Psychosocial stress and coping strategies of parents with Duchenne muscular dystrophy children during the middle stage

2.50
Hdl Handle:
http://hdl.handle.net/10755/157417
Type:
Presentation
Title:
Psychosocial stress and coping strategies of parents with Duchenne muscular dystrophy children during the middle stage
Abstract:
Psychosocial stress and coping strategies of parents with Duchenne muscular dystrophy children during the middle stage
Conference Sponsor:Western Institute of Nursing
Conference Year:2003
Author:Chen, Jih-Yuan
P.I. Institution Name:University of San Diego, Hahn School of Nursing and Health Science
Contact Address:5998 Alcala Park, San Diego, CA, 92110-2492, USA
Co-Authors:Hen, Shun-Sheng; Jong, Yuh-Jyh; Yang, Yi-Hsin; Lue, Yi-Jing
Purpose: To understand: 1. DMD children’s health- problems related to nursing. 2. The stress and coping strategies of parents with DMD children. 3. The relationship between parent's stress, coping strategies and demographic variables. 4. The related influence factors of parental stress and coping strategies for parents with a DMD child. The hypotheses included: 1. If the DMD child had more health problems or a more severe condition, the parents would have higher levels of stress. 2. Parents of DMD children would have more impact (included: conflict, distress, and stress), and they would use coping strategies more frequently. 3. A relationship exists between parental stress, coping strategies, and demographic variables. 4. The parents in Taiwan had specific strategies for child care, stress, and adaptation. Design: This study is a descriptive design. Sample Population (subjects): Twenty-two families (17 mothers and 14 fathers), with at least one child who had been diagnosed of Duchenne muscular dystrophy. Data Collection Sites (settings): The Muscular Study Center in the Pediatric outpatient clinic at a teaching hospital in southern Taiwan. Name(s) of Concepts or Variables Studied Together (separated by commas): Stress, coping. Instruments/Measurements: The questionnaires included: health of the DMD child; the Brooke functional scale, the Vignos functional scale, and Barthal Index; the Chronic Impact and Coping Instrument (CICI); and coping strategies measured through a coping scale-evaluation of measures assessing family response to chronic illness. Findings: With regards to stress, the parents had a mean total stress score (needs help) of 79.9%. Almost all the sample needed to get information about the child’s physical development or disease prognosis. The major leading coping strategies were "wish-fulfilling," and "information seeking." The parents without health care support had higher stress. Logistic regression with stepwise selection showed that the variables "home location," and "receiving one week's health care support," were significant predictors for parental stress. Conclusions: All parents were distressed, communicated with others to change information, or less emotional in their expression, and they had more wish-fulfilling fantasies, self-blame and did what the doctor recommended. Chronic condition can create disruptions in the physical, social emotional and spiritual systems of a being. Typical problem behaviors reported by parents include lack of social interaction skills, noncompliance and aggression, self-help deficits and some self-destructive patterns. Clinical Implications: Information about prognosis, health care, and counseling skills can promote the familial coping. Meeting the spiritual needs of the child and family can provide inner strength and create a sense of peace. Consistent care and a trusting relationship also need to be created to address the sensitive area of spirituality and to involve DMD mother in the process of establishing trust and encouraging DMD child's expression of his emotions.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titlePsychosocial stress and coping strategies of parents with Duchenne muscular dystrophy children during the middle stageen_GB
dc.identifier.urihttp://hdl.handle.net/10755/157417-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Psychosocial stress and coping strategies of parents with Duchenne muscular dystrophy children during the middle stage </td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2003</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Chen, Jih-Yuan</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of San Diego, Hahn School of Nursing and Health Science</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">5998 Alcala Park, San Diego, CA, 92110-2492, USA</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">jihc@sandiego.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Hen, Shun-Sheng; Jong, Yuh-Jyh; Yang, Yi-Hsin; Lue, Yi-Jing </td></tr><tr><td colspan="2" class="item-abstract">Purpose: To understand: 1. DMD children&rsquo;s health- problems related to nursing. 2. The stress and coping strategies of parents with DMD children. 3. The relationship between parent's stress, coping strategies and demographic variables. 4. The related influence factors of parental stress and coping strategies for parents with a DMD child. The hypotheses included: 1. If the DMD child had more health problems or a more severe condition, the parents would have higher levels of stress. 2. Parents of DMD children would have more impact (included: conflict, distress, and stress), and they would use coping strategies more frequently. 3. A relationship exists between parental stress, coping strategies, and demographic variables. 4. The parents in Taiwan had specific strategies for child care, stress, and adaptation. Design: This study is a descriptive design. Sample Population (subjects): Twenty-two families (17 mothers and 14 fathers), with at least one child who had been diagnosed of Duchenne muscular dystrophy. Data Collection Sites (settings): The Muscular Study Center in the Pediatric outpatient clinic at a teaching hospital in southern Taiwan. Name(s) of Concepts or Variables Studied Together (separated by commas): Stress, coping. Instruments/Measurements: The questionnaires included: health of the DMD child; the Brooke functional scale, the Vignos functional scale, and Barthal Index; the Chronic Impact and Coping Instrument (CICI); and coping strategies measured through a coping scale-evaluation of measures assessing family response to chronic illness. Findings: With regards to stress, the parents had a mean total stress score (needs help) of 79.9%. Almost all the sample needed to get information about the child&rsquo;s physical development or disease prognosis. The major leading coping strategies were &quot;wish-fulfilling,&quot; and &quot;information seeking.&quot; The parents without health care support had higher stress. Logistic regression with stepwise selection showed that the variables &quot;home location,&quot; and &quot;receiving one week's health care support,&quot; were significant predictors for parental stress. Conclusions: All parents were distressed, communicated with others to change information, or less emotional in their expression, and they had more wish-fulfilling fantasies, self-blame and did what the doctor recommended. Chronic condition can create disruptions in the physical, social emotional and spiritual systems of a being. Typical problem behaviors reported by parents include lack of social interaction skills, noncompliance and aggression, self-help deficits and some self-destructive patterns. Clinical Implications: Information about prognosis, health care, and counseling skills can promote the familial coping. Meeting the spiritual needs of the child and family can provide inner strength and create a sense of peace. Consistent care and a trusting relationship also need to be created to address the sensitive area of spirituality and to involve DMD mother in the process of establishing trust and encouraging DMD child's expression of his emotions. </td></tr></table>en_GB
dc.date.available2011-10-26T19:51:13Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T19:51:13Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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