2.50
Hdl Handle:
http://hdl.handle.net/10755/152987
Type:
Presentation
Title:
Self-Care in Emerging Adults with Congenital Heart Disease
Abstract:
Self-Care in Emerging Adults with Congenital Heart Disease
Conference Sponsor:Sigma Theta Tau International
Conference Year:2011
Author:Fleck, Desiree, CRNP
P.I. Institution Name:University of Pennsylvania
Title:Nurse Practitioner
Co-Authors:Victoria Vaughan Dickson PhD, RN, CRNP, Assistant Professor
Janet Deatrick RN, PhD, FAAN, Associate Professor
Barbara Riegel RN, CS, FAAN, Professor
[22nd International Nursing Research Congress - Research Presentation] Purpose:  To describe the performance of self-care in emerging adults with CHD and the factors that influence it. Methods:  In this qualitative descriptive study, 35 emerging adults (aged 18-25 years) with CHD were interviewed.  Purposive sampling was used to obtain heterogeneity in gender, self-care and disease complexity.  Semi-structured interviews were audiotaped, transcribed verbatim and analyzed using content analysis.  Within case and across case analysis resulted in the identification of themes and subthemes that described the performance of self-care. Results: The sample was 42% female, 5.7% African American, mean age 21 (SD=2.3 years); 46% had moderately complex CHD.  Evident in the narrative accounts, self-care begins with shared responsibility and evolves into independent self-care.  Independent participation in medical appointments, preventing symptoms and taking medications were key behaviors but self-care was inconsistent.  While independent participation was important, participants rarely attended appointments alone. "I talk, but always like someone there in case of bad news."  Participants recognized the importance of symptom prevention "...stay hydrated and rest between dancing and I will be okay."  Taking medications was usually an independent activity.  "I have been responsible for my medications since I have taken them."  Factors influencing self-care included knowledge, developmental stage, family, beliefs and attitudes. Self-care was a developmental task that came with emotional maturity.
Conclusion: Self-care was described as a process as well as a series of tasks that were defined and shaped through their relationships with their family caregivers and health care providers.  Researchers need to test interventions focused not only on the patients but also on parents and providers to encourage self-care.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleSelf-Care in Emerging Adults with Congenital Heart Diseaseen_GB
dc.identifier.urihttp://hdl.handle.net/10755/152987-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Self-Care in Emerging Adults with Congenital Heart Disease</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2011</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Fleck, Desiree, CRNP</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Pennsylvania</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Nurse Practitioner</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">fleckd@email.chop.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Victoria Vaughan Dickson PhD, RN, CRNP, Assistant Professor<br/>Janet Deatrick RN, PhD, FAAN, Associate Professor<br/>Barbara Riegel RN, CS, FAAN, Professor</td></tr><tr><td colspan="2" class="item-abstract">[22nd International Nursing Research Congress - Research Presentation] Purpose:&nbsp; To describe the performance of self-care in emerging adults with CHD and the factors that influence it.&nbsp;Methods:&nbsp;&nbsp;In this qualitative descriptive study, 35 emerging adults (aged 18-25 years) with CHD were interviewed. &nbsp;Purposive sampling was used to obtain heterogeneity in gender, self-care and disease complexity. &nbsp;Semi-structured interviews were audiotaped, transcribed verbatim and analyzed using content analysis.&nbsp; Within case and across case analysis resulted in the identification of themes and subthemes that described the performance of self-care.&nbsp;Results:&nbsp;The sample was 42% female, 5.7% African American, mean age 21 (SD=2.3 years); 46% had moderately complex CHD.&nbsp; Evident in the narrative accounts, self-care begins with shared responsibility and evolves into independent self-care.&nbsp; Independent participation in medical appointments, preventing symptoms and taking medications were key behaviors but self-care was inconsistent. &nbsp;While independent participation was important, participants rarely attended appointments alone. &quot;I talk, but always like someone there in case of bad news.&quot;&nbsp; Participants recognized the importance of symptom prevention &quot;...stay hydrated and rest between dancing and I will be okay.&quot;&nbsp; Taking medications was usually an independent activity.&nbsp; &quot;I have been responsible for my medications since I have taken them.&quot;&nbsp;&nbsp;Factors influencing self-care included knowledge, developmental stage, family, beliefs and attitudes.&nbsp;Self-care was a developmental task that came with emotional maturity. <br/>Conclusion: Self-care was described as a process as well as a series of tasks that were defined and shaped through their relationships with their family caregivers and health care providers. &nbsp;Researchers need to test interventions focused not only on the patients but also on parents and providers to encourage self-care.</td></tr></table>en_GB
dc.date.available2011-10-26T11:57:52Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T11:57:52Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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