2.50
Hdl Handle:
http://hdl.handle.net/10755/158229
Type:
Presentation
Title:
Who are the families? Preliminary findings profiling the families
Abstract:
Who are the families? Preliminary findings profiling the families
Conference Sponsor:Western Institute of Nursing
Conference Year:2001
Author:Schepp, Karen, PhD
P.I. Institution Name:University of Washington
Title:Associate Professor
Contact Address:School of Nursing, Department of Psychosocial & Community Health, Box 357263, Seattle, WA, 98195-7263, USA
Contact Telephone:206.685.3213
Purpose & Aims: The purpose of this paper is to present preliminary findings profiling the families who are the subjects in the Family Centered Study. The purpose of this study is to test the effectiveness of a family centered, community-based, self-management intervention for these adolescents with schizophrenia between the ages of 15-19. The aims are to improve the level of functioning of the adolescents as well as the family. Method: The study is a randomized two-group experimental design with repeated measures. Subjects are in the study for 14 months and provide data at four points in time. Sample: The sample includes the adolescent, at least one adult who is designated as the family respondent and any other family members who are involved in the adolescent's care on a daily base. As many family members as possible are encouraged to participate. Intervention: The treatment is administered in small multiple family groups in 12 sessions over 8 months. Data are collected at 4 points in time: at baseline, after 6 intensive weekly sessions, after 6 monthly reinforcement sessions, and 6 months post-intervention. Preliminary Findings: Profiling the Families: Data from the first three cohorts show the sample consists of 16 families with 64 individuals from those families being involved in the study. Of those 64 individuals, 16 are adolescents with the illness, 14 are siblings, and 34 are adult family members. Of the 34 adults, 20 are female and 14 are male. Of the 16 families, 12 have the mother or another family female designated as the spokesperson for the family while 4 had the father as the spokesperson. The adult family members include 20 biological parents, 3 adoptive parents, 2 stepparents, 3 grandparents, and 6 other relatives such as aunts and uncles. Eleven of the 34 adults are of ethnic minority background with 8 not being fluent in English. Twenty-six of the 34 adults are married while 8 are single parents. Fifteen of the 16 adolescents are male with only 1 female. The average age of the adolescents is 17 years (SD=1.09). The adolescents received outpatient treatment for their mental illness at the average age of 14.8 years (SD=3.8), were hospitalized for their illness for the first time at the average age of 16.4 years (SD=1.98), and were hospitalized for an average of 1.5 times (SD=1.2). The adolescents vary widely in their ability to function and in the disability they experience as a result of their illness. The siblings are 9 females and 5 males with an average age of 15.9 years (SD=5.3). Implications: The family profile portrays diverse families with a diverse group of individuals within the families. Diversity is noted in age, family role and ethnic background. The involvement of the many family members in the study indicates their concern for their ill family member and their interest in learning more about the illness as well as how they can help their ill member. The diversity in the adolescents is noted in their functional ability while less diversity is noted in their gender and age. The challenge in this trial is to maintain treatment integrity while honoring the diversity of the subjects.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleWho are the families? Preliminary findings profiling the familiesen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158229-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Who are the families? Preliminary findings profiling the families</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2001</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Schepp, Karen, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Washington</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, Department of Psychosocial &amp; Community Health, Box 357263, Seattle, WA, 98195-7263, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">206.685.3213</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">kschepp@u.washington.edu</td></tr><tr><td colspan="2" class="item-abstract">Purpose &amp; Aims: The purpose of this paper is to present preliminary findings profiling the families who are the subjects in the Family Centered Study. The purpose of this study is to test the effectiveness of a family centered, community-based, self-management intervention for these adolescents with schizophrenia between the ages of 15-19. The aims are to improve the level of functioning of the adolescents as well as the family. Method: The study is a randomized two-group experimental design with repeated measures. Subjects are in the study for 14 months and provide data at four points in time. Sample: The sample includes the adolescent, at least one adult who is designated as the family respondent and any other family members who are involved in the adolescent's care on a daily base. As many family members as possible are encouraged to participate. Intervention: The treatment is administered in small multiple family groups in 12 sessions over 8 months. Data are collected at 4 points in time: at baseline, after 6 intensive weekly sessions, after 6 monthly reinforcement sessions, and 6 months post-intervention. Preliminary Findings: Profiling the Families: Data from the first three cohorts show the sample consists of 16 families with 64 individuals from those families being involved in the study. Of those 64 individuals, 16 are adolescents with the illness, 14 are siblings, and 34 are adult family members. Of the 34 adults, 20 are female and 14 are male. Of the 16 families, 12 have the mother or another family female designated as the spokesperson for the family while 4 had the father as the spokesperson. The adult family members include 20 biological parents, 3 adoptive parents, 2 stepparents, 3 grandparents, and 6 other relatives such as aunts and uncles. Eleven of the 34 adults are of ethnic minority background with 8 not being fluent in English. Twenty-six of the 34 adults are married while 8 are single parents. Fifteen of the 16 adolescents are male with only 1 female. The average age of the adolescents is 17 years (SD=1.09). The adolescents received outpatient treatment for their mental illness at the average age of 14.8 years (SD=3.8), were hospitalized for their illness for the first time at the average age of 16.4 years (SD=1.98), and were hospitalized for an average of 1.5 times (SD=1.2). The adolescents vary widely in their ability to function and in the disability they experience as a result of their illness. The siblings are 9 females and 5 males with an average age of 15.9 years (SD=5.3). Implications: The family profile portrays diverse families with a diverse group of individuals within the families. Diversity is noted in age, family role and ethnic background. The involvement of the many family members in the study indicates their concern for their ill family member and their interest in learning more about the illness as well as how they can help their ill member. The diversity in the adolescents is noted in their functional ability while less diversity is noted in their gender and age. The challenge in this trial is to maintain treatment integrity while honoring the diversity of the subjects.</td></tr></table>en_GB
dc.date.available2011-10-26T20:38:19Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T20:38:19Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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