2.50
Hdl Handle:
http://hdl.handle.net/10755/156846
Type:
Presentation
Title:
The Stress of Dementia: The Patient’s View
Abstract:
The Stress of Dementia: The Patient’s View
Conference Sponsor:Sigma Theta Tau International
Conference Year:2001
Conference Date:June, 2001
Author:Ostwald, Sharon
P.I. Institution Name:University of Texas Health Science Center-Houston
Objective: Stress among caregivers of persons with dementia has been studied extensively. However, little is known about how individuals with dementia perceive and deal with the stress of living with that diagnosis. The purpose of this analysis was to gain better insight into how persons with dementia perceive their current life. Design: As a part of a 3-year psychoeducational family group intervention for caregivers, persons with dementia were videotaped talking about their lives. Variables: Major themes were drawn from the responses of persons with dementia who were responding to an open-ended question, “How are things going for you?” Methods: An exploratory descriptive content analysis was performed on the 68 videotapes to identify themes. Sample: All participants were diagnosed with non-reversible dementia and were living in the community with their family caregivers. Findings: Three major themes were identified: 1) Self-Presentation including life review, relationships and daily activities, 2) Losses, such as cognitive, health, and relationships, and 3) Reactions to Losses including emotional reactions. The study provides insight into the ways in which persons with non-reversible dementia describe their problems with thinking, memory loss, and Alzheimer’s disease, as well as the ways that they try to manage their illness. Conclusions: Many persons with dementia are concerned with the losses that they are experiencing and given the opportunity, many of them can describe their losses and their feelings about those losses. Implications: Listening to persons with dementia talk about their lives helps to validate their humanity. Understanding how persons with dementia structure their experience is the first step to designing interventions that may assist them to deal with the stress associated with a diagnosis of dementia.
Repository Posting Date:
26-Oct-2011
Date of Publication:
Jun-2001
Sponsors:
Sigma Theta Tau International

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleThe Stress of Dementia: The Patient’s Viewen_GB
dc.identifier.urihttp://hdl.handle.net/10755/156846-
dc.description.abstract<table><tr><td colspan="2" class="item-title">The Stress of Dementia: The Patient&rsquo;s View</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Sigma Theta Tau International</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2001</td></tr><tr class="item-conference-date"><td class="label">Conference Date:</td><td class="value">June, 2001</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Ostwald, Sharon</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Texas Health Science Center-Houston</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">sostwald@admin4.hsc.uth.tmc.ed</td></tr><tr><td colspan="2" class="item-abstract">Objective: Stress among caregivers of persons with dementia has been studied extensively. However, little is known about how individuals with dementia perceive and deal with the stress of living with that diagnosis. The purpose of this analysis was to gain better insight into how persons with dementia perceive their current life. Design: As a part of a 3-year psychoeducational family group intervention for caregivers, persons with dementia were videotaped talking about their lives. Variables: Major themes were drawn from the responses of persons with dementia who were responding to an open-ended question, &ldquo;How are things going for you?&rdquo; Methods: An exploratory descriptive content analysis was performed on the 68 videotapes to identify themes. Sample: All participants were diagnosed with non-reversible dementia and were living in the community with their family caregivers. Findings: Three major themes were identified: 1) Self-Presentation including life review, relationships and daily activities, 2) Losses, such as cognitive, health, and relationships, and 3) Reactions to Losses including emotional reactions. The study provides insight into the ways in which persons with non-reversible dementia describe their problems with thinking, memory loss, and Alzheimer&rsquo;s disease, as well as the ways that they try to manage their illness. Conclusions: Many persons with dementia are concerned with the losses that they are experiencing and given the opportunity, many of them can describe their losses and their feelings about those losses. Implications: Listening to persons with dementia talk about their lives helps to validate their humanity. Understanding how persons with dementia structure their experience is the first step to designing interventions that may assist them to deal with the stress associated with a diagnosis of dementia.</td></tr></table>en_GB
dc.date.available2011-10-26T15:11:47Z-
dc.date.issued2001-06en_GB
dc.date.accessioned2011-10-26T15:11:47Z-
dc.description.sponsorshipSigma Theta Tau Internationalen_GB
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