2.50
Hdl Handle:
http://hdl.handle.net/10755/158957
Type:
Presentation
Title:
Materials for Family Preparation for Death in Home Hospice
Abstract:
Materials for Family Preparation for Death in Home Hospice
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2007
Author:Kehl, Karen, MS
P.I. Institution Name:UW-Madison
Contact Address:School of Nursing - CSC K6/389, 600 Highland Ave., Madison, WI, 53792-2455, USA
Purpose: 1) Determine the written materials used by hospices to prepare families for death in the home hospice setting, 2) Describe the content of such materials and 3) Compare the quality of commercial materials and self published materials based on criteria developed from empiric evidence of families' needs, changes likely to occur while the person is dying and Johnson's self-regulation theory. Methods: A random sample of 400 hospices in the United States who are members of the National Hospice and Palliative Care Organization or state hospice organizations received mailed questionnaires. Hospice directors were asked to complete a survey and to send appropriate written materials. Analysis is in two parts. The first outlines the materials used. The second examines the content and quality of the materials. Results: This study is in progress. Results were returned from 179 hospices (47.7%) Of these, 165 hospices had materials to prepare families for death. Most use multiple materials. Gone From My Sight (Karnes, 1986) is used by 68% of the hospices; Final Gifts (Callanan & Kelley, 1992) by 24.8%, Caregiving (Houts & Bucher, 2003) by 7.3% and 96 hospices (58.2%) use other publications. Of the appropriate other publications (n=125), 11.2% are commercial and 88.8% are self published or available for free. Many of the materials are given in a standard packet (41.0%) and most are handed to the family (76.1%) usually by a nurse (59.7%) or social worker (43.3%). A multivariate, word content analysis revealed 13 clusters. Similarity to key published documents was very high. Further analysis is ongoing, and will be completed before March 2007. Conclusions: Most hospices have written materials to assist in preparing families for home hospice death. Many hospices use commercially available materials and others develop their own materials or use materials that are freely available. Since many similar documents exist, hospices should review existing documents, especially those offered for no cost before purchasing or developing additional materials. Further research on how nurses review signs and symptoms of approaching death and how they prepare families for death is needed, especially since most materials are handed to patients and families.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleMaterials for Family Preparation for Death in Home Hospiceen_GB
dc.identifier.urihttp://hdl.handle.net/10755/158957-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Materials for Family Preparation for Death in Home Hospice</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2007</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Kehl, Karen, MS</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">UW-Madison</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing - CSC K6/389, 600 Highland Ave., Madison, WI, 53792-2455, USA</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">kkehl@wisc.edu</td></tr><tr><td colspan="2" class="item-abstract">Purpose: 1) Determine the written materials used by hospices to prepare families for death in the home hospice setting, 2) Describe the content of such materials and 3) Compare the quality of commercial materials and self published materials based on criteria developed from empiric evidence of families' needs, changes likely to occur while the person is dying and Johnson's self-regulation theory. Methods: A random sample of 400 hospices in the United States who are members of the National Hospice and Palliative Care Organization or state hospice organizations received mailed questionnaires. Hospice directors were asked to complete a survey and to send appropriate written materials. Analysis is in two parts. The first outlines the materials used. The second examines the content and quality of the materials. Results: This study is in progress. Results were returned from 179 hospices (47.7%) Of these, 165 hospices had materials to prepare families for death. Most use multiple materials. Gone From My Sight (Karnes, 1986) is used by 68% of the hospices; Final Gifts (Callanan &amp; Kelley, 1992) by 24.8%, Caregiving (Houts &amp; Bucher, 2003) by 7.3% and 96 hospices (58.2%) use other publications. Of the appropriate other publications (n=125), 11.2% are commercial and 88.8% are self published or available for free. Many of the materials are given in a standard packet (41.0%) and most are handed to the family (76.1%) usually by a nurse (59.7%) or social worker (43.3%). A multivariate, word content analysis revealed 13 clusters. Similarity to key published documents was very high. Further analysis is ongoing, and will be completed before March 2007. Conclusions: Most hospices have written materials to assist in preparing families for home hospice death. Many hospices use commercially available materials and others develop their own materials or use materials that are freely available. Since many similar documents exist, hospices should review existing documents, especially those offered for no cost before purchasing or developing additional materials. Further research on how nurses review signs and symptoms of approaching death and how they prepare families for death is needed, especially since most materials are handed to patients and families.</td></tr></table>en_GB
dc.date.available2011-10-26T21:33:47Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:33:47Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.