Longing: The Lived Experience of Spirituality in Adolescents With Duchenne Muscular Dystrophy

2.50
Hdl Handle:
http://hdl.handle.net/10755/159656
Type:
Presentation
Title:
Longing: The Lived Experience of Spirituality in Adolescents With Duchenne Muscular Dystrophy
Abstract:
Longing: The Lived Experience of Spirituality in Adolescents With Duchenne Muscular Dystrophy
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2007
Author:Pehler, Shelley-Rae, PhD
P.I. Institution Name:University of Iowa
Contact Address:Nursing, Eldridge, IA, 52748, USA
Co-Authors:M.J. Craft-Rosenberg, H.K. Butcher, A. McCarthy, and J.K. Williams, College of Nursing, University of Iowa, Iowa City, IA; D.F. Cates, Department of Religion Studies, University of Iowa, Iowa City, IA
Current research has not identified spiritual assessment and intervention strategies that will enhance spiritual well-being to promote healing in adolescents. Healing is important for all ages, yet we do not have empirical knowledge about the experience in adolescents. The purpose of this descriptive phenomenological study was to describe the lived experiences of spirituality in adolescents with a chronic, debilitating and life-threatening illness. The specific aim of this research was to describe the lived experience of spirituality in adolescents with Duchenne Muscular Dystrophy (DMD). Using van Manen's Phenomenological Research Method, 9 teens between the ages of 12 and 17 were interviewed. The findings were grouped according to the major themes found through isolating thematic statements. The universal or essential qualities of the themes were determined through free imaginative variation in order to verify that the themes belonged essentially to the phenomenon of the lived experience of spirituality. The essential and central theme of the lived experience of spirituality shared by the participants was that of longing, the strong desire especially for something unattainable. The participants attempted to mediate their longing through 'Connecting with others,' 'Connecting with self,' and 'Connecting outside of self.' Challenges of working with male teens in sharing their lived experiences, and the definitional and measurement challenges of the phenomena of spirituality will also be discussed. Future research and clinical implications will be presented.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleLonging: The Lived Experience of Spirituality in Adolescents With Duchenne Muscular Dystrophyen_GB
dc.identifier.urihttp://hdl.handle.net/10755/159656-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Longing: The Lived Experience of Spirituality in Adolescents With Duchenne Muscular Dystrophy</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2007</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Pehler, Shelley-Rae, PhD</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Iowa</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">Nursing, Eldridge, IA, 52748, USA</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">asp80@netins.net</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">M.J. Craft-Rosenberg, H.K. Butcher, A. McCarthy, and J.K. Williams, College of Nursing, University of Iowa, Iowa City, IA; D.F. Cates, Department of Religion Studies, University of Iowa, Iowa City, IA</td></tr><tr><td colspan="2" class="item-abstract">Current research has not identified spiritual assessment and intervention strategies that will enhance spiritual well-being to promote healing in adolescents. Healing is important for all ages, yet we do not have empirical knowledge about the experience in adolescents. The purpose of this descriptive phenomenological study was to describe the lived experiences of spirituality in adolescents with a chronic, debilitating and life-threatening illness. The specific aim of this research was to describe the lived experience of spirituality in adolescents with Duchenne Muscular Dystrophy (DMD). Using van Manen's Phenomenological Research Method, 9 teens between the ages of 12 and 17 were interviewed. The findings were grouped according to the major themes found through isolating thematic statements. The universal or essential qualities of the themes were determined through free imaginative variation in order to verify that the themes belonged essentially to the phenomenon of the lived experience of spirituality. The essential and central theme of the lived experience of spirituality shared by the participants was that of longing, the strong desire especially for something unattainable. The participants attempted to mediate their longing through 'Connecting with others,' 'Connecting with self,' and 'Connecting outside of self.' Challenges of working with male teens in sharing their lived experiences, and the definitional and measurement challenges of the phenomena of spirituality will also be discussed. Future research and clinical implications will be presented.</td></tr></table>en_GB
dc.date.available2011-10-26T22:12:53Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T22:12:53Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
All Items in this repository are protected by copyright, with all rights reserved, unless otherwise indicated.