2.50
Hdl Handle:
http://hdl.handle.net/10755/159055
Type:
Presentation
Title:
Recruiters' Perceptions of Ethical Issues in Genetic Research
Abstract:
Recruiters' Perceptions of Ethical Issues in Genetic Research
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2006
Author:Quinn Griffin, Mary, PhD, RN
P.I. Institution Name:Case Western Reserve University
Title:Assistant Professor
Contact Address:School of Nursing, 10900 Euclid Avenue, Cleveland, OH, 44106-4904, USA
Contact Telephone:216-368-1920
Co-Authors:June Cassano, MBA, RN; Nancy Gerson, BS; Roselle Ponsaran, BS; Katrina A. Bramstedt, PhD; and Eric Kodish, MD, Professor
Background: Ethical issues research is a key area that evolved out of the Human Genome project. Literature reviewed identified general discussions with regard to the ethical issues of human subject recruitment; however, no literature specifically identified the unique ethical issues that are involved with the recruitment for genetic tissue and sample repositories. This is a completely new area warranting further investigation and understanding. The specific aims are 1: To identify the recruiters' perceptions of ethical issues in the recruitment process for genetic research repositories, and 2: To generate hypotheses for future research. Methodology: This is a qualitative descriptive study using a phenomenological approach to explore the ethical issues and concerns of the individuals recruiting for genetic tissue and sample repositories. Sample: The study population will consist of recruiters for six genetic repositories at two sites. A convenience sample of 10-14 individuals will be recruited. Two focus groups with 5 to 7 participants in each group will be convened. Data Collection: Demographic data collected will include age, gender, race, ethnicity, highest level of education, length of time recruiting for genetic and non-genetic studies, and educational/training in genetics and ethics. Focus group interviews will be conducted to collect data regarding the perceived ethical issues in genetic research. The focus group sessions will be audio-taped and will last approximately 2 hours. A series of semi-structured discussion questions have been constructed for the focus group interview. Data Analysis: Descriptive statistics will be used to describe the characteristics of the sample. The audio-taped data will be transcribed and themes identified. These themes will then be clustered and named. The results from this pilot study will provide researchers with new information about the ethical concerns recruiters have when recruiting individuals into genetic studies. In addition, it will be used to generate hypotheses for future research studies. [Poster Presentation]
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleRecruiters' Perceptions of Ethical Issues in Genetic Researchen_GB
dc.identifier.urihttp://hdl.handle.net/10755/159055-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Recruiters' Perceptions of Ethical Issues in Genetic Research</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2006</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Quinn Griffin, Mary, PhD, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Case Western Reserve University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, 10900 Euclid Avenue, Cleveland, OH, 44106-4904, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">216-368-1920</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">mary.quinngriffin@case.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">June Cassano, MBA, RN; Nancy Gerson, BS; Roselle Ponsaran, BS; Katrina A. Bramstedt, PhD; and Eric Kodish, MD, Professor</td></tr><tr><td colspan="2" class="item-abstract">Background: Ethical issues research is a key area that evolved out of the Human Genome project. Literature reviewed identified general discussions with regard to the ethical issues of human subject recruitment; however, no literature specifically identified the unique ethical issues that are involved with the recruitment for genetic tissue and sample repositories. This is a completely new area warranting further investigation and understanding. The specific aims are 1: To identify the recruiters' perceptions of ethical issues in the recruitment process for genetic research repositories, and 2: To generate hypotheses for future research. Methodology: This is a qualitative descriptive study using a phenomenological approach to explore the ethical issues and concerns of the individuals recruiting for genetic tissue and sample repositories. Sample: The study population will consist of recruiters for six genetic repositories at two sites. A convenience sample of 10-14 individuals will be recruited. Two focus groups with 5 to 7 participants in each group will be convened. Data Collection: Demographic data collected will include age, gender, race, ethnicity, highest level of education, length of time recruiting for genetic and non-genetic studies, and educational/training in genetics and ethics. Focus group interviews will be conducted to collect data regarding the perceived ethical issues in genetic research. The focus group sessions will be audio-taped and will last approximately 2 hours. A series of semi-structured discussion questions have been constructed for the focus group interview. Data Analysis: Descriptive statistics will be used to describe the characteristics of the sample. The audio-taped data will be transcribed and themes identified. These themes will then be clustered and named. The results from this pilot study will provide researchers with new information about the ethical concerns recruiters have when recruiting individuals into genetic studies. In addition, it will be used to generate hypotheses for future research studies. [Poster Presentation]</td></tr></table>en_GB
dc.date.available2011-10-26T21:39:34Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:39:34Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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