2.50
Hdl Handle:
http://hdl.handle.net/10755/160099
Type:
Presentation
Title:
Rural Families Caring for Children with Complex Chronic Health Conditions
Abstract:
Rural Families Caring for Children with Complex Chronic Health Conditions
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2006
Author:Rose, Diane, PhD(c), MS, BS
P.I. Institution Name:University of Minnesota
Title:Predoctoral Student
Contact Address:School of Nursing, 2170 Oak Ridge Rd. SW, Bemidji, MN, 56601, USA
Contact Telephone:218-755-3869
Health care providers lack knowledge of the specific challenges, resources, and management strategies of rural families who care for children with complex chronic health conditions. Extensive review of the literature has revealed that rural families are underrepresented in related research. This grounded theory study will address the gap in existing knowledge by adding the voice and perspective of rural families. The specific aims are to (a) identify and describe how rural families manage caregiving for their children who have complex chronic health conditions, and (b) develop a theoretical model of rural family caregiving for children who have complex chronic health conditions. Integration of principles of family-centered care and Bronfenbrenner's ecological model forms the conceptual framework, providing a lens for viewing the family in context and in relation to health care resources, thus sensitizing the researcher to multiple factors that may influence the family's ability to manage the care of their child with a complex chronic health condition. Nine family caregivers (eight mothers, one father) from eight families of eleven children with complex chronic health conditions were interviewed over a four-month period. The families resided in four rural counties. The children, from 23 months through 18 years of age, had a range of conditions and health care needs. Participants were recruited from a thirteen-county rural area. Flyers were distributed to family caregivers by community leaders in health care agencies and parent advocacy groups, inviting them to participate. Participants were interviewed once in their homes (7) or workplace (1). The semi-structured, in-depth interviews were audiotaped and transcribed verbatim. Analysis is currently underway, using qualitative data analysis software (NVivo) and constant comparative analysis strategies. Preliminary results suggest a central category of managing with limited resources. [Poster Presentation]
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleRural Families Caring for Children with Complex Chronic Health Conditionsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/160099-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Rural Families Caring for Children with Complex Chronic Health Conditions</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2006</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Rose, Diane, PhD(c), MS, BS</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Minnesota</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Predoctoral Student</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, 2170 Oak Ridge Rd. SW, Bemidji, MN, 56601, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">218-755-3869</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">drose@bemidjistate.edu</td></tr><tr><td colspan="2" class="item-abstract">Health care providers lack knowledge of the specific challenges, resources, and management strategies of rural families who care for children with complex chronic health conditions. Extensive review of the literature has revealed that rural families are underrepresented in related research. This grounded theory study will address the gap in existing knowledge by adding the voice and perspective of rural families. The specific aims are to (a) identify and describe how rural families manage caregiving for their children who have complex chronic health conditions, and (b) develop a theoretical model of rural family caregiving for children who have complex chronic health conditions. Integration of principles of family-centered care and Bronfenbrenner's ecological model forms the conceptual framework, providing a lens for viewing the family in context and in relation to health care resources, thus sensitizing the researcher to multiple factors that may influence the family's ability to manage the care of their child with a complex chronic health condition. Nine family caregivers (eight mothers, one father) from eight families of eleven children with complex chronic health conditions were interviewed over a four-month period. The families resided in four rural counties. The children, from 23 months through 18 years of age, had a range of conditions and health care needs. Participants were recruited from a thirteen-county rural area. Flyers were distributed to family caregivers by community leaders in health care agencies and parent advocacy groups, inviting them to participate. Participants were interviewed once in their homes (7) or workplace (1). The semi-structured, in-depth interviews were audiotaped and transcribed verbatim. Analysis is currently underway, using qualitative data analysis software (NVivo) and constant comparative analysis strategies. Preliminary results suggest a central category of managing with limited resources. [Poster Presentation]</td></tr></table>en_GB
dc.date.available2011-10-26T22:37:32Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T22:37:32Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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