religious influences. Three themes emerged from the data and included: uncertainty regarding the future, access to health care and information, and advocacy concerns. From these results, anticipatory guidance in each of these three areas will be discussed for children with NTDs and their families. It is important that nurses and other health care professionals begin to discuss and research the lifespan trajectory of chronic childhood conditions in order for persons with these conditions to live optimal lives.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleWhat Advice Adults With Neural Tube Defects Can Give Parents and Children With This Conditionen_GB
dc.identifier.urihttp://hdl.handle.net/10755/152575-
dc.description.abstract<table><tr><td colspan="2" class="item-title">What Advice Adults With Neural Tube Defects Can Give Parents and Children With This Condition</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2005</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Nehring, Wendy M., RN, PhD, FAAN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Rutgers, The State University of New Jersey</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Dean</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">nehring@nightingale.rutgers.edu</td></tr><tr><td colspan="2" class="item-abstract">Much is known about neural tube defects (NTD) and the health care that is given to children with this condition. Less is known about this condition in adulthood. Through a descriptive, qualitative study of 16 Caucasian, 11 African-American, and 15 Mexican-American adults with NTDs, aged 20 to 75, information was learned that could be of use to parents and children with this condition as they age into adulthood. The purpose of this paper will be to explore developmental and health concerns for adults as described by this sample and the advice that younger individuals with NTDs and their families can take for their future life as an adult. A semi-structured interview guide in English and Spanish was used to obtain information on health status and secondary conditions, health care management, current level of functioning, sexuality, degree of independence, self-care, mobility, social activities and relationships, and cultural and religious influences. Three themes emerged from the data and included: uncertainty regarding the future, access to health care and information, and advocacy concerns. From these results, anticipatory guidance in each of these three areas will be discussed for children with NTDs and their families. It is important that nurses and other health care professionals begin to discuss and research the lifespan trajectory of chronic childhood conditions in order for persons with these conditions to live optimal lives.</td></tr></table>en_GB
dc.date.available2011-10-26T11:41:25Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T11:41:25Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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