Theory of Retrogenesis: Perceptions of Caregivers of Persons with Alzheimer's Disease

2.50
Hdl Handle:
http://hdl.handle.net/10755/159072
Type:
Presentation
Title:
Theory of Retrogenesis: Perceptions of Caregivers of Persons with Alzheimer's Disease
Abstract:
Theory of Retrogenesis: Perceptions of Caregivers of Persons with Alzheimer's Disease
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2006
Author:Sparks, Martha, PhD, GCNS, MEd, BSN
P.I. Institution Name:University of Southern Indiana
Title:Associate Professor
Contact Address:College of Nursing and Health Professions, 8600 University Blvd., Evansville, IN, 47712, USA
Contact Telephone:812-461-5216
About four million persons in the United States and 18 million in the world have Alzheimer's disease (AD). Uncertainty and unpredictability of AD contribute to increased stress among caregivers of persons with the illness. Nurses are well positioned to provide independent nursing interventions to prevent this stress. The Theory of Retrogenesis (TR) published in 2002 focused on developmental ages and related pathology, but did not address caregiver perceptions. The purpose of this study was to address the question: Do formal and informal caregivers identify evidence of TR in assessment of persons with AD and/or use TR in planning interventions for care? Naturalistic inquiry provided the methodology for the study. Seven informal and two formal caregivers were interviewed. One opening statement was made: Tell me about symptoms and behavior or ability changes that you have seen in your care recipient's life since you realized that s/he had Alzheimer's disease. Methodological processes included transcription and coding, member checks, debriefings by peers, triangulation, prolonged engagement, and simultaneous data collection/analysis. Seven stages of regression were identified. These stages paralleled developmental stages in reverse and were identified from data related to assessment and management of AD. Findings strongly support TR and extend it to day-to-day living with AD. Application of TR lends predictability to AD and makes available a wide array of known interventions. There is enough evidence to develop educational programs for caregivers, focusing on predicted manifestations and effective strategies to enjoyably live with each stage. Studies to determine the effectiveness of stage-related interventions in various settings are an immediate priority.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleTheory of Retrogenesis: Perceptions of Caregivers of Persons with Alzheimer's Diseaseen_GB
dc.identifier.urihttp://hdl.handle.net/10755/159072-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Theory of Retrogenesis: Perceptions of Caregivers of Persons with Alzheimer's Disease</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2006</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Sparks, Martha, PhD, GCNS, MEd, BSN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Southern Indiana</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">College of Nursing and Health Professions, 8600 University Blvd., Evansville, IN, 47712, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">812-461-5216</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">msparks@usi.edu</td></tr><tr><td colspan="2" class="item-abstract">About four million persons in the United States and 18 million in the world have Alzheimer's disease (AD). Uncertainty and unpredictability of AD contribute to increased stress among caregivers of persons with the illness. Nurses are well positioned to provide independent nursing interventions to prevent this stress. The Theory of Retrogenesis (TR) published in 2002 focused on developmental ages and related pathology, but did not address caregiver perceptions. The purpose of this study was to address the question: Do formal and informal caregivers identify evidence of TR in assessment of persons with AD and/or use TR in planning interventions for care? Naturalistic inquiry provided the methodology for the study. Seven informal and two formal caregivers were interviewed. One opening statement was made: Tell me about symptoms and behavior or ability changes that you have seen in your care recipient's life since you realized that s/he had Alzheimer's disease. Methodological processes included transcription and coding, member checks, debriefings by peers, triangulation, prolonged engagement, and simultaneous data collection/analysis. Seven stages of regression were identified. These stages paralleled developmental stages in reverse and were identified from data related to assessment and management of AD. Findings strongly support TR and extend it to day-to-day living with AD. Application of TR lends predictability to AD and makes available a wide array of known interventions. There is enough evidence to develop educational programs for caregivers, focusing on predicted manifestations and effective strategies to enjoyably live with each stage. Studies to determine the effectiveness of stage-related interventions in various settings are an immediate priority.</td></tr></table>en_GB
dc.date.available2011-10-26T21:40:34Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:40:34Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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