Uncertainty, Coping, and Family Functioning in Parents of Children With Neurofibromatosis 1: A Path Analytic Study

2.50
Hdl Handle:
http://hdl.handle.net/10755/156668
Type:
Presentation
Title:
Uncertainty, Coping, and Family Functioning in Parents of Children With Neurofibromatosis 1: A Path Analytic Study
Abstract:
Uncertainty, Coping, and Family Functioning in Parents of Children With Neurofibromatosis 1: A Path Analytic Study
Conference Sponsor:Sigma Theta Tau International
Conference Year:2004
Conference Date:July 22-24, 2004
Author:Dylis, Ann M., PhD, RN
P.I. Institution Name:Northeastern University
Title:Assistant Professor
Significance: Neurofibromatosis 1 (NF) is an autosomal dominant genetic disorder characterized by much variability in its physical and behavioral manifestations. Contextual stressors influence parents of children with NF, but prior research has not examined if relationships exist among these factors. Purpose: The purpose of the study was to test a proposed causal model that explicated direct and indirect relationships among personal and environmental characteristics, uncertainty, uncertainty stress, and parental coping on family functioning in parents of children with NF. Lazarus and Folkman’s (1984) Model of Stress, Appraisal, and Coping served as the Theoretical Framework. Design: A descriptive-exploratory design, using multiple regression, tested the proposed model via a path analysis. Methods: A convenience sample of international parents (N = 201), recruited through print and internet media of four NF organizations, completed a researcher constructed personal information sheet and valid and reliable measures of uncertainty, uncertainty stress, parental coping, and family functioning. Results: The final causal model, trimmed of non-significant paths, explained 29% of the variance in family functioning. Significant direct effects existed between family functioning and both parental coping and uncertainty stress. Significant indirect effects on family functioning existed between parent gender, through parental coping, and perceived severity, through uncertainty stress. Lower uncertainty stress and higher coping scores predicted higher family functioning. Younger mothers, who perceived their recently diagnosed children as more severely affected, had the highest uncertainty stress. Conclusions/Implications: Differences in parental gender, parental perception of the child’s NF severity, coping, and uncertainty stress were contextual factors that effected family functioning scores. Family functioning and coping means were significantly lower than those reported in published norms and in other nursing studies. Additional between and within group studies, including analysis of dyadic data and responses over time, are suggested to promote individualized nursing interventions aimed at optimum parental and family functioning.
Repository Posting Date:
26-Oct-2011
Date of Publication:
22-Jul-2004
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleUncertainty, Coping, and Family Functioning in Parents of Children With Neurofibromatosis 1: A Path Analytic Studyen_GB
dc.identifier.urihttp://hdl.handle.net/10755/156668-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Uncertainty, Coping, and Family Functioning in Parents of Children With Neurofibromatosis 1: A Path Analytic Study</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">July 22-24, 2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Dylis, Ann M., PhD, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Northeastern University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">a.dylis@neu.edu</td></tr><tr><td colspan="2" class="item-abstract">Significance: Neurofibromatosis 1 (NF) is an autosomal dominant genetic disorder characterized by much variability in its physical and behavioral manifestations. Contextual stressors influence parents of children with NF, but prior research has not examined if relationships exist among these factors. Purpose: The purpose of the study was to test a proposed causal model that explicated direct and indirect relationships among personal and environmental characteristics, uncertainty, uncertainty stress, and parental coping on family functioning in parents of children with NF. Lazarus and Folkman&rsquo;s (1984) Model of Stress, Appraisal, and Coping served as the Theoretical Framework. Design: A descriptive-exploratory design, using multiple regression, tested the proposed model via a path analysis. Methods: A convenience sample of international parents (N = 201), recruited through print and internet media of four NF organizations, completed a researcher constructed personal information sheet and valid and reliable measures of uncertainty, uncertainty stress, parental coping, and family functioning. Results: The final causal model, trimmed of non-significant paths, explained 29% of the variance in family functioning. Significant direct effects existed between family functioning and both parental coping and uncertainty stress. Significant indirect effects on family functioning existed between parent gender, through parental coping, and perceived severity, through uncertainty stress. Lower uncertainty stress and higher coping scores predicted higher family functioning. Younger mothers, who perceived their recently diagnosed children as more severely affected, had the highest uncertainty stress. Conclusions/Implications: Differences in parental gender, parental perception of the child&rsquo;s NF severity, coping, and uncertainty stress were contextual factors that effected family functioning scores. Family functioning and coping means were significantly lower than those reported in published norms and in other nursing studies. Additional between and within group studies, including analysis of dyadic data and responses over time, are suggested to promote individualized nursing interventions aimed at optimum parental and family functioning.</td></tr></table>en_GB
dc.date.available2011-10-26T15:00:34Z-
dc.date.issued2004-07-22en_GB
dc.date.accessioned2011-10-26T15:00:34Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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