2.50
Hdl Handle:
http://hdl.handle.net/10755/154763
Type:
Presentation
Title:
Parents Experiencing the Illness Course of a Critically Ill Child
Abstract:
Parents Experiencing the Illness Course of a Critically Ill Child
Conference Sponsor:Sigma Theta Tau International
Conference Year:2003
Conference Date:July 10-12, 2003
Author:Brown, Pamela, RN, MS, CCRN
P.I. Institution Name:Miami Children's Hospital
Title:Staff Nurse
Objective: To identify what it is like for a parent to experience the critical illness of their child.<P> Design: Grounded Theory, qualitative design. <P> Sample: Thirty-seven participants (29 mothers, 8 fathers) from a population of parents whose children have congenital heart disease and have experienced a stay in a Pediatric Cardiac Intensive Care Unit. <P> Method: Interviews were conducted using a semi-structured format. The grounded theory methodology enabled data to be collected and analyzed simultaneously using the constant comparison method as described by Glaser and Strauss (1967).<P> Findings: The experience of being a parent whose child has a critical illness is a process that involves complex emotions and behaviors. The process begins with the child’s admission and includes initial reactions such as shock and lack of understanding. During the child's admission the parents have a continual need for information and education, are required to make changes in their parental role, face difficulties related to decision making and repeatedly experience the agony of waiting for procedures to be completed. Overriding the entire experience is the uncertainty surrounding the child's long term outcome. The process concludes with personal growth that the parents reported as a consequence of their experiences. Parents also identified things that helped and hindered their ability to cope with their child’s illness. <P> Conclusions: The experience of having your child suffer a critical illness is an agonizing and complex one for parents. The information obtained in this study provides beginning insight into the needs and experiences of parents who have watched their children suffer with a critical illness. <P> Implications: The information from this study can be used to design interventions to enhance the support provided to parents. Further research needs to include parents from more diverse ethnic backgrounds and whose children died during their ICU stay.
Repository Posting Date:
26-Oct-2011
Date of Publication:
10-Jul-2003
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleParents Experiencing the Illness Course of a Critically Ill Childen_GB
dc.identifier.urihttp://hdl.handle.net/10755/154763-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Parents Experiencing the Illness Course of a Critically Ill Child</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2003</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">July 10-12, 2003</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Brown, Pamela, RN, MS, CCRN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Miami Children's Hospital</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Staff Nurse</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">pabrownrn@aol.com</td></tr><tr><td colspan="2" class="item-abstract">Objective: To identify what it is like for a parent to experience the critical illness of their child.&lt;P&gt; Design: Grounded Theory, qualitative design. &lt;P&gt; Sample: Thirty-seven participants (29 mothers, 8 fathers) from a population of parents whose children have congenital heart disease and have experienced a stay in a Pediatric Cardiac Intensive Care Unit. &lt;P&gt; Method: Interviews were conducted using a semi-structured format. The grounded theory methodology enabled data to be collected and analyzed simultaneously using the constant comparison method as described by Glaser and Strauss (1967).&lt;P&gt; Findings: The experience of being a parent whose child has a critical illness is a process that involves complex emotions and behaviors. The process begins with the child&rsquo;s admission and includes initial reactions such as shock and lack of understanding. During the child's admission the parents have a continual need for information and education, are required to make changes in their parental role, face difficulties related to decision making and repeatedly experience the agony of waiting for procedures to be completed. Overriding the entire experience is the uncertainty surrounding the child's long term outcome. The process concludes with personal growth that the parents reported as a consequence of their experiences. Parents also identified things that helped and hindered their ability to cope with their child&rsquo;s illness. &lt;P&gt; Conclusions: The experience of having your child suffer a critical illness is an agonizing and complex one for parents. The information obtained in this study provides beginning insight into the needs and experiences of parents who have watched their children suffer with a critical illness. &lt;P&gt; Implications: The information from this study can be used to design interventions to enhance the support provided to parents. Further research needs to include parents from more diverse ethnic backgrounds and whose children died during their ICU stay.</td></tr></table>en_GB
dc.date.available2011-10-26T13:15:31Z-
dc.date.issued2003-07-10en_GB
dc.date.accessioned2011-10-26T13:15:31Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.