2.50
Hdl Handle:
http://hdl.handle.net/10755/159389
Type:
Presentation
Title:
Health and Quality of Life in Adults with Neural Tube Defects
Abstract:
Health and Quality of Life in Adults with Neural Tube Defects
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2003
Author:Nehring, Wendy
Contact Address:SON, Alumni Hall, Rm. 2330, Box 1066, Edwardsville, IL, 62026-1066, USA
The purpose of this descriptive, qualitative research study was to examine the current developmental and health care issues and future plans and concerns of Caucasian, Mexican-American, and African-American adults with neural tube defects (NTDs), aged 20 to 75 years, and their mothers if still participating in the care of their adult child. Naturalistic inquiry was used as the qualitative approach for obtaining data. Sixteen Caucasian, 15 Mexican-American, and 11 African-American adults were interviewed using a semi-structured interview guide. The Quality of Life Index and the Beck Depression Inventory were also completed by all of the participants. In addition, the Mexican-American participants completed the Bidimensional Acculturation Scale for Hispanics and the African-American participants completed the African-American Acculturation Scale. Preliminary analysis of the health concerns experienced in adulthood are similar to those in the literature, including bowel and bladder, skin and pressure ulcers, and joint pain and osteoporosis. Additional concerns not addressed in the literature included chest pain, ambulatory issues, and depression. Preliminary themes include primary health care concerns, intimacy and pregnancy concerns, ambulatory concerns, skin and urinary concerns, and socioemotional concerns. As a whole, the participants were not clinically depressed and experienced a fairly good quality of life. This was also true for the mothers who participated. As expected, the minority adults with NTDs were more acculturated than their mothers. It is important to document the trajectory of childhood chronic conditions, such as NTDs. Much is known about such conditions in childhood, but the health and developmental concerns across the lifespan are essential for appropriate anticipatory guidance and health care for these individuals. Lifelong teaching about the condition and its symptomatology is needed. Additional quantitative surveys regarding this information are needed to generalize these findings. AN: MN030185
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleHealth and Quality of Life in Adults with Neural Tube Defectsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/159389-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Health and Quality of Life in Adults with Neural Tube Defects </td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2003</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Nehring, Wendy</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">SON, Alumni Hall, Rm. 2330, Box 1066, Edwardsville, IL, 62026-1066, USA</td></tr><tr><td colspan="2" class="item-abstract">The purpose of this descriptive, qualitative research study was to examine the current developmental and health care issues and future plans and concerns of Caucasian, Mexican-American, and African-American adults with neural tube defects (NTDs), aged 20 to 75 years, and their mothers if still participating in the care of their adult child. Naturalistic inquiry was used as the qualitative approach for obtaining data. Sixteen Caucasian, 15 Mexican-American, and 11 African-American adults were interviewed using a semi-structured interview guide. The Quality of Life Index and the Beck Depression Inventory were also completed by all of the participants. In addition, the Mexican-American participants completed the Bidimensional Acculturation Scale for Hispanics and the African-American participants completed the African-American Acculturation Scale. Preliminary analysis of the health concerns experienced in adulthood are similar to those in the literature, including bowel and bladder, skin and pressure ulcers, and joint pain and osteoporosis. Additional concerns not addressed in the literature included chest pain, ambulatory issues, and depression. Preliminary themes include primary health care concerns, intimacy and pregnancy concerns, ambulatory concerns, skin and urinary concerns, and socioemotional concerns. As a whole, the participants were not clinically depressed and experienced a fairly good quality of life. This was also true for the mothers who participated. As expected, the minority adults with NTDs were more acculturated than their mothers. It is important to document the trajectory of childhood chronic conditions, such as NTDs. Much is known about such conditions in childhood, but the health and developmental concerns across the lifespan are essential for appropriate anticipatory guidance and health care for these individuals. Lifelong teaching about the condition and its symptomatology is needed. Additional quantitative surveys regarding this information are needed to generalize these findings. AN: MN030185 </td></tr></table>en_GB
dc.date.available2011-10-26T21:58:11Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T21:58:11Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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