Phenomenological Study of Child and Adolescent Touretters Regarding Embarrassment: Who Me? Couldn't Be, But Used to Be!

2.50
Hdl Handle:
http://hdl.handle.net/10755/159266
Type:
Presentation
Title:
Phenomenological Study of Child and Adolescent Touretters Regarding Embarrassment: Who Me? Couldn't Be, But Used to Be!
Abstract:
Phenomenological Study of Child and Adolescent Touretters Regarding Embarrassment: Who Me? Couldn't Be, But Used to Be!
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2004
Author:Rindner, Ellen, RN, ARNP
Contact Address:SON, 14028 West 113th Street, Kansas City, KS, 66215, USA
Children and adolescents diagnosed with Tourette’s Syndrome (TS) can experience uncontrollable motor and vocal tics in public settings. Ticcing in front of their peers, teachers, parents, and strangers can cause them exquisite embarrassment. A qualitative study on the lived experience of embarrassment for children and adolescents diagnosed with Tourette’s Syndrome (AKA Touretters) is one way to address the limited information found in the literature. The aim of this research is to (1) fully describe the experience of embarrassment from the perception of child and adolescent Touretters, and (2) determine which self-identified empowerment strategies help child and adolescent Touretters overcome embarrassment during the course of their illness. Theoretical Framework: A descriptive phenomenological methodology based on Husserlian thought guides the research process. Subjects: The research is still in progress. Purposive sampling (to mimic TS distribution) is being conducted by selecting three males for every female Touretter, between the ages of nine and seventeen. Participants are English-speaking, ethnically diverse, and have been recruited from a Tourette’s center located in a metropolitan area of the Midwest part of the United States. Seventeen participants have been interviewed thus far with one more anticipated. Methods: A semi-structured interview is being performed with children and adolescents after obtaining parental consent. Member checks will be performed with four participants and their parent(s) to enhance credibility. Streubert’s (1991) ten-step phenomenological method is being used for data analysis of the audiotaped and transcribed interviews. Results and Conclusions: Significant statements pertaining to the phenomenon are being ordered into similar theme categories with several theme clusters in the process of emerging. The projected nursing implications for this study are to teach newly diagnosed Touretters about (1) self empowerment strategies to deal with embarrassment, (2) how to tell peers about TS, and (3) how to access support from others on an ongoing basis.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titlePhenomenological Study of Child and Adolescent Touretters Regarding Embarrassment: Who Me? Couldn't Be, But Used to Be!en_GB
dc.identifier.urihttp://hdl.handle.net/10755/159266-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Phenomenological Study of Child and Adolescent Touretters Regarding Embarrassment: Who Me? Couldn't Be, But Used to Be!</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Rindner, Ellen, RN, ARNP</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">SON, 14028 West 113th Street, Kansas City, KS, 66215, USA</td></tr><tr><td colspan="2" class="item-abstract">Children and adolescents diagnosed with Tourette&rsquo;s Syndrome (TS) can experience uncontrollable motor and vocal tics in public settings. Ticcing in front of their peers, teachers, parents, and strangers can cause them exquisite embarrassment. A qualitative study on the lived experience of embarrassment for children and adolescents diagnosed with Tourette&rsquo;s Syndrome (AKA Touretters) is one way to address the limited information found in the literature. The aim of this research is to (1) fully describe the experience of embarrassment from the perception of child and adolescent Touretters, and (2) determine which self-identified empowerment strategies help child and adolescent Touretters overcome embarrassment during the course of their illness. Theoretical Framework: A descriptive phenomenological methodology based on Husserlian thought guides the research process. Subjects: The research is still in progress. Purposive sampling (to mimic TS distribution) is being conducted by selecting three males for every female Touretter, between the ages of nine and seventeen. Participants are English-speaking, ethnically diverse, and have been recruited from a Tourette&rsquo;s center located in a metropolitan area of the Midwest part of the United States. Seventeen participants have been interviewed thus far with one more anticipated. Methods: A semi-structured interview is being performed with children and adolescents after obtaining parental consent. Member checks will be performed with four participants and their parent(s) to enhance credibility. Streubert&rsquo;s (1991) ten-step phenomenological method is being used for data analysis of the audiotaped and transcribed interviews. Results and Conclusions: Significant statements pertaining to the phenomenon are being ordered into similar theme categories with several theme clusters in the process of emerging. The projected nursing implications for this study are to teach newly diagnosed Touretters about (1) self empowerment strategies to deal with embarrassment, (2) how to tell peers about TS, and (3) how to access support from others on an ongoing basis.</td></tr></table>en_GB
dc.date.available2011-10-26T21:51:28Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:51:28Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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