Exploring the concept of medical home with parents of children with special health care needs

2.50
Hdl Handle:
http://hdl.handle.net/10755/160238
Type:
Presentation
Title:
Exploring the concept of medical home with parents of children with special health care needs
Abstract:
Exploring the concept of medical home with parents of children with special health care needs
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2004
Author:Chaudry, Rosemary, PhD, MHA, RN
Title:Assistant Professor;
Contact Address:1414 Willowood Way, Marion, OH, 43302, USA
Co-Authors:K. Hamtak; C. Kraus, BSN, RN, Nurse Case Manager Supervisor; K. Bachmann; R. Tatum; R. Shrock, MHA, RD; K. Markman; S. Chapman, D. Read
Exploring the concept of medical home with parents of children with special health care needs The concept of medical home has been promoted as the optimal way of providing primary care, supportive services, and specialty care for children with special health care needs (CSHCN). However, little is known about the meaning of medical home for families of CSHCN. The purposes of this qualitative study were to describe the experiences of families caring for their CSHCN at home and to explore the meaning and realities of the concept of medical home for these families. CSHCN were defined as children age birth to 21 who were enrolled concurrently in Ohio’s Medicaid and Title V programs. Nine focus groups were conducted across six locations in Ohio with parents and relatives of 65 CSHCN. The sample was purposefully constructed to reflect regional and age group differences. A multidisciplinary research team of nurses and administrators from both programs analyzed the data using a constant comparative process to identify patterns and themes. The primary themes that emerged were: “Families experience a myriad of evolving roles, responsibilities, and stressors on a day-to-day basis as the live with and care for a CSHCN. For families without a medical home, dealing with professional services and providers is not only a role and responsibility but is also a stressor.” Participants were enthusiastic about the concept of medical home but were not comfortable with the term. Participants identified themselves as the primary advocates for their CSHCN and often reported an increased sense of empowerment as their CSHCN grew and persevered despite the challenges of a non-coordinated health care system. Multiple roles, responsibilities, stressors, and service needs of CSHCN and their families were identified. Findings underscore the importance of collaboration at all levels of service planning and delivery, and have implications for public health nurse case managers, providers, program administrators, and policy-makers at multiple levels.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleExploring the concept of medical home with parents of children with special health care needsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/160238-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Exploring the concept of medical home with parents of children with special health care needs</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Chaudry, Rosemary, PhD, MHA, RN </td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor;</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">1414 Willowood Way, Marion, OH, 43302, USA</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">K. Hamtak; C. Kraus, BSN, RN, Nurse Case Manager Supervisor; K. Bachmann; R. Tatum; R. Shrock, MHA, RD; K. Markman; S. Chapman, D. Read </td></tr><tr><td colspan="2" class="item-abstract">Exploring the concept of medical home with parents of children with special health care needs The concept of medical home has been promoted as the optimal way of providing primary care, supportive services, and specialty care for children with special health care needs (CSHCN). However, little is known about the meaning of medical home for families of CSHCN. The purposes of this qualitative study were to describe the experiences of families caring for their CSHCN at home and to explore the meaning and realities of the concept of medical home for these families. CSHCN were defined as children age birth to 21 who were enrolled concurrently in Ohio&rsquo;s Medicaid and Title V programs. Nine focus groups were conducted across six locations in Ohio with parents and relatives of 65 CSHCN. The sample was purposefully constructed to reflect regional and age group differences. A multidisciplinary research team of nurses and administrators from both programs analyzed the data using a constant comparative process to identify patterns and themes. The primary themes that emerged were: &ldquo;Families experience a myriad of evolving roles, responsibilities, and stressors on a day-to-day basis as the live with and care for a CSHCN. For families without a medical home, dealing with professional services and providers is not only a role and responsibility but is also a stressor.&rdquo; Participants were enthusiastic about the concept of medical home but were not comfortable with the term. Participants identified themselves as the primary advocates for their CSHCN and often reported an increased sense of empowerment as their CSHCN grew and persevered despite the challenges of a non-coordinated health care system. Multiple roles, responsibilities, stressors, and service needs of CSHCN and their families were identified. Findings underscore the importance of collaboration at all levels of service planning and delivery, and have implications for public health nurse case managers, providers, program administrators, and policy-makers at multiple levels.</td></tr></table>en_GB
dc.date.available2011-10-26T22:45:16Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T22:45:16Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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