2.50
Hdl Handle:
http://hdl.handle.net/10755/158266
Type:
Presentation
Title:
Raising An Older Child With Special Needs: The Experience Of Parents
Abstract:
Raising An Older Child With Special Needs: The Experience Of Parents
Conference Sponsor:Western Institute of Nursing
Conference Year:2002
Author:Mandleco, Barbara, PhD
P.I. Institution Name:Brigham Young University
Title:Associate Dean and Associate Professor
Contact Address:College of Nursing, 444 SWKT, Provo, UT, 84602-5544, USA
Contact Telephone:801.422.7199
The purpose of this qualitative descriptive study was to identify and describe the experiences of ten parents raising an older child with special needs. Families were drawn from a larger study investigating family adaptation to disability. The children in this study (mean age 15.5) were enrolled in either mainstream or special education classes in the intermountain west. Following approval from the appropriate institutional review boards, mothers and fathers were interviewed in their homes, where explanation of the study was given and informed consent obtained. Parents were asked to talk about issues related to their child=s disability that tended to cause difficulty in their family, and personal traits or characteristics of themselves or their family that helped in their situation. Appropriate follow-up and probing questions were used as needed. Interviews were audio-taped and transcribed verbatim, and all identifying information removed. Transcripts were submitted to content analysis, using inductive and emergent processes. Credibility, auditability, fittingness, and trustworthiness were established by having individuals experienced in qualitative methods and research involving families raising children with disabilities review transcripts and field notes. Themes emerging from the data included (a) positive and negative experiences parents have that provide new opportunities, challenges, and adaptations, (b) their perceptions of family coping, and (c) assistance needed in raising their child with a disability. Additional themes included personal traits, responses and perceptions of their child with disabilities; family responses (including siblings and extended family members) and services provided in the community. Results validate the significance of gathering data directly from parents raising an older child with special needs. This information also contributes to our existing knowledge base, allows nurses to develop interventions specifically tailored to meet the needs of families raising an older child with special needs, and helps enhance family competence in coping with the stresses and challenges of raising an older child with special needs.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleRaising An Older Child With Special Needs: The Experience Of Parentsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158266-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Raising An Older Child With Special Needs: The Experience Of Parents</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2002</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Mandleco, Barbara, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Brigham Young University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Dean and Associate Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">College of Nursing, 444 SWKT, Provo, UT, 84602-5544, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">801.422.7199</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">barbara_mandleco@byu.edu</td></tr><tr><td colspan="2" class="item-abstract">The purpose of this qualitative descriptive study was to identify and describe the experiences of ten parents raising an older child with special needs. Families were drawn from a larger study investigating family adaptation to disability. The children in this study (mean age 15.5) were enrolled in either mainstream or special education classes in the intermountain west. Following approval from the appropriate institutional review boards, mothers and fathers were interviewed in their homes, where explanation of the study was given and informed consent obtained. Parents were asked to talk about issues related to their child=s disability that tended to cause difficulty in their family, and personal traits or characteristics of themselves or their family that helped in their situation. Appropriate follow-up and probing questions were used as needed. Interviews were audio-taped and transcribed verbatim, and all identifying information removed. Transcripts were submitted to content analysis, using inductive and emergent processes. Credibility, auditability, fittingness, and trustworthiness were established by having individuals experienced in qualitative methods and research involving families raising children with disabilities review transcripts and field notes. Themes emerging from the data included (a) positive and negative experiences parents have that provide new opportunities, challenges, and adaptations, (b) their perceptions of family coping, and (c) assistance needed in raising their child with a disability. Additional themes included personal traits, responses and perceptions of their child with disabilities; family responses (including siblings and extended family members) and services provided in the community. Results validate the significance of gathering data directly from parents raising an older child with special needs. This information also contributes to our existing knowledge base, allows nurses to develop interventions specifically tailored to meet the needs of families raising an older child with special needs, and helps enhance family competence in coping with the stresses and challenges of raising an older child with special needs.</td></tr></table>en_GB
dc.date.available2011-10-26T20:40:31Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T20:40:31Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.