2.50
Hdl Handle:
http://hdl.handle.net/10755/159275
Type:
Presentation
Title:
Behind the curtain: Women with leprosy in Taiwan
Abstract:
Behind the curtain: Women with leprosy in Taiwan
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2004
Author:Shieh, Carol, RNC, DNS
Title:Assistant Professor
Contact Address:SON, 2300 S. Washington St., P.O. Box 9003, Kokomo, IN, 46904-9003 , USA
This study used narrative analysis method to explore experiences and meanings of living with leprosy in Taiwanese women. Theoretical framework: Narrative analysis is a qualitative inquiry method. According to Riessman (1993), narrative analysis provides researchers with a means to investigate how respondents in interviews impose order on the flow of experience to make sense of events and actions in their lives. Life stories told by respondents in interviews are common data for narrative analysis. Subjects: Five women, living in a nursing home for leprosy patients in southern Taiwan, participated in this study. Participants were mature women aged from 57 to 88 years old. Facial disfiguration and deformities in fingers, toes, and legs were observed in these women Method: A focus group was conducted for participants to share stories about their experiences with leprosy. Stories were tape recorded and later transcribed. Structural analysis was first used to examine the narrative data for plot or stages of life process. Holistic content method (Lieblich, et. al., 1998) was then applied to interpret meanings or themes of the stories in each stage of life process. Results: Three stages of life process were identified: before being diagnosed, after being diagnosed, and living with leprosy. Searching for the answer was the theme in the first stage of before being diagnosed. In the stage of after being diagnosed, these women referred leprosy to "the disease", hid the fact, and felt shameful. Three themes were surfaced in the stage of living with leprosy, including pain, disability, and deformity, spiritual and family support, and be as functional as possible. Conclusions: Participants in this study experienced a strong sense of shame and wanted to hide themselves behind the world they were living in. Interventions for increasing self esteem are indicated.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleBehind the curtain: Women with leprosy in Taiwanen_GB
dc.identifier.urihttp://hdl.handle.net/10755/159275-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Behind the curtain: Women with leprosy in Taiwan </td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Shieh, Carol, RNC, DNS</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">SON, 2300 S. Washington St., P.O. Box 9003, Kokomo, IN, 46904-9003 , USA</td></tr><tr><td colspan="2" class="item-abstract">This study used narrative analysis method to explore experiences and meanings of living with leprosy in Taiwanese women. Theoretical framework: Narrative analysis is a qualitative inquiry method. According to Riessman (1993), narrative analysis provides researchers with a means to investigate how respondents in interviews impose order on the flow of experience to make sense of events and actions in their lives. Life stories told by respondents in interviews are common data for narrative analysis. Subjects: Five women, living in a nursing home for leprosy patients in southern Taiwan, participated in this study. Participants were mature women aged from 57 to 88 years old. Facial disfiguration and deformities in fingers, toes, and legs were observed in these women Method: A focus group was conducted for participants to share stories about their experiences with leprosy. Stories were tape recorded and later transcribed. Structural analysis was first used to examine the narrative data for plot or stages of life process. Holistic content method (Lieblich, et. al., 1998) was then applied to interpret meanings or themes of the stories in each stage of life process. Results: Three stages of life process were identified: before being diagnosed, after being diagnosed, and living with leprosy. Searching for the answer was the theme in the first stage of before being diagnosed. In the stage of after being diagnosed, these women referred leprosy to &quot;the disease&quot;, hid the fact, and felt shameful. Three themes were surfaced in the stage of living with leprosy, including pain, disability, and deformity, spiritual and family support, and be as functional as possible. Conclusions: Participants in this study experienced a strong sense of shame and wanted to hide themselves behind the world they were living in. Interventions for increasing self esteem are indicated. </td></tr></table>en_GB
dc.date.available2011-10-26T21:51:58Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:51:58Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.