2.50
Hdl Handle:
http://hdl.handle.net/10755/158075
Type:
Presentation
Title:
A Psychosocial Intervention for School-age Children with Cystic Fibrosis
Abstract:
A Psychosocial Intervention for School-age Children with Cystic Fibrosis
Conference Sponsor:Western Institute of Nursing
Conference Year:2004
Author:Christian, , JP
P.I. Institution Name:University of Utah College of Nursing
Contact Address:10 South 2000 East, Salt Lake City, UT, 84112-5880, USA
Co-Authors:Christian, BJ ; D’Auria, JP ; & Belyea, MJ
AB: Purpose: With improved survival and the transformation in the course of Cystic Fibrosis (CF), the challenge has been to develop interventions to help children balance the physiologic and functional health demands of CF with psychosocial and developmental needs. Middle childhood provides an opportune moment for intervention with these children before functional and physiologic changes and the downward trajectory of CF intensify in adolescence. The purpose of this study was to test the effectiveness of an intervention to teach children (8-12 years) with CF how to manage the psychosocial problems accompanying their chronic illness. Methods: A two-group experimental, repeated measures design was used to compare children with CF who receive the intervention with those who receive usual care from four CF Centers in the southeastern U.S. Children were measured across four points in time: baseline (T1), 3-months (T2), 6-months (T3), and 9-months (T4) post-intervention. The intervention consisted of five educational modules delivered during an individual home visit as well as in a group session to improve problem-solving and social skills related to management of CF. The sample was comprised of 116 children (102 Caucasian, 8 Native American, 3 African-American, 2 Hispanic, 1 Asian) with 59 boys and 57 girls (mean age 9.27 years, range 8-12 years), who were randomly assigned to intervention and control groups. Psychosocial health status was measured using the Perceived Illness Experience Scale, Self-Perception Profile for Children, Social Support Scale for Children, and Loneliness in Children scale. Functional health status was measured with the Functional Disability Inventory. Findings: Repeated measures MANOVA was used to compare the intervention and control groups at baseline (T1), and at 3-months (T2), 6-months (T3), and 9-months (T4) post intervention. Significant differences between children in the intervention and control groups were found for perceived impact of illness (F=14.10, df 3,112, p<.0001); significant intervention effects for perceived impact of illness (intervention X time) (F=3.05, df 3,112, p=.03), as well as significant changes over time between T1 and T4 (F=6.45, df 1,114, p=.01) and between T3 and T4 (F=4.85, df 1,114, p=.02). Significant differences between groups were also found for loneliness (F=7.77, df 3,112, p<.0001), significant intervention effects for loneliness (intervention X time) (F=3.45, df 3,112, p=.01), as well as significant intervention effects over time between T1 and T4 (F=6.69, df 1,114, p=.01) and between T3 and T4 (F=5.21, df 1,114, p=.02). Conclusions: School age children with CF who received the intervention evidenced improved perceptions of their ability to manage the psychosocial impact of their chronic illness over time. The impact of chronic illness on quality of life in children with CF highlights the critical linkages among chronic illness, psychosocial health and development in the social context of children’s lives. (Supported by the National Institute for Nursing Research, NIH, Grant# R01 NR04576 and the Center for Research on Chronic Illness, NINR, NIH #P30 NR03962)
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleA Psychosocial Intervention for School-age Children with Cystic Fibrosisen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158075-
dc.description.abstract<table><tr><td colspan="2" class="item-title">A Psychosocial Intervention for School-age Children with Cystic Fibrosis</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Christian, , JP</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Utah College of Nursing</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">10 South 2000 East, Salt Lake City, UT, 84112-5880, USA</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Christian, BJ&nbsp;; D&rsquo;Auria, JP&nbsp;; &amp; Belyea, MJ</td></tr><tr><td colspan="2" class="item-abstract">AB: Purpose: With improved survival and the transformation in the course of Cystic Fibrosis (CF), the challenge has been to develop interventions to help children balance the physiologic and functional health demands of CF with psychosocial and developmental needs. Middle childhood provides an opportune moment for intervention with these children before functional and physiologic changes and the downward trajectory of CF intensify in adolescence. The purpose of this study was to test the effectiveness of an intervention to teach children (8-12 years) with CF how to manage the psychosocial problems accompanying their chronic illness. Methods: A two-group experimental, repeated measures design was used to compare children with CF who receive the intervention with those who receive usual care from four CF Centers in the southeastern U.S. Children were measured across four points in time: baseline (T1), 3-months (T2), 6-months (T3), and 9-months (T4) post-intervention. The intervention consisted of five educational modules delivered during an individual home visit as well as in a group session to improve problem-solving and social skills related to management of CF. The sample was comprised of 116 children (102 Caucasian, 8 Native American, 3 African-American, 2 Hispanic, 1 Asian) with 59 boys and 57 girls (mean age 9.27 years, range 8-12 years), who were randomly assigned to intervention and control groups. Psychosocial health status was measured using the Perceived Illness Experience Scale, Self-Perception Profile for Children, Social Support Scale for Children, and Loneliness in Children scale. Functional health status was measured with the Functional Disability Inventory. Findings: Repeated measures MANOVA was used to compare the intervention and control groups at baseline (T1), and at 3-months (T2), 6-months (T3), and 9-months (T4) post intervention. Significant differences between children in the intervention and control groups were found for perceived impact of illness (F=14.10, df 3,112, p&lt;.0001); significant intervention effects for perceived impact of illness (intervention X time) (F=3.05, df 3,112, p=.03), as well as significant changes over time between T1 and T4 (F=6.45, df 1,114, p=.01) and between T3 and T4 (F=4.85, df 1,114, p=.02). Significant differences between groups were also found for loneliness (F=7.77, df 3,112, p&lt;.0001), significant intervention effects for loneliness (intervention X time) (F=3.45, df 3,112, p=.01), as well as significant intervention effects over time between T1 and T4 (F=6.69, df 1,114, p=.01) and between T3 and T4 (F=5.21, df 1,114, p=.02). Conclusions: School age children with CF who received the intervention evidenced improved perceptions of their ability to manage the psychosocial impact of their chronic illness over time. The impact of chronic illness on quality of life in children with CF highlights the critical linkages among chronic illness, psychosocial health and development in the social context of children&rsquo;s lives. (Supported by the National Institute for Nursing Research, NIH, Grant# R01 NR04576 and the Center for Research on Chronic Illness, NINR, NIH #P30 NR03962)</td></tr></table>en_GB
dc.date.available2011-10-26T20:29:03Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T20:29:03Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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