2.50
Hdl Handle:
http://hdl.handle.net/10755/159864
Type:
Presentation
Title:
Support Systems Utilized by the Caregivers of Children with Cystic Fibrosis
Abstract:
Support Systems Utilized by the Caregivers of Children with Cystic Fibrosis
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2006
Author:Werner, Rhonda, MS, BSN, RN
P.I. Institution Name:Children's Hospital of Wisconsin
Title:Clinical Nurse Specialist
Contact Address:Department of Neurology, PO Box 1997 - MS 714A, Milwaukee, WI, 53201-1997, USA
Contact Telephone:414-266-7531
Cystic fibrosis (CF) affects 30,000 children and adults in the United States. Cystic fibrosis often requires multiple daily treatments including respiratory therapies, pancreatic enzymes and routine blood sugar monitoring. As the median survival age for individuals with CF extends, families are involved in daily treatments for their children for a longer period of time. The Resiliency Model of Family Stress, Adjustment, and Adaptation was used as the theoretical framework for this study. The purpose of the study was to evaluate the support systems of the caregivers of children with CF as they deal with the daily demands created by their child's chronic illness. This descriptive study utilized a convenience sample of children (0-18 years) receiving their medical care through a Midwest regional children's hospital. Participants completed a questionnaire that generated information about their support systems and two structured questionnaires, the Social Support Index and the Family Inventory of Resources Management. Respondents (n=44) identified four categories of support: (a) partners, (b) other family, (c) friends, and (d) health care team. The most consistently supportive person identified was their partner (97.7%). The study found that fathers (9.1%) utilized friends for support significantly less than mothers (63.6%). Results demonstrated that as the variety of treatments increased, support from family members or friends decreased and support from the health care team increased. Given this apparent increased need for support as treatment becomes more complex, the nurse needs to be committed to (a) assessing the support network of the caregivers of children with CF, (b) educating the health care team on how to be effective members of that network, (c) evaluating their role as a part of the support network, (d) assisting caregivers in identifying their level of support need and caregiver burden, and (e) participating in the development of creative ways for parent support. [Poster Presentation]
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleSupport Systems Utilized by the Caregivers of Children with Cystic Fibrosisen_GB
dc.identifier.urihttp://hdl.handle.net/10755/159864-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Support Systems Utilized by the Caregivers of Children with Cystic Fibrosis</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2006</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Werner, Rhonda, MS, BSN, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Children's Hospital of Wisconsin</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Clinical Nurse Specialist</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">Department of Neurology, PO Box 1997 - MS 714A, Milwaukee, WI, 53201-1997, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">414-266-7531</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">rwerner@chw.org</td></tr><tr><td colspan="2" class="item-abstract">Cystic fibrosis (CF) affects 30,000 children and adults in the United States. Cystic fibrosis often requires multiple daily treatments including respiratory therapies, pancreatic enzymes and routine blood sugar monitoring. As the median survival age for individuals with CF extends, families are involved in daily treatments for their children for a longer period of time. The Resiliency Model of Family Stress, Adjustment, and Adaptation was used as the theoretical framework for this study. The purpose of the study was to evaluate the support systems of the caregivers of children with CF as they deal with the daily demands created by their child's chronic illness. This descriptive study utilized a convenience sample of children (0-18 years) receiving their medical care through a Midwest regional children's hospital. Participants completed a questionnaire that generated information about their support systems and two structured questionnaires, the Social Support Index and the Family Inventory of Resources Management. Respondents (n=44) identified four categories of support: (a) partners, (b) other family, (c) friends, and (d) health care team. The most consistently supportive person identified was their partner (97.7%). The study found that fathers (9.1%) utilized friends for support significantly less than mothers (63.6%). Results demonstrated that as the variety of treatments increased, support from family members or friends decreased and support from the health care team increased. Given this apparent increased need for support as treatment becomes more complex, the nurse needs to be committed to (a) assessing the support network of the caregivers of children with CF, (b) educating the health care team on how to be effective members of that network, (c) evaluating their role as a part of the support network, (d) assisting caregivers in identifying their level of support need and caregiver burden, and (e) participating in the development of creative ways for parent support. [Poster Presentation]</td></tr></table>en_GB
dc.date.available2011-10-26T22:24:21Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T22:24:21Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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