2.50
Hdl Handle:
http://hdl.handle.net/10755/158852
Type:
Presentation
Title:
Out of the Chrysalis of Silence and Into a World of Possibilities
Abstract:
Out of the Chrysalis of Silence and Into a World of Possibilities
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2010
Author:Crisp, Cheryl
P.I. Institution Name:Indiana University School of Nursing
Contact Address:1111 Middle Drive, Indianapolis, IN, 46176, USA
Contact Telephone:317-439-3792
Co-Authors:C. Crisp, , Indiana University School of Nursing, Indianapolis, IN;
There are children who are silenced by their disability. The potential for communication can be unlocked with the use of assistive technology. The metamorphosis of the child as he/she learns to use a speech generating device is best explained by the families of those children who experience this metamorphosis. An increasing number of children who are unable to speak or who have significant handicaps are learning to use voice output devices to share their thoughts and ideas with their family and peers. The process to achieve success in using such a device is not always easy for the child or members of his/her family. It is apparent that further study is needed to assist these children and families to learn skills that will help them make this journey with fewer detours and roadblocks. This study provides insight into what it is like for a child and family to embark on the journey to becoming communicative using a voice output device. Semi-structured interviews were conducted with 11 primary caregivers of children who are currently using a SGD device to communicate. Interpretive phenomenology is the guiding principle that was used to illuminate the meaning and significance of family experiences of having a child who uses a SGD. Each interview was transcribed verbatim and analyzed by the researcher and members of a hermeneutic circle composed of faculty members and doctoral students. All interpretations were discussed with the appropriate time set aside for questions and discussion. As new themes are uncovered and previously identified themes become clearer, the interpretation became more complete. Emerging themes were recorded with the supporting quotations included. A variety of common themes regarding the child's use of the SGD emerged with the most frequent theme being the metamorphosis of the child as he/she learns to use the SGD and communicate effectively in the world around them. By describing the metamorphosis that children go through while learning to use a SGD, medical professionals, educators, therapists, legislators, and other families are provided with evidence to support the use of SGD to insure that no child is silenced because a device is not available.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleOut of the Chrysalis of Silence and Into a World of Possibilitiesen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158852-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Out of the Chrysalis of Silence and Into a World of Possibilities</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2010</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Crisp, Cheryl</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Indiana University School of Nursing</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">1111 Middle Drive, Indianapolis, IN, 46176, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">317-439-3792</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">ccrisp@iupui.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">C. Crisp, , Indiana University School of Nursing, Indianapolis, IN;</td></tr><tr><td colspan="2" class="item-abstract">There are children who are silenced by their disability. The potential for communication can be unlocked with the use of assistive technology. The metamorphosis of the child as he/she learns to use a speech generating device is best explained by the families of those children who experience this metamorphosis. An increasing number of children who are unable to speak or who have significant handicaps are learning to use voice output devices to share their thoughts and ideas with their family and peers. The process to achieve success in using such a device is not always easy for the child or members of his/her family. It is apparent that further study is needed to assist these children and families to learn skills that will help them make this journey with fewer detours and roadblocks. This study provides insight into what it is like for a child and family to embark on the journey to becoming communicative using a voice output device. Semi-structured interviews were conducted with 11 primary caregivers of children who are currently using a SGD device to communicate. Interpretive phenomenology is the guiding principle that was used to illuminate the meaning and significance of family experiences of having a child who uses a SGD. Each interview was transcribed verbatim and analyzed by the researcher and members of a hermeneutic circle composed of faculty members and doctoral students. All interpretations were discussed with the appropriate time set aside for questions and discussion. As new themes are uncovered and previously identified themes become clearer, the interpretation became more complete. Emerging themes were recorded with the supporting quotations included. A variety of common themes regarding the child's use of the SGD emerged with the most frequent theme being the metamorphosis of the child as he/she learns to use the SGD and communicate effectively in the world around them. By describing the metamorphosis that children go through while learning to use a SGD, medical professionals, educators, therapists, legislators, and other families are provided with evidence to support the use of SGD to insure that no child is silenced because a device is not available.</td></tr></table>en_GB
dc.date.available2011-10-26T21:27:35Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:27:35Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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