Crossing Community Sectors: Challenges Faced by Families of Children With Special Health Care Needs

2.50
Hdl Handle:
http://hdl.handle.net/10755/156703
Type:
Presentation
Title:
Crossing Community Sectors: Challenges Faced by Families of Children With Special Health Care Needs
Abstract:
Crossing Community Sectors: Challenges Faced by Families of Children With Special Health Care Needs
Conference Sponsor:Sigma Theta Tau International
Conference Year:2004
Conference Date:July 22-24, 2004
Author:Lutenbacher, Melanie, PhD, APRN, BC
P.I. Institution Name:Vanderbilt University
Title:Associate Professor & Director, PhD in Nursing Science Program
Purpose: The specific aim of this phase of a larger collaborative study [1] was to identify common needs, barriers to care across community sectors and challenges faced by families with CSHCN’s. [1][purpose of larger study: to track needs of families with CSHCN and guide development of local and state strategies to meet their needs] Sample: Caregivers (n = 37) of CSHCN participated. Ages ranged between 20 to 66 years (mean = 36 years). Most were women (92%) and Caucasian (65%) with at least 38% from rural communities. Most (89%) had at least high school education and were employed. Incomes ranged from $60,000 (11%). All families had medical insurance, primarily Medicaid (87%). Method: Focus groups were conducted across Tennessee. Data saturation occurred in the third group. A fourth group was conducted to ensure adequate inclusion of rural participants. Groups were audiotaped and transcribed verbatim. An interdisciplinary team used NVIVO software to facilitate content analysis. After initial data synthesis, all participants were provided an opportunity to participate in a confirmatory process of the synthesis. Study participants received a grocery coupon and offered transportation and child care expenses. Findings: Seven broad areas, each with specific issues and challenges, emerged from content analysis: Family support systems; Early intervention/school systems; Coordination of care; Lack of knowledge; Provider/family relationships; Parent roles; and Insurance systems. Caregivers specifically noted the critical roles nurses have in the care systems across community sectors. Conclusions: Findings related to the health care system are consistent with other works. This study adds the multidimensional nature of caring for a CSHCN and the import of considering how families interface with multiple community sectors in order to meet needs. Implications: This study raises many issues related to health policy, multi-sector tracking systems, and the development of family centered care systems.
Repository Posting Date:
26-Oct-2011
Date of Publication:
22-Jul-2004
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleCrossing Community Sectors: Challenges Faced by Families of Children With Special Health Care Needsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/156703-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Crossing Community Sectors: Challenges Faced by Families of Children With Special Health Care Needs</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">July 22-24, 2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Lutenbacher, Melanie, PhD, APRN, BC</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Vanderbilt University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor &amp; Director, PhD in Nursing Science Program</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">melanie.lutenbacher@vanderbilt.edu</td></tr><tr><td colspan="2" class="item-abstract">Purpose: The specific aim of this phase of a larger collaborative study [1] was to identify common needs, barriers to care across community sectors and challenges faced by families with CSHCN&rsquo;s. [1][purpose of larger study: to track needs of families with CSHCN and guide development of local and state strategies to meet their needs] Sample: Caregivers (n = 37) of CSHCN participated. Ages ranged between 20 to 66 years (mean = 36 years). Most were women (92%) and Caucasian (65%) with at least 38% from rural communities. Most (89%) had at least high school education and were employed. Incomes ranged from $60,000 (11%). All families had medical insurance, primarily Medicaid (87%). Method: Focus groups were conducted across Tennessee. Data saturation occurred in the third group. A fourth group was conducted to ensure adequate inclusion of rural participants. Groups were audiotaped and transcribed verbatim. An interdisciplinary team used NVIVO software to facilitate content analysis. After initial data synthesis, all participants were provided an opportunity to participate in a confirmatory process of the synthesis. Study participants received a grocery coupon and offered transportation and child care expenses. Findings: Seven broad areas, each with specific issues and challenges, emerged from content analysis: Family support systems; Early intervention/school systems; Coordination of care; Lack of knowledge; Provider/family relationships; Parent roles; and Insurance systems. Caregivers specifically noted the critical roles nurses have in the care systems across community sectors. Conclusions: Findings related to the health care system are consistent with other works. This study adds the multidimensional nature of caring for a CSHCN and the import of considering how families interface with multiple community sectors in order to meet needs. Implications: This study raises many issues related to health policy, multi-sector tracking systems, and the development of family centered care systems.</td></tr></table>en_GB
dc.date.available2011-10-26T15:02:51Z-
dc.date.issued2004-07-22en_GB
dc.date.accessioned2011-10-26T15:02:51Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.