2.50
Hdl Handle:
http://hdl.handle.net/10755/157398
Type:
Presentation
Title:
PARENT EXPECTATIONS AND RECOMMENDATIONS FOR HEALTH CARE HOME
Abstract:
PARENT EXPECTATIONS AND RECOMMENDATIONS FOR HEALTH CARE HOME
Conference Sponsor:Western Institute of Nursing
Conference Year:2010
Author:Wright, Mary M., PhD, RN
P.I. Institution Name:North Dakota State University
Title:Associate Professor
Contact Address:PO Box 6050, 136 Sudro Hall, Fargo, ND, 58108, USA
PURPOSES/AIMS: The purpose of this study is to identify parental learning needs, expectations and recommendations regarding the primary care and coordination of care and services for their child with health care needs that receives care under the planned program entitled Health Care Home. This program has also been called 'Medical Home' in much of the literature or health care industry publications. A secondary purpose of the study is to identify RESULTS: which may be encountered or incorporated into nursing care of the chronically ill child and their family.
RATIONALE/CONCEPTUAL BASIS/BACKGROUND: Wagner's (1998) Chronic Care Model (CCM) is the framework for this study. More specifically, Wagner indicates the need for an "Informed, Activated Patient" to interact with a "Prepared Proactive Practice Team" (p.3) in order to achieve clinical and functional outcomes. The focus of this study is on the parents of children with chronic health care needs who enter and need to navigate the Health Care Home. There is a gap in knowledge about the parents understanding and involvement in this approach to caring for children.
METHODS: A phenomenological approach is used in this study to elicit descriptive information from parents about their knowledge of the health care home as well as seeking their self assessment in the role of informed, activated parents. Parent expectations and recommendations are being solicited from parents of 10 families who currently have school age or adolescent children with special health care needs. The focus of data collection is related to the health care team, the services used, and their interactions with the parents. Data is collected via the interview process with parents electing to participate individually or in groups. Interview questions are categorized using the principles identified by the American Academy of Pediatrics (AAP, 2009) which include, a) family centered partnership, b) community based approach, c) transition to adult health related services, and c) value, as it relates to quality care, family satisfaction and cost efficiency.
RESULTS: The study is currently in process with anticipated completion in March of 2010.
IMPLICATIONS: Literature and informational materials about the Health Care Home focus on medical care with the nursing role not delineated at this time. While the nurse is a team member in the care of children with special needs, there is a gap related to the potential and actual contributions of nursing in the Health Care Home program. Consequently, the results will provide insight into the needs of parents who are caregivers. Results will also allow for speculation on the potential role of nursing within the Health Care Home.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titlePARENT EXPECTATIONS AND RECOMMENDATIONS FOR HEALTH CARE HOMEen_GB
dc.identifier.urihttp://hdl.handle.net/10755/157398-
dc.description.abstract<table><tr><td colspan="2" class="item-title">PARENT EXPECTATIONS AND RECOMMENDATIONS FOR HEALTH CARE HOME</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2010</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Wright, Mary M., PhD, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">North Dakota State University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">PO Box 6050, 136 Sudro Hall, Fargo, ND, 58108, USA</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">mary.wright@ndsu.edu</td></tr><tr><td colspan="2" class="item-abstract">PURPOSES/AIMS: The purpose of this study is to identify parental learning needs, expectations and recommendations regarding the primary care and coordination of care and services for their child with health care needs that receives care under the planned program entitled Health Care Home. This program has also been called 'Medical Home' in much of the literature or health care industry publications. A secondary purpose of the study is to identify RESULTS: which may be encountered or incorporated into nursing care of the chronically ill child and their family. <br/>RATIONALE/CONCEPTUAL BASIS/BACKGROUND: Wagner's (1998) Chronic Care Model (CCM) is the framework for this study. More specifically, Wagner indicates the need for an &quot;Informed, Activated Patient&quot; to interact with a &quot;Prepared Proactive Practice Team&quot; (p.3) in order to achieve clinical and functional outcomes. The focus of this study is on the parents of children with chronic health care needs who enter and need to navigate the Health Care Home. There is a gap in knowledge about the parents understanding and involvement in this approach to caring for children. <br/>METHODS: A phenomenological approach is used in this study to elicit descriptive information from parents about their knowledge of the health care home as well as seeking their self assessment in the role of informed, activated parents. Parent expectations and recommendations are being solicited from parents of 10 families who currently have school age or adolescent children with special health care needs. The focus of data collection is related to the health care team, the services used, and their interactions with the parents. Data is collected via the interview process with parents electing to participate individually or in groups. Interview questions are categorized using the principles identified by the American Academy of Pediatrics (AAP, 2009) which include, a) family centered partnership, b) community based approach, c) transition to adult health related services, and c) value, as it relates to quality care, family satisfaction and cost efficiency. <br/>RESULTS: The study is currently in process with anticipated completion in March of 2010. <br/>IMPLICATIONS: Literature and informational materials about the Health Care Home focus on medical care with the nursing role not delineated at this time. While the nurse is a team member in the care of children with special needs, there is a gap related to the potential and actual contributions of nursing in the Health Care Home program. Consequently, the results will provide insight into the needs of parents who are caregivers. Results will also allow for speculation on the potential role of nursing within the Health Care Home.<br/></td></tr></table>en_GB
dc.date.available2011-10-26T19:50:13Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T19:50:13Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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