Quality of Life and Family Impact in Subjects with Single Ventricle Congenital Heart Disease

2.50
Hdl Handle:
http://hdl.handle.net/10755/158491
Type:
Presentation
Title:
Quality of Life and Family Impact in Subjects with Single Ventricle Congenital Heart Disease
Abstract:
Quality of Life and Family Impact in Subjects with Single Ventricle Congenital Heart Disease
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2005
Author:Mussatto, Kathleen
P.I. Institution Name:Children's Hospital of Wisconsin
Title:Research Coordinator
Contact Address:Cardiovascular surgery, 9000 W. Wisconsin Ave., Milwaukee, WI, 53201-1997, USA
Contact Telephone:(414) 266-2073
Co-Authors:Evelyn Kuhn, National Outcomes Center; Kathleen Sawin, Professor; Ramesh Sachdeva, National Outcomes Center; and James Tweddell, Cardiothoracic Surgery
Purpose: Despite markedly improved survival for children with single ventricle congenital heart disease (SVCHD), little is known about psychosocial outcomes such as quality of life (QOL), impact on the family (IOF) and functional status (FS). The purpose of this research was to describe reports of QOL, IOF and FS in children with SVCHD and to test the hypothesis that these outcomes are correlated as postulated in health-related quality of life theory. Methods: The Pediatric Quality of Life Inventory, Impact on the Family Scale, and Health Utilities Index were completed by parents of 55 children with SVCHD. Demographic information was abstracted from the record. Results: Mean age 6.plus or minus 4.6 yrs, range 2-18yrs, 64% male, 91% completed Fontan palliation. Average time from last operation to survey response was 3.2 plus or minus 2yrs. QOL was reported as lower than a healthy sample for overall, physical, social and school functioning (p<0.05). Compared to a reference sample of children with other chronic conditions, SVCHD QOL was better in overall, physical, and emotional function (p<0.05) and similar for social and school function. Age was negatively correlated with QOL (r=-0.24-0.29, p<0.01). FS demonstrated positive correlations with QOL (r=0.33-0.39, p<0.05). QOL was not correlated with gender, socioeconomic status, number of operations or time since surgery. IOF was less than a normative sample of mothers of children with chronic illness (p<0.05). Negative impact overall and in the areas of financial, social, personal strain and siblings was correlated with lower QOL (r=-0.26-0.58, p<0.05). Conclusions: Children and families surviving surgical palliation of SVCHD are at risk for psychosocial impact in several areas including QOL, IOF and FS. This impact appears to be similar to children living with other chronic conditions. Significant correlations between IOF and QOL highlight the need for ongoing social support for children and their families. (Poster Presentation)
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleQuality of Life and Family Impact in Subjects with Single Ventricle Congenital Heart Diseaseen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158491-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Quality of Life and Family Impact in Subjects with Single Ventricle Congenital Heart Disease</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2005</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Mussatto, Kathleen</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Children's Hospital of Wisconsin</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Research Coordinator</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">Cardiovascular surgery, 9000 W. Wisconsin Ave., Milwaukee, WI, 53201-1997, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">(414) 266-2073</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">kmussatto@chw.org</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Evelyn Kuhn, National Outcomes Center; Kathleen Sawin, Professor; Ramesh Sachdeva, National Outcomes Center; and James Tweddell, Cardiothoracic Surgery</td></tr><tr><td colspan="2" class="item-abstract">Purpose: Despite markedly improved survival for children with single ventricle congenital heart disease (SVCHD), little is known about psychosocial outcomes such as quality of life (QOL), impact on the family (IOF) and functional status (FS). The purpose of this research was to describe reports of QOL, IOF and FS in children with SVCHD and to test the hypothesis that these outcomes are correlated as postulated in health-related quality of life theory. Methods: The Pediatric Quality of Life Inventory, Impact on the Family Scale, and Health Utilities Index were completed by parents of 55 children with SVCHD. Demographic information was abstracted from the record. Results: Mean age 6.plus or minus 4.6 yrs, range 2-18yrs, 64% male, 91% completed Fontan palliation. Average time from last operation to survey response was 3.2 plus or minus 2yrs. QOL was reported as lower than a healthy sample for overall, physical, social and school functioning (p&lt;0.05). Compared to a reference sample of children with other chronic conditions, SVCHD QOL was better in overall, physical, and emotional function (p&lt;0.05) and similar for social and school function. Age was negatively correlated with QOL (r=-0.24-0.29, p&lt;0.01). FS demonstrated positive correlations with QOL (r=0.33-0.39, p&lt;0.05). QOL was not correlated with gender, socioeconomic status, number of operations or time since surgery. IOF was less than a normative sample of mothers of children with chronic illness (p&lt;0.05). Negative impact overall and in the areas of financial, social, personal strain and siblings was correlated with lower QOL (r=-0.26-0.58, p&lt;0.05). Conclusions: Children and families surviving surgical palliation of SVCHD are at risk for psychosocial impact in several areas including QOL, IOF and FS. This impact appears to be similar to children living with other chronic conditions. Significant correlations between IOF and QOL highlight the need for ongoing social support for children and their families. (Poster Presentation)</td></tr></table>en_GB
dc.date.available2011-10-26T21:06:31Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:06:31Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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