GAPS IN RESOURCES: FAMILIES OF CHILDREN - CHRONIC PULMONARY CONDITIONS IN A RURAL STATE

2.50
Hdl Handle:
http://hdl.handle.net/10755/157284
Type:
Presentation
Title:
GAPS IN RESOURCES: FAMILIES OF CHILDREN - CHRONIC PULMONARY CONDITIONS IN A RURAL STATE
Abstract:
GAPS IN RESOURCES: FAMILIES OF CHILDREN - CHRONIC PULMONARY CONDITIONS IN A RURAL STATE
Conference Sponsor:Western Institute of Nursing
Conference Year:2010
Author:Lobo, Marie L., PhD, RN, FAAN
P.I. Institution Name:University of New Mexico
Title:Professor
Contact Address:MSC09 5350, Albuquerque, NM, 87131, USA
Co-Authors:Patricia Marshik
PURPOSES/AIMS: Describe the gaps in resources for families living in a rural state who are caring for a child with a chronic pulmonary illness.
RATIONALE/CONCEPTUAL BASIS/BACKGROUND: Many studies focusing on children with chronic pulmonary conditions examine families living in urban environments. Rural states provide challenges to families caring for children with chronic pulmonary conditions. Access to health care can be difficult due to distance or a lack of providers. This paper describes the gaps in resources for their child's chronic illness when families live in a rural environment.
METHODS:
This descriptive study was conducted using a structured interview (30 minutes long) where parents/ primary caregivers were asked about their demographics and gaps in resources. Families were recruited when they came to the clinic for regularly scheduled appointments. The study was reviewed and approved by the IRB.
RESULTS:
The sample of 150 families of children with chronic pulmonary conditions was drawn from the Pediatric Pulmonary Clinic (PPC) at major medical center in the SW. English-speaking families were selected from a non-categorical group of families with a child receiving care for a pulmonary condition at the PPC. Structured interviews were completed in clinic with families from rural and urban areas in New Mexico. The sample included 66 females (42.3%) and 90 males (57.7%), 6 families had two children attending an appointment. The median age was 7 years old (3.5 mo - 17 y). The majority of the families identified themselves as Hispanic (46%); the rest were Caucasian (27%), Other (14%), Native American (9%), African American (3%) and Asian (1%). Most families reported English as the primary language spoken at home (N=137) and 42% of the families reported being bilingual. The most frequently reported pulmonary condition was asthma (69.3%). Other pulmonary conditions were cystic fibrosis (4%), bronchopulmonary dysplasia (2%). A minority of families had problems accessing additional resources. The numbers varied from none having difficulty accessing a pharmacy to 3 families not having access to recommended mental health services to 6 families not having access to dental care. The intriguing findings were the lack of family support or services available during times other than work time. Parents also noted a lack of support specifically for them Requests were also made to have outreach clinics in some of the most distant cities. The frequency of existing outreach clinics was also cited as a gap. Additional challenges including delivery people leaving iced medications in the sun when the family is not home and medication being ruined.
IMPLICATIONS:
This study revealed that the gaps in services are not consistent across rural areas in a state with the 5th largest landmass in the states. Creative approaches to alleviating gaps in services for children with a chronic pulmonary condition and their families in New Mexico is the next challenge. Findings may be used to influence the development of health policies that affect families who travel long distances to seek health care for their children.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleGAPS IN RESOURCES: FAMILIES OF CHILDREN - CHRONIC PULMONARY CONDITIONS IN A RURAL STATEen_GB
dc.identifier.urihttp://hdl.handle.net/10755/157284-
dc.description.abstract<table><tr><td colspan="2" class="item-title">GAPS IN RESOURCES: FAMILIES OF CHILDREN - CHRONIC PULMONARY CONDITIONS IN A RURAL STATE</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2010</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Lobo, Marie L., PhD, RN, FAAN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of New Mexico</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">MSC09 5350, Albuquerque, NM, 87131, USA</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">mlobo@salud.unm.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Patricia Marshik</td></tr><tr><td colspan="2" class="item-abstract">PURPOSES/AIMS: Describe the gaps in resources for families living in a rural state who are caring for a child with a chronic pulmonary illness.<br/>RATIONALE/CONCEPTUAL BASIS/BACKGROUND: Many studies focusing on children with chronic pulmonary conditions examine families living in urban environments. Rural states provide challenges to families caring for children with chronic pulmonary conditions. Access to health care can be difficult due to distance or a lack of providers. This paper describes the gaps in resources for their child's chronic illness when families live in a rural environment. <br/>METHODS: <br/>This descriptive study was conducted using a structured interview (30 minutes long) where parents/ primary caregivers were asked about their demographics and gaps in resources. Families were recruited when they came to the clinic for regularly scheduled appointments. The study was reviewed and approved by the IRB.<br/>RESULTS: <br/>The sample of 150 families of children with chronic pulmonary conditions was drawn from the Pediatric Pulmonary Clinic (PPC) at major medical center in the SW. English-speaking families were selected from a non-categorical group of families with a child receiving care for a pulmonary condition at the PPC. Structured interviews were completed in clinic with families from rural and urban areas in New Mexico. The sample included 66 females (42.3%) and 90 males (57.7%), 6 families had two children attending an appointment. The median age was 7 years old (3.5 mo - 17 y). The majority of the families identified themselves as Hispanic (46%); the rest were Caucasian (27%), Other (14%), Native American (9%), African American (3%) and Asian (1%). Most families reported English as the primary language spoken at home (N=137) and 42% of the families reported being bilingual. The most frequently reported pulmonary condition was asthma (69.3%). Other pulmonary conditions were cystic fibrosis (4%), bronchopulmonary dysplasia (2%). A minority of families had problems accessing additional resources. The numbers varied from none having difficulty accessing a pharmacy to 3 families not having access to recommended mental health services to 6 families not having access to dental care. The intriguing findings were the lack of family support or services available during times other than work time. Parents also noted a lack of support specifically for them Requests were also made to have outreach clinics in some of the most distant cities. The frequency of existing outreach clinics was also cited as a gap. Additional challenges including delivery people leaving iced medications in the sun when the family is not home and medication being ruined. <br/>IMPLICATIONS: <br/>This study revealed that the gaps in services are not consistent across rural areas in a state with the 5th largest landmass in the states. Creative approaches to alleviating gaps in services for children with a chronic pulmonary condition and their families in New Mexico is the next challenge. Findings may be used to influence the development of health policies that affect families who travel long distances to seek health care for their children.<br/></td></tr></table>en_GB
dc.date.available2011-10-26T19:43:58Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T19:43:58Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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