Evaluation of Interdisciplinary Training for a Palliative Care/End-of-Life Communication Intervention for Parents of Children with Brain Tumors

2.50
Hdl Handle:
http://hdl.handle.net/10755/155909
Type:
Presentation
Title:
Evaluation of Interdisciplinary Training for a Palliative Care/End-of-Life Communication Intervention for Parents of Children with Brain Tumors
Abstract:
Evaluation of Interdisciplinary Training for a Palliative Care/End-of-Life Communication Intervention for Parents of Children with Brain Tumors
Conference Sponsor:Sigma Theta Tau International
Conference Year:2011
Author:Hendricks-Ferguson, Verna L., PhD, RN
P.I. Institution Name:Barnes-Jewish College
Title:Professor
Co-Authors:Joan E. Haase RN, PhD, FAAN, Holmquist Professor in Pediatric Oncology Nursing
Kamnesh R. Pradhan MD, Assistant Professor
Javier R. Kane MD, Associate Member, Department of Pediatrics; Director, Division of Palliative and End-of-Life Care
Chie-Schin Shih
Purpose:  The aim of this NIH funded study was to develop and evaluate training strategies for physicians and nurses (MD/RN dyads) to collaboratively deliver an early palliative and end-of-life (PC/EOL) communication intervention called, Communication Plan: Early through End of Life (COMPLETE), to 24 parents of children with a brain tumor. The purpose of this presentation is to describe the training activities and evaluation responses of the MD/RN dyads who participated in our training activities.  
Methods:  Training strategies were based on principles from a Relationship Centered Care perspective. The training was delivered to 3 pediatric neuro-oncologists and 5 oncology nurses by a team of parent advisors and a team of expert consultants (i.e., medical ethics, communication, and PC/EOL). Our 2-day training included 4 modules: family assessment, goal directed treatment planning, anticipatory guidance, and staff communication and follow-up. Each module included: didactic content, small group reflective sessions, and communication skills practice with bereaved parent. Evaluations included dichotomous (agree/disagree) ratings and qualitative comments on didactic content, small group reflection, and skills practice for each module.
Results:  Helpful aspects of our training strategies included: parent advisers' insights, emotional presence, emphasis on hope and non-abandonment messages, written materials to facilitate PC/EOL communication, and a team approach. For this presentation we will discuss insights gained regarding use of a parent advisory panel, strategies to help the MD/RN dyads feel comfortable working as a team to communicate with parents, and ways to improve training procedures and our intervention.
Conclusion: Pediatric oncology physicians and nurses found PC/EOL care communication training strategies and content as helpful and useful. Implications for research, policy or practice: Our PC/EOL care communication intervention will be implemented and evaluated with enrolled parents. If effective, this intervention will facilitate integration of quality PC care practices into the care of children with brain tumors.   
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleEvaluation of Interdisciplinary Training for a Palliative Care/End-of-Life Communication Intervention for Parents of Children with Brain Tumorsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/155909-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Evaluation of Interdisciplinary Training for a Palliative Care/End-of-Life Communication Intervention for Parents of Children with Brain Tumors</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2011</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Hendricks-Ferguson, Verna L., PhD, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Barnes-Jewish College</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">vferguson@bjc.org</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Joan E. Haase RN, PhD, FAAN, Holmquist Professor in Pediatric Oncology Nursing<br/>Kamnesh R. Pradhan MD, Assistant Professor<br/>Javier R. Kane MD, Associate Member, Department of Pediatrics; Director, Division of Palliative and End-of-Life Care<br/>Chie-Schin Shih </td></tr><tr><td colspan="2" class="item-abstract">Purpose:&nbsp;&nbsp;The aim of this NIH funded study was to develop and evaluate training strategies for physicians and nurses (MD/RN dyads) to collaboratively deliver an early palliative and end-of-life (PC/EOL) communication intervention called, Communication Plan: Early through End of Life (COMPLETE), to 24 parents of children with a brain tumor. The purpose of this presentation is to describe the training activities and evaluation responses of the MD/RN dyads who participated in our training activities. &nbsp;<br/>Methods:&nbsp;&nbsp;Training strategies were based on principles from a Relationship Centered Care perspective. The training was delivered to 3 pediatric neuro-oncologists and 5 oncology nurses by a team of parent advisors and a team of expert consultants (i.e., medical ethics, communication, and PC/EOL). Our 2-day training included 4 modules: family assessment, goal directed treatment planning, anticipatory guidance, and staff communication and follow-up. Each module included: didactic content, small group reflective sessions, and communication skills practice with bereaved parent. Evaluations included dichotomous (agree/disagree) ratings and qualitative comments on didactic content, small group reflection, and skills practice for each module. <br/>Results:&nbsp; Helpful aspects of our training strategies included: parent advisers' insights, emotional presence, emphasis on hope and non-abandonment messages, written materials to facilitate PC/EOL communication, and a team approach. For this presentation we will discuss insights gained regarding use of a parent advisory panel, strategies to help the MD/RN dyads feel comfortable working as a team to communicate with parents, and ways to improve training procedures and our intervention.<br/>Conclusion:&nbsp;Pediatric oncology physicians and nurses found PC/EOL care communication training strategies and content as helpful and useful.&nbsp;Implications for research, policy or practice: Our PC/EOL care communication intervention will be implemented and evaluated with enrolled parents. If effective, this intervention will facilitate integration of quality PC care practices into the care of children with brain tumors. &nbsp;&nbsp; <br/></td></tr></table>en_GB
dc.date.available2011-10-26T14:16:20Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T14:16:20Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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