The Life Experiences of Women With Cerebral Palsy Who Have Experienced Mistreatment

2.50
Hdl Handle:
http://hdl.handle.net/10755/157734
Type:
Presentation
Title:
The Life Experiences of Women With Cerebral Palsy Who Have Experienced Mistreatment
Abstract:
The Life Experiences of Women With Cerebral Palsy Who Have Experienced Mistreatment
Conference Sponsor:Western Institute of Nursing
Conference Year:2009
Author:Freeborn, Donna S., PhD, FNP, CNM
P.I. Institution Name:Brigham Young University, College of Nursing
Contact Address:457 SWKT, Provo, UT, 84602, USA
Contact Telephone:801-422-3507
Purpose: To describe the life experiences of women with CP who have experienced mistreatment and to describe how these women understand the meaning of their disability and their mistreatment experiences relative to gender, culture, social class, and power. Rationale: Abuse and mistreatment of women with disabilities is a complex problem that affects their health and well-being. Previous studies have focused on heterogeneous groups of women with disabilities, with only small numbers of women with cerebral palsy (CP) included. It has been suggested by Hassouneh-Phillips and McNeff (2004) that specific disabilities may play different roles in relation to abuse. Exploring mistreatment of women with cerebral palsy is the first step in determining the relationship between mistreatment and a specific disability. Method: The feminist biographical method was used to promote an in-depth exploration of women's storied lives, uncover the meaning of women's lives from their own personal perspective, and provide understanding of women whose stories seldom have been told. A criterion sample of eight participants took part in two in-depth, audio-recorded interviews. Data analysis involved: 1) transcribing interviews verbatim, 2) ongoing analysis throughout and after the interviewing process, 3) use of the hermeneutical procedure of comparing the part to the whole and the whole to the part, 4) identification of themes within each narrative and across all of the narratives, and 5) identification of exemplars of themes and categories. Results: Two major categories emerged from the participants' narratives: 1) mistreatment, and 2) living with cerebral palsy. Subthemes of mistreatment include: 1) the meaning of mistreatment, and 2) outcomes of mistreatment in their lives. In the second category participants described living with CP at four different stages of development: 1) childhood through adolescence, 2) higher education years, 3) young adulthood, and 4) later adulthood. Implications: Addressing the issue of mistreatment is essential in providing appropriate health care for girls and women with CP. The first step in preparing this population for the challenges of living with their disability is to understand the significance of mistreatment and the meaning of CP in their lives.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleThe Life Experiences of Women With Cerebral Palsy Who Have Experienced Mistreatmenten_GB
dc.identifier.urihttp://hdl.handle.net/10755/157734-
dc.description.abstract<table><tr><td colspan="2" class="item-title">The Life Experiences of Women With Cerebral Palsy Who Have Experienced Mistreatment</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2009</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Freeborn, Donna S., PhD, FNP, CNM</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Brigham Young University, College of Nursing</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">457 SWKT, Provo, UT, 84602, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">801-422-3507</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">donnafreeborn@byu.edu</td></tr><tr><td colspan="2" class="item-abstract">Purpose: To describe the life experiences of women with CP who have experienced mistreatment and to describe how these women understand the meaning of their disability and their mistreatment experiences relative to gender, culture, social class, and power. Rationale: Abuse and mistreatment of women with disabilities is a complex problem that affects their health and well-being. Previous studies have focused on heterogeneous groups of women with disabilities, with only small numbers of women with cerebral palsy (CP) included. It has been suggested by Hassouneh-Phillips and McNeff (2004) that specific disabilities may play different roles in relation to abuse. Exploring mistreatment of women with cerebral palsy is the first step in determining the relationship between mistreatment and a specific disability. Method: The feminist biographical method was used to promote an in-depth exploration of women's storied lives, uncover the meaning of women's lives from their own personal perspective, and provide understanding of women whose stories seldom have been told. A criterion sample of eight participants took part in two in-depth, audio-recorded interviews. Data analysis involved: 1) transcribing interviews verbatim, 2) ongoing analysis throughout and after the interviewing process, 3) use of the hermeneutical procedure of comparing the part to the whole and the whole to the part, 4) identification of themes within each narrative and across all of the narratives, and 5) identification of exemplars of themes and categories. Results: Two major categories emerged from the participants' narratives: 1) mistreatment, and 2) living with cerebral palsy. Subthemes of mistreatment include: 1) the meaning of mistreatment, and 2) outcomes of mistreatment in their lives. In the second category participants described living with CP at four different stages of development: 1) childhood through adolescence, 2) higher education years, 3) young adulthood, and 4) later adulthood. Implications: Addressing the issue of mistreatment is essential in providing appropriate health care for girls and women with CP. The first step in preparing this population for the challenges of living with their disability is to understand the significance of mistreatment and the meaning of CP in their lives.</td></tr></table>en_GB
dc.date.available2011-10-26T20:09:12Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T20:09:12Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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