Help Seeking in a Support Group for Persons with Sleep Apnea Who Use Continuous Positive Airway Pressure (CPAP) Devices

2.50
Hdl Handle:
http://hdl.handle.net/10755/155771
Type:
Presentation
Title:
Help Seeking in a Support Group for Persons with Sleep Apnea Who Use Continuous Positive Airway Pressure (CPAP) Devices
Abstract:
Help Seeking in a Support Group for Persons with Sleep Apnea Who Use Continuous Positive Airway Pressure (CPAP) Devices
Conference Sponsor:Sigma Theta Tau International
Conference Year:2002
Conference Date:July, 2002
Author:Dickerson, Suzanne, DNS/DNSc/DSN
P.I. Institution Name:University of Buffalo, State University of New York
Title:Assistant Professor
Objective: One in four adults in the USA, experience inadequate sleep which has implications for safety, job productivity and quality of life. Individuals' diagnosed with sleep apnea are often treated with continuous positive airway pressure (CPAP) devices which has a reported compliance rate of 55-85%. In coping with this life style change, individuals may seek help in a support group. The overall purpose of this study was to discover common meanings and shared understandings embedded in the experiences of persons with sleep apnea who seek help in a CPAP support group, and to ultimately understand their support needs which would facilitate development of meaning based interventions. The specific aims included: 1. Understand the experiences of individuals with sleep apnea before and after diagnosis. 2. Understand the experience of using a CPAP device during sleep. 3. Understand the experience of help seeking in a CPAP support group. 4. Based on the results of this project, develop plans for development of an Internet- based intervention to meet the support needs of this population and improve compliance. Design: The study was an exploratory, descriptive design using the methods of Heideggerian Hermeneutics. Participants were interviewed about their experience with sleep apnea and asked how the support group helps. Transcripts from interviews provide the data for hermeneutic analysis. Sample. Those who participate in an existing support group were invited to participate in the study. 20 individual interviews comprise the text for analysis. Concept: Help seeking in a support group of persons with sleep apnea who use CPAP devices. Measures: Textual based analysis of common themes and constitutive patterns. Findings: Eight themes and one constitutive pattern emerged from the data. 1.) Recognizing the problem with sleep apnea and seeking a diagnosis. 2.) The CPAP is an imposition on their life style. 3.) It requires becoming motivated to persist through initial and recurring frustration. 4.) Accommodating to the device requires empowerment and ownership to problem solve with home care companies, health care providers and insurance providers. 5.) Listening to others stories provides context for understanding how to maintain a healthy life with CPAP. 6.) Gaining information about newer products is essential for solving everyday practical problems with the device. 7.) The support group is a medium for communicating with others who use CPAP and accessing information for decision-making. 8.) An Internet website should provide essential components such as current product information as well as a forum for sharing stories. The constitutive pattern is Empowering consumers with consequential information and communication. Conclusions: Through hermeneutic study of these narrative stories an understanding of individuals perceptions are revealed. The informants once motivated by symptoms, recognize the importance of taking control of their lives while identifying the problem of sleep apnea and adjusting to the CPCP device. They must seeking information from their health care providers, home care companies and insurance providers. Equally important, the informants needed the knowledge from those who have had the experience to know what questions to ask and how to obtain needed services as well as the encouragement to persevere to obtain relief from symptoms. Implications: Use of CPAP for treatment of sleep apnea is vital since researchers have identified multiple clinical consequences of obstructive sleep apnea that include systemic hypertension, pulmonary hypertension and right heart failure. In addition sleep apnea can contribute to decreased cardiac function, ischemic disease, cardiac arrhythmias, secondary polycythemia and neurological effects such as cerebrovascular disease and excessive daytime sleepiness. This study helps clarify the clients' view in attempting to cope with the imposition of the device. Within the CPAP users' stories lay the possibility of understanding the concerns, practical knowledge, forms of engagement and reasoning in action used by the informants when seeking help in the support group. This understanding of the importance of information exchange to facilitate accommodation to the device will compliment knowledge of how to encourage clients to use the device. This knowledge of the types of information as well as the importance of discussing practical advice with persons who also have used the device will be used by health care providers in identifying the possibilities of integrating a Internet based support into a patients self management.

Repository Posting Date:
26-Oct-2011
Date of Publication:
Jul-2002
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleHelp Seeking in a Support Group for Persons with Sleep Apnea Who Use Continuous Positive Airway Pressure (CPAP) Devicesen_GB
dc.identifier.urihttp://hdl.handle.net/10755/155771-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Help Seeking in a Support Group for Persons with Sleep Apnea Who Use Continuous Positive Airway Pressure (CPAP) Devices</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2002</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">July, 2002</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Dickerson, Suzanne, DNS/DNSc/DSN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Buffalo, State University of New York</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">sdickers@buffalo.edu</td></tr><tr><td colspan="2" class="item-abstract">Objective: One in four adults in the USA, experience inadequate sleep which has implications for safety, job productivity and quality of life. Individuals' diagnosed with sleep apnea are often treated with continuous positive airway pressure (CPAP) devices which has a reported compliance rate of 55-85%. In coping with this life style change, individuals may seek help in a support group. The overall purpose of this study was to discover common meanings and shared understandings embedded in the experiences of persons with sleep apnea who seek help in a CPAP support group, and to ultimately understand their support needs which would facilitate development of meaning based interventions. The specific aims included: 1. Understand the experiences of individuals with sleep apnea before and after diagnosis. 2. Understand the experience of using a CPAP device during sleep. 3. Understand the experience of help seeking in a CPAP support group. 4. Based on the results of this project, develop plans for development of an Internet- based intervention to meet the support needs of this population and improve compliance. Design: The study was an exploratory, descriptive design using the methods of Heideggerian Hermeneutics. Participants were interviewed about their experience with sleep apnea and asked how the support group helps. Transcripts from interviews provide the data for hermeneutic analysis. Sample. Those who participate in an existing support group were invited to participate in the study. 20 individual interviews comprise the text for analysis. Concept: Help seeking in a support group of persons with sleep apnea who use CPAP devices. Measures: Textual based analysis of common themes and constitutive patterns. Findings: Eight themes and one constitutive pattern emerged from the data. 1.) Recognizing the problem with sleep apnea and seeking a diagnosis. 2.) The CPAP is an imposition on their life style. 3.) It requires becoming motivated to persist through initial and recurring frustration. 4.) Accommodating to the device requires empowerment and ownership to problem solve with home care companies, health care providers and insurance providers. 5.) Listening to others stories provides context for understanding how to maintain a healthy life with CPAP. 6.) Gaining information about newer products is essential for solving everyday practical problems with the device. 7.) The support group is a medium for communicating with others who use CPAP and accessing information for decision-making. 8.) An Internet website should provide essential components such as current product information as well as a forum for sharing stories. The constitutive pattern is Empowering consumers with consequential information and communication. Conclusions: Through hermeneutic study of these narrative stories an understanding of individuals perceptions are revealed. The informants once motivated by symptoms, recognize the importance of taking control of their lives while identifying the problem of sleep apnea and adjusting to the CPCP device. They must seeking information from their health care providers, home care companies and insurance providers. Equally important, the informants needed the knowledge from those who have had the experience to know what questions to ask and how to obtain needed services as well as the encouragement to persevere to obtain relief from symptoms. Implications: Use of CPAP for treatment of sleep apnea is vital since researchers have identified multiple clinical consequences of obstructive sleep apnea that include systemic hypertension, pulmonary hypertension and right heart failure. In addition sleep apnea can contribute to decreased cardiac function, ischemic disease, cardiac arrhythmias, secondary polycythemia and neurological effects such as cerebrovascular disease and excessive daytime sleepiness. This study helps clarify the clients' view in attempting to cope with the imposition of the device. Within the CPAP users' stories lay the possibility of understanding the concerns, practical knowledge, forms of engagement and reasoning in action used by the informants when seeking help in the support group. This understanding of the importance of information exchange to facilitate accommodation to the device will compliment knowledge of how to encourage clients to use the device. This knowledge of the types of information as well as the importance of discussing practical advice with persons who also have used the device will be used by health care providers in identifying the possibilities of integrating a Internet based support into a patients self management.<br/><br/></td></tr></table>en_GB
dc.date.available2011-10-26T14:09:32Z-
dc.date.issued2002-07en_GB
dc.date.accessioned2011-10-26T14:09:32Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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