2.50
Hdl Handle:
http://hdl.handle.net/10755/158935
Type:
Presentation
Title:
Treatment Decision Making Preferences of Parents of Children with Hemophilia
Abstract:
Treatment Decision Making Preferences of Parents of Children with Hemophilia
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2009
Author:Barry, Detrice, PhD, RN
P.I. Institution Name:Wright State University
Title:Nursing
Contact Address:3640 Colonel Glenn Highway, Dayton, OH, 45435, USA
Contact Telephone:513-256-3074
Co-Authors:D.G. Barry, College of Nursing, Wright State University, Dayton, OH;
Parental treatment decision-making is critical to the management of a child with hemophilia. However, investigation of parents' preference for involvement in their child's treatment decision-making is sparse. Little is known about the potential differences that may occur in parents preferred and actual roles during the clinical encounter. Based on this gap in the literature review, this study sought to determine parents' preferred and actual role preferences (active, passive, or collaborative) in treatment decision-making regarding: (1) brand of factor; (2) age to begin infusion therapy; (3) frequency of infusion (prophylactic or episodic); and (4) method of infusion (peripheral or central venous access device [CVAD]). The study was initiated following approval from the Institutional Review Board at the researcher's institution. Attendees (141) at the National Hemophilia Foundation's 59th Annual Meeting voluntarily consented to complete a 4-item control preferences scale that determined preferred and actual roles. Respondents had children with hemophilia A or B that were less than 16 years and had previously received healthcare at a federally funded Hemophilia Treatment Center in the U.S. Participants were primarily Caucasian females (71%) with four or more years of college education, and had an annual household income between $40,001-$80,000. The respondent's children were primarily male (94%) with severe hemophilia A. There were several statistically significant relationships: role preferences and age and method of infusion (peripheral or CVAD) (p=0.0058); education and preferred role (p=0.0219); severity of illness and active parental involvement (preferred and actual role) in choosing brand of factor ( p=0.0266/p=0.0105) and prophylactic or episodic treatment (0.0192/0.0083) (p=0.05). The results of this study supported the importance of examining parent's decision-making preferences for treatment of a child with hemophilia. Further studies however, are needed to determine the community's (hemophilia treatment center healthcare providers, home care agencies, advocacy organizations, and pharmaceutical manufacturers) decision-making styles and preference for involvement in treatment decision-making of a child with hemophilia.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleTreatment Decision Making Preferences of Parents of Children with Hemophiliaen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158935-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Treatment Decision Making Preferences of Parents of Children with Hemophilia</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2009</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Barry, Detrice, PhD, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Wright State University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Nursing</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">3640 Colonel Glenn Highway, Dayton, OH, 45435, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">513-256-3074</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">dgbarry@embarqmail.com</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">D.G. Barry, College of Nursing, Wright State University, Dayton, OH;</td></tr><tr><td colspan="2" class="item-abstract">Parental treatment decision-making is critical to the management of a child with hemophilia. However, investigation of parents' preference for involvement in their child's treatment decision-making is sparse. Little is known about the potential differences that may occur in parents preferred and actual roles during the clinical encounter. Based on this gap in the literature review, this study sought to determine parents' preferred and actual role preferences (active, passive, or collaborative) in treatment decision-making regarding: (1) brand of factor; (2) age to begin infusion therapy; (3) frequency of infusion (prophylactic or episodic); and (4) method of infusion (peripheral or central venous access device [CVAD]). The study was initiated following approval from the Institutional Review Board at the researcher's institution. Attendees (141) at the National Hemophilia Foundation's 59th Annual Meeting voluntarily consented to complete a 4-item control preferences scale that determined preferred and actual roles. Respondents had children with hemophilia A or B that were less than 16 years and had previously received healthcare at a federally funded Hemophilia Treatment Center in the U.S. Participants were primarily Caucasian females (71%) with four or more years of college education, and had an annual household income between $40,001-$80,000. The respondent's children were primarily male (94%) with severe hemophilia A. There were several statistically significant relationships: role preferences and age and method of infusion (peripheral or CVAD) (p=0.0058); education and preferred role (p=0.0219); severity of illness and active parental involvement (preferred and actual role) in choosing brand of factor ( p=0.0266/p=0.0105) and prophylactic or episodic treatment (0.0192/0.0083) (p=0.05). The results of this study supported the importance of examining parent's decision-making preferences for treatment of a child with hemophilia. Further studies however, are needed to determine the community's (hemophilia treatment center healthcare providers, home care agencies, advocacy organizations, and pharmaceutical manufacturers) decision-making styles and preference for involvement in treatment decision-making of a child with hemophilia.</td></tr></table>en_GB
dc.date.available2011-10-26T21:32:28Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:32:28Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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