2.50
Hdl Handle:
http://hdl.handle.net/10755/156818
Type:
Presentation
Title:
Dependency as Disadvantage – Patients’ Experiences
Abstract:
Dependency as Disadvantage – Patients’ Experiences
Conference Sponsor:Sigma Theta Tau International
Conference Year:2001
Conference Date:June, 2001
Author:Ellefsen, Bodil
P.I. Institution Name:University of Oslo
Research issue: The investigation explores the question of what it is like to be a highly dependent patient living at home and using home care, and how she/he relate to the situation. Design: This is an empirical and explorative qualitative study of the dependent community patient. Population, sample and setting: A non-probability and volunteer sample of 15 home nursing patients receiving home care service was selected from a large town in Norway. Methods: The data were collected through in-depth interviews with 15 patients in their home using a semi-structured interview guide in 1998. A constant comparative data analysis was done. Findings: The results show that the patient experience dependency of the home nursing service as constraint and burden. Constraints are apparent through reduced autonomy in everyday life and limited possibility for negotiations as experienced by the patients. The burden is demonstrated through uncertainty, threat to self-esteem, and loss of privacy. The patients’ adjustments are made through planning, guidance of the carer, acceptance of the situation, positive self-image and by protection of family and health care personnel, and placing blame on the bureaucracy. The patient reacts in a more passive, reactive way regarding circumstances connected to macro health care system and in a more proactive way by trying to influence the situation in the interaction in the private sphere of his/her home in relation to the micro health care service. Conclusions: The dependent home nursing patients experience constraints like reduced autonomy and burdens like uncertainty, threat to self-esteem and loss of privacy in daily life. The patient adjusts both in a reactive and proactive way. Implications: The importance of the results is an understanding of the dependent patients’ everyday life. Initially, it might be used for health care personal to strengthen the focus and be aware of the disempowered patient. Secondly, the health care personal might empower the patient by giving him/her more control in the everyday life. Thirdly, it could be used to investigate further, the importance of control and empower and the patients health.
Repository Posting Date:
26-Oct-2011
Date of Publication:
Jun-2001
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleDependency as Disadvantage – Patients’ Experiencesen_GB
dc.identifier.urihttp://hdl.handle.net/10755/156818-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Dependency as Disadvantage &ndash; Patients&rsquo; Experiences</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2001</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">June, 2001</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Ellefsen, Bodil</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Oslo</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">bodil.ellefsen@sykepleievit.ui</td></tr><tr><td colspan="2" class="item-abstract">Research issue: The investigation explores the question of what it is like to be a highly dependent patient living at home and using home care, and how she/he relate to the situation. Design: This is an empirical and explorative qualitative study of the dependent community patient. Population, sample and setting: A non-probability and volunteer sample of 15 home nursing patients receiving home care service was selected from a large town in Norway. Methods: The data were collected through in-depth interviews with 15 patients in their home using a semi-structured interview guide in 1998. A constant comparative data analysis was done. Findings: The results show that the patient experience dependency of the home nursing service as constraint and burden. Constraints are apparent through reduced autonomy in everyday life and limited possibility for negotiations as experienced by the patients. The burden is demonstrated through uncertainty, threat to self-esteem, and loss of privacy. The patients&rsquo; adjustments are made through planning, guidance of the carer, acceptance of the situation, positive self-image and by protection of family and health care personnel, and placing blame on the bureaucracy. The patient reacts in a more passive, reactive way regarding circumstances connected to macro health care system and in a more proactive way by trying to influence the situation in the interaction in the private sphere of his/her home in relation to the micro health care service. Conclusions: The dependent home nursing patients experience constraints like reduced autonomy and burdens like uncertainty, threat to self-esteem and loss of privacy in daily life. The patient adjusts both in a reactive and proactive way. Implications: The importance of the results is an understanding of the dependent patients&rsquo; everyday life. Initially, it might be used for health care personal to strengthen the focus and be aware of the disempowered patient. Secondly, the health care personal might empower the patient by giving him/her more control in the everyday life. Thirdly, it could be used to investigate further, the importance of control and empower and the patients health.</td></tr></table>en_GB
dc.date.available2011-10-26T15:10:06Z-
dc.date.issued2001-06en_GB
dc.date.accessioned2011-10-26T15:10:06Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.