2.50
Hdl Handle:
http://hdl.handle.net/10755/158285
Type:
Presentation
Title:
Stress and coping responses: Siblings of children with autism or Down syndrome
Abstract:
Stress and coping responses: Siblings of children with autism or Down syndrome
Conference Sponsor:Western Institute of Nursing
Conference Year:2003
Author:Mandleco, Barbara, PhD
P.I. Institution Name:Brigham Young University
Title:Associate Dean and Associate Professor
Contact Address:College of Nursing, 444 SWKT, Provo, UT, 84602-5544, USA
Contact Telephone:801.422.7199
Co-Authors:Dyches, T.; Olsen, S.; Forest, L.; Burgon, H.; Pope, N.; Wright, S.
A major responsibility nurses have when working with families raising children with special needs is to promote positive coping outcomes. Though recent research has focused on children’s coping responses from their own perspective, little is known about the nature of stress appraisal or coping responses of children with siblings who have autism or Down syndrome. Therefore, the purpose of this qualitative, descriptive design was to identify and describe stressors and coping responses as actually perceived and reported by 32 children living with a brother or sister with autism (n = 13) or Down syndrome (n = 19). Families were drawn from a larger study investigating family adaptation to disability. The children in this study had a mean age of 10 years, 4 months. Following approval from the appropriate institutional review boards, informed consent was obtained from parents and assent was obtained from siblings of children with autism or Down syndrome. Siblings were then asked to complete daily semi-structured diaries for a two week period. Each diary page consisted of six open-ended statements seeking short written responses relating to children’s daily experiences with their brother or sister with autism or Down syndrome. Data from four of the open ended statements were used in this study. Perceived stressors were identified using two statements: (a) The hardest thing about living with my brother/sister (child with special needs) today was; and (b) Other things that upset me today were. Coping strategies were identified by children completing the statement: This is what I did about it (in relation to the previously listed stressors). Diaries were transcribed verbatim and entries were analyzed through a process of content analysis, with appropriate application of methods to assure rigor and trustworthiness of findings. Themes emerging from the data included challenges that come from living with a child with autism or Down syndrome related to the child’s behavior (e.g. aggression, disruption, uncooperativeness) or caring for the child, as well as the stressors they encounter in their everyday activities that are independent of the child with autism or Down syndrome (e.g. homework, demands from parents). Ways the siblings cope with both types of stressors were also described and included retaliating verbally or physically, seeking help from others, ignoring the situation, or doing nothing. Both sets of siblings identified similar stressors and coping mechanisms. Results validate the importance of gathering data in an open-ended manner directly from the siblings, and confirmed that nursing interventions should be based on assessment of individual differences in stress appraisal and coping efforts. The project also offers questions for future study and implications for theory and instrument development.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Western Institute of Nursing

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleStress and coping responses: Siblings of children with autism or Down syndromeen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158285-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Stress and coping responses: Siblings of children with autism or Down syndrome </td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Western Institute of Nursing</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2003</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Mandleco, Barbara, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Brigham Young University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Dean and Associate Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">College of Nursing, 444 SWKT, Provo, UT, 84602-5544, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">801.422.7199</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">barbara_mandleco@byu.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Dyches, T.; Olsen, S.; Forest, L.; Burgon, H.; Pope, N.; Wright, S. </td></tr><tr><td colspan="2" class="item-abstract">A major responsibility nurses have when working with families raising children with special needs is to promote positive coping outcomes. Though recent research has focused on children&rsquo;s coping responses from their own perspective, little is known about the nature of stress appraisal or coping responses of children with siblings who have autism or Down syndrome. Therefore, the purpose of this qualitative, descriptive design was to identify and describe stressors and coping responses as actually perceived and reported by 32 children living with a brother or sister with autism (n = 13) or Down syndrome (n = 19). Families were drawn from a larger study investigating family adaptation to disability. The children in this study had a mean age of 10 years, 4 months. Following approval from the appropriate institutional review boards, informed consent was obtained from parents and assent was obtained from siblings of children with autism or Down syndrome. Siblings were then asked to complete daily semi-structured diaries for a two week period. Each diary page consisted of six open-ended statements seeking short written responses relating to children&rsquo;s daily experiences with their brother or sister with autism or Down syndrome. Data from four of the open ended statements were used in this study. Perceived stressors were identified using two statements: (a) The hardest thing about living with my brother/sister (child with special needs) today was; and (b) Other things that upset me today were. Coping strategies were identified by children completing the statement: This is what I did about it (in relation to the previously listed stressors). Diaries were transcribed verbatim and entries were analyzed through a process of content analysis, with appropriate application of methods to assure rigor and trustworthiness of findings. Themes emerging from the data included challenges that come from living with a child with autism or Down syndrome related to the child&rsquo;s behavior (e.g. aggression, disruption, uncooperativeness) or caring for the child, as well as the stressors they encounter in their everyday activities that are independent of the child with autism or Down syndrome (e.g. homework, demands from parents). Ways the siblings cope with both types of stressors were also described and included retaliating verbally or physically, seeking help from others, ignoring the situation, or doing nothing. Both sets of siblings identified similar stressors and coping mechanisms. Results validate the importance of gathering data in an open-ended manner directly from the siblings, and confirmed that nursing interventions should be based on assessment of individual differences in stress appraisal and coping efforts. The project also offers questions for future study and implications for theory and instrument development. </td></tr></table>en_GB
dc.date.available2011-10-26T20:41:39Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T20:41:39Z-
dc.description.sponsorshipWestern Institute of Nursingen_GB
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