Development and Psychometric Analysis of HD Family Health Concerns and Management Survey

2.50
Hdl Handle:
http://hdl.handle.net/10755/159001
Type:
Presentation
Title:
Development and Psychometric Analysis of HD Family Health Concerns and Management Survey
Abstract:
Development and Psychometric Analysis of HD Family Health Concerns and Management Survey
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2007
Author:Williams, Janet, PhD
P.I. Institution Name:The University of Iowa
Contact Address:, 338 Nursing Building, Iowa City, IA, 52242, USA
Co-Authors:V. Sousa, D. Reed, T. Tripp-Reimer, and M. McGonigal-Kenney, The University of Iowa, Iowa City, IA and J. Barnette, Biostatistics, University of Alabama, Birmingham, AL
Purpose: The purpose of this study was to test the validity and reliability of a survey instrument designed to identify health management concerns of and management strategies used by family members of persons with Huntington Disease. Background: HD is a chronic neurodegenerative condition typically beginning in middle adult years and extending over 10-40 years Family members are usually responsible for managing, or contributing to management of, health concerns throughout the illness. Family who are biologically related to the person with HD are also at risk to develop the disease. No existing measures encompass the scope of challenges faced by these families. Survey items in four scales were based on focus group data from 91 adult family members of persons with HD. Focus groups were held in 6 cities in the US and in Canada. Methods: Survey psychometric analysis: Content validity of the items was established by review by 9 experts, and through cognitive interviewing with 13 family members. An internal consistency estimate of reliability was determined with Cronbach's alpha coefficients for each scale. Results: Averaged over all items, there was 95% agreement among the experts regarding the clarity of items and 94% agreement on the relevance of items. Cognitive interviews yielded 47% of items with questions from participants. The research team reviewed all items to determine content changes. Survey items were reworded, added, or deleted. The survey had a Flesch-Kincaid reading grade level of 6.2. Internal consistency using Cronbach's alpha was based on 173 completed surveys. Values for coefficient alpha of the scales ranged from 0.81-0.94. Conclusions: Findings provide evidence of content validity and internal consistency for a questionnaire that measures health problems, and strategies to manage these problems, by family members of persons with HD. Use of this measure will allow identification of factors that facilitate or limit family members' and persons' with HD abilities to assist in managing health care. [Funded by NIH/NINR R01 NR07970]
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleDevelopment and Psychometric Analysis of HD Family Health Concerns and Management Surveyen_GB
dc.identifier.urihttp://hdl.handle.net/10755/159001-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Development and Psychometric Analysis of HD Family Health Concerns and Management Survey</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2007</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Williams, Janet, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">The University of Iowa</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">, 338 Nursing Building, Iowa City, IA, 52242, USA</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">janet-williams@uiowa.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">V. Sousa, D. Reed, T. Tripp-Reimer, and M. McGonigal-Kenney, The University of Iowa, Iowa City, IA and J. Barnette, Biostatistics, University of Alabama, Birmingham, AL</td></tr><tr><td colspan="2" class="item-abstract">Purpose: The purpose of this study was to test the validity and reliability of a survey instrument designed to identify health management concerns of and management strategies used by family members of persons with Huntington Disease. Background: HD is a chronic neurodegenerative condition typically beginning in middle adult years and extending over 10-40 years Family members are usually responsible for managing, or contributing to management of, health concerns throughout the illness. Family who are biologically related to the person with HD are also at risk to develop the disease. No existing measures encompass the scope of challenges faced by these families. Survey items in four scales were based on focus group data from 91 adult family members of persons with HD. Focus groups were held in 6 cities in the US and in Canada. Methods: Survey psychometric analysis: Content validity of the items was established by review by 9 experts, and through cognitive interviewing with 13 family members. An internal consistency estimate of reliability was determined with Cronbach's alpha coefficients for each scale. Results: Averaged over all items, there was 95% agreement among the experts regarding the clarity of items and 94% agreement on the relevance of items. Cognitive interviews yielded 47% of items with questions from participants. The research team reviewed all items to determine content changes. Survey items were reworded, added, or deleted. The survey had a Flesch-Kincaid reading grade level of 6.2. Internal consistency using Cronbach's alpha was based on 173 completed surveys. Values for coefficient alpha of the scales ranged from 0.81-0.94. Conclusions: Findings provide evidence of content validity and internal consistency for a questionnaire that measures health problems, and strategies to manage these problems, by family members of persons with HD. Use of this measure will allow identification of factors that facilitate or limit family members' and persons' with HD abilities to assist in managing health care. [Funded by NIH/NINR R01 NR07970]</td></tr></table>en_GB
dc.date.available2011-10-26T21:36:22Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:36:22Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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