2.50
Hdl Handle:
http://hdl.handle.net/10755/158152
Type:
Presentation
Title:
Loneliness and the Social Consequences of Chronic Illness in Children
Abstract:
Loneliness and the Social Consequences of Chronic Illness in Children
Conference Sponsor:Western Institute of Nursing
Conference Year:2005
Author:Christian, Becky, PhD, RN
P.I. Institution Name:The University of Utah
Title:Associate Professor
Contact Address:3348 Splendor Circle, Salt Lake City, UT, 84124, USA
Contact Telephone:801-581-6708
Purpose: The purpose of this study was to test the effectiveness of an intervention to teach school-age children with Cystic Fibrosis (CF) to manage the physiologic, functional and psychosocial impact of chronic illness. Background: With improved survival and transformation in the course of CF, children must balance the physiologic and functional health demands of CF with psychosocial and developmental needs. As children's social worlds expand during middle childhood, peer relationships and social competence gain in importance. Children with CF who experience loneliness and peer rejection are at-risk for successful psychosocial adjustment and may be less effective in integrating their chronic illness into their lives. Methods: A two-group experimental, repeated measures design was used to compare children with CF who received the intervention with those who received usual care at baseline, 3-, 6-, and 9-months. The sample was comprised of 116 children (8 to12 years) from four CF Centers in the southeastern US who were randomly assigned to intervention and control groups. Participants had mild CF severity (mean FEV1 = 84.31%; FVC1 = 95.73%). Psychosocial adjustment was measured using: Perceived Illness Experience, Loneliness in Children, Self-Perception Profile for Children, and Social Support Scale for Children. Results: Repeated measures MANOVA was used to compare the intervention and control groups at baseline, 3-, 6-, and 9-months post-intervention. Significant differences were found between children in intervention and control groups for loneliness (p < .0001), with children who received the intervention demonstrating decreased loneliness. Significant interaction effects were also demonstrated for loneliness over time (intervention X time) (p = .0190), as well as significant intervention effects over time between baseline (T1) and 9-months (T4) (p =.0110), and between 6-months (T3) and 9-months (T4) (p = .0243). Significant group effects were found between children in the intervention and control groups for global self-worth over time (p = .0162); however, there was no interaction between intervention and time (p = .8667). Children evidenced increased self-worth over time regardless of the intervention from baseline (T1) to 9-months (T4) (p = .0053), and 3-months (T2) to 9-months (T4) (p = .0340). Significant group differences were found over time for scholastic competence (p < .0001), social competence (p = .0031), and behavioral conduct (p = .0094). No significant differences over time were found for athletic competence (p = .4828) and physical appearance (p = .7944). Implications: Although CF severity was mild, school-age children with CF demonstrated significant loneliness marking them as different from peers even though their chronic illness-related differences were minimal. Improvements in global self-worth and self-competence captured developmental change over time. At a time when peer relationships are critical for development, these findings highlight the importance of developmentally appropriate interventions to improve children's ability to manage the social consequences of chronic illness and improve quality of life.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleLoneliness and the Social Consequences of Chronic Illness in Childrenen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158152-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Loneliness and the Social Consequences of Chronic Illness in Children</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2005</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Christian, Becky, PhD, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">The University of Utah</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">3348 Splendor Circle, Salt Lake City, UT, 84124, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">801-581-6708</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">becky.christian@nurs.utah.edu</td></tr><tr><td colspan="2" class="item-abstract">Purpose: The purpose of this study was to test the effectiveness of an intervention to teach school-age children with Cystic Fibrosis (CF) to manage the physiologic, functional and psychosocial impact of chronic illness. Background: With improved survival and transformation in the course of CF, children must balance the physiologic and functional health demands of CF with psychosocial and developmental needs. As children's social worlds expand during middle childhood, peer relationships and social competence gain in importance. Children with CF who experience loneliness and peer rejection are at-risk for successful psychosocial adjustment and may be less effective in integrating their chronic illness into their lives. Methods: A two-group experimental, repeated measures design was used to compare children with CF who received the intervention with those who received usual care at baseline, 3-, 6-, and 9-months. The sample was comprised of 116 children (8 to12 years) from four CF Centers in the southeastern US who were randomly assigned to intervention and control groups. Participants had mild CF severity (mean FEV1 = 84.31%; FVC1 = 95.73%). Psychosocial adjustment was measured using: Perceived Illness Experience, Loneliness in Children, Self-Perception Profile for Children, and Social Support Scale for Children. Results: Repeated measures MANOVA was used to compare the intervention and control groups at baseline, 3-, 6-, and 9-months post-intervention. Significant differences were found between children in intervention and control groups for loneliness (p &lt; .0001), with children who received the intervention demonstrating decreased loneliness. Significant interaction effects were also demonstrated for loneliness over time (intervention X time) (p = .0190), as well as significant intervention effects over time between baseline (T1) and 9-months (T4) (p =.0110), and between 6-months (T3) and 9-months (T4) (p = .0243). Significant group effects were found between children in the intervention and control groups for global self-worth over time (p = .0162); however, there was no interaction between intervention and time (p = .8667). Children evidenced increased self-worth over time regardless of the intervention from baseline (T1) to 9-months (T4) (p = .0053), and 3-months (T2) to 9-months (T4) (p = .0340). Significant group differences were found over time for scholastic competence (p &lt; .0001), social competence (p = .0031), and behavioral conduct (p = .0094). No significant differences over time were found for athletic competence (p = .4828) and physical appearance (p = .7944). Implications: Although CF severity was mild, school-age children with CF demonstrated significant loneliness marking them as different from peers even though their chronic illness-related differences were minimal. Improvements in global self-worth and self-competence captured developmental change over time. At a time when peer relationships are critical for development, these findings highlight the importance of developmentally appropriate interventions to improve children's ability to manage the social consequences of chronic illness and improve quality of life.</td></tr></table>en_GB
dc.date.available2011-10-26T20:33:40Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T20:33:40Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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