2.50
Hdl Handle:
http://hdl.handle.net/10755/159476
Type:
Presentation
Title:
Protection of Human Subjects in Internet Research on Cancer Pain
Abstract:
Protection of Human Subjects in Internet Research on Cancer Pain
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2002
Author:Im, Eun-Ok
P.I. Institution Name:University of Wisconsin-Milwaukee
Title:Assistant Professor
Contact Address:School of Nursing, Cunningham Hall, Room 767B, PO Box 413, Milwaukee, WI, 53201, USA
Contact Telephone:414.229.5784
Despite the increasing use of the Internet among nurses, the use of the Internet in nursing research has been rarely discussed and critiqued in terms of issues in protection of human subjects. In this paper, issues in protection of human subjects in Internet research are explored and analyzed using an Internet study as an example to propose directions for human protection in Internet research. First, an example of Internet research is presented. The purpose of the study was to explore gender and ethnic diversities in cancer pain experiences and to provide future directions for nursing with cancer patients from diverse cultural groups. In the study, 19 international oncology experts from 10 countries were recruited through the Internet. International e-mail group discussions using a website and e-mails were conducted with the participants using 11 discussion topics. The collected data were saved in ASCII format, and divided into quantitative data and qualitative data. The quantitative data were analyzed using descriptive statistics and the qualitative data were analyzed using content analysis involving line by line coding, categorization, and formulation of relationships between categories. Throughout the research process from the preliminary works (e.g., preparation of the project website) to the data analysis, several issues related to protection of human subjects were raised. The issues include those related to: (a) anonymity or confidentiality; (b) security; (c) self-determination; (d) full disclosure; (e) fair treatment; and (f) informed consent. Based on the discussions on the issues, (a) development of guidelines for protection of human subjects in Internet studies, (b) investigator triangulation, and (c) information sharing are proposed as future directions for protection of human subjects in Internet research.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleProtection of Human Subjects in Internet Research on Cancer Painen_GB
dc.identifier.urihttp://hdl.handle.net/10755/159476-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Protection of Human Subjects in Internet Research on Cancer Pain</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2002</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Im, Eun-Ok</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Wisconsin-Milwaukee</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, Cunningham Hall, Room 767B, PO Box 413, Milwaukee, WI, 53201, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">414.229.5784</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">eoim@uwm.edu</td></tr><tr><td colspan="2" class="item-abstract">Despite the increasing use of the Internet among nurses, the use of the Internet in nursing research has been rarely discussed and critiqued in terms of issues in protection of human subjects. In this paper, issues in protection of human subjects in Internet research are explored and analyzed using an Internet study as an example to propose directions for human protection in Internet research. First, an example of Internet research is presented. The purpose of the study was to explore gender and ethnic diversities in cancer pain experiences and to provide future directions for nursing with cancer patients from diverse cultural groups. In the study, 19 international oncology experts from 10 countries were recruited through the Internet. International e-mail group discussions using a website and e-mails were conducted with the participants using 11 discussion topics. The collected data were saved in ASCII format, and divided into quantitative data and qualitative data. The quantitative data were analyzed using descriptive statistics and the qualitative data were analyzed using content analysis involving line by line coding, categorization, and formulation of relationships between categories. Throughout the research process from the preliminary works (e.g., preparation of the project website) to the data analysis, several issues related to protection of human subjects were raised. The issues include those related to: (a) anonymity or confidentiality; (b) security; (c) self-determination; (d) full disclosure; (e) fair treatment; and (f) informed consent. Based on the discussions on the issues, (a) development of guidelines for protection of human subjects in Internet studies, (b) investigator triangulation, and (c) information sharing are proposed as future directions for protection of human subjects in Internet research.</td></tr></table>en_GB
dc.date.available2011-10-26T22:03:07Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T22:03:07Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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