Using Drama to Build Community Through Research: Enhancing Understanding of Ethical Issues in Alzheimer's Disease

2.50
Hdl Handle:
http://hdl.handle.net/10755/155609
Type:
Presentation
Title:
Using Drama to Build Community Through Research: Enhancing Understanding of Ethical Issues in Alzheimer's Disease
Abstract:
Using Drama to Build Community Through Research: Enhancing Understanding of Ethical Issues in Alzheimer's Disease
Conference Sponsor:Sigma Theta Tau International
Conference Year:2004
Conference Date:July 22-24, 2004
Author:Sorrell, Jeanne M., PhD, RN, FAAN
P.I. Institution Name:N/A
Title:Acting Dean, Nursing
Co-Authors:Pamela R. Cangelosi, PhD, RNC
Objective: This study explored ethical concerns of persons living with Alzheimer's disease. Although many nursing research studies have addressed Alzheimer's disease, very few have focused on ethical concerns. Design: This phenomenological study used a Heideggerian hermeneutical approach. To build a community of understanding that would not be reached through scholarly journals, excerpts from interviews have been integrated into a dramatic reading to convey the power of ethical dilemmas faced by study participants. Population, Sample, Setting, Years: Eighteen face-to-face interviews were conducted with Alzheimer patients, caregivers, and health professionals in Northern Virginia during 1999 - 2002. Concept or Variables Studied: The study focused on the phenomenon of ethical concerns in Alzheimer's disease. Methods: The study was approved by the researcher's University Human Subjects' Review Board. Snowball sampling was used. Participants were asked: "Can you tell me about a specific incident that stands out in your mind that reflects ethical concerns?" All interviews were audiotaped or videotaped and transcribed verbatim. Findings: Direct quotes from participants will be used during the presentation to illustrate how drama can be used to convey qualitative research findings. Dramatic narratives are focused around the theme: "Creating a Quality of Life through Connected Lives." The narratives reveal how participants struggled with heart-wrenching decisions, yet were able to reframe their vulnerability into an evolving quality of life. Conclusions: Health care professionals need to question previous assumptions related to quality of life in persons living with Alzheimer's disease. Implications: The use of dramatic narratives to present research findings can help to build a community toward understanding that even in advanced dementia, persons are capable of thoughtful and empathetic interactions. The extension of perspectives of "Quality of life" in dementia to incorporate "Quality of interconnected lives" helps to establish an ethics of respect for the individual experience and its connecting relationships.
Repository Posting Date:
26-Oct-2011
Date of Publication:
22-Jul-2004
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleUsing Drama to Build Community Through Research: Enhancing Understanding of Ethical Issues in Alzheimer's Diseaseen_GB
dc.identifier.urihttp://hdl.handle.net/10755/155609-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Using Drama to Build Community Through Research: Enhancing Understanding of Ethical Issues in Alzheimer's Disease</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">July 22-24, 2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Sorrell, Jeanne M., PhD, RN, FAAN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">N/A</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Acting Dean, Nursing</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">Jsorrell@gmu.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Pamela R. Cangelosi, PhD, RNC</td></tr><tr><td colspan="2" class="item-abstract">Objective: This study explored ethical concerns of persons living with Alzheimer's disease. Although many nursing research studies have addressed Alzheimer's disease, very few have focused on ethical concerns. Design: This phenomenological study used a Heideggerian hermeneutical approach. To build a community of understanding that would not be reached through scholarly journals, excerpts from interviews have been integrated into a dramatic reading to convey the power of ethical dilemmas faced by study participants. Population, Sample, Setting, Years: Eighteen face-to-face interviews were conducted with Alzheimer patients, caregivers, and health professionals in Northern Virginia during 1999 - 2002. Concept or Variables Studied: The study focused on the phenomenon of ethical concerns in Alzheimer's disease. Methods: The study was approved by the researcher's University Human Subjects' Review Board. Snowball sampling was used. Participants were asked: &quot;Can you tell me about a specific incident that stands out in your mind that reflects ethical concerns?&quot; All interviews were audiotaped or videotaped and transcribed verbatim. Findings: Direct quotes from participants will be used during the presentation to illustrate how drama can be used to convey qualitative research findings. Dramatic narratives are focused around the theme: &quot;Creating a Quality of Life through Connected Lives.&quot; The narratives reveal how participants struggled with heart-wrenching decisions, yet were able to reframe their vulnerability into an evolving quality of life. Conclusions: Health care professionals need to question previous assumptions related to quality of life in persons living with Alzheimer's disease. Implications: The use of dramatic narratives to present research findings can help to build a community toward understanding that even in advanced dementia, persons are capable of thoughtful and empathetic interactions. The extension of perspectives of &quot;Quality of life&quot; in dementia to incorporate &quot;Quality of interconnected lives&quot; helps to establish an ethics of respect for the individual experience and its connecting relationships.</td></tr></table>en_GB
dc.date.available2011-10-26T14:00:08Z-
dc.date.issued2004-07-22en_GB
dc.date.accessioned2011-10-26T14:00:08Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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