2.50
Hdl Handle:
http://hdl.handle.net/10755/160262
Type:
Presentation
Title:
Life Support Decisions for Extremely Premature Infants
Abstract:
Life Support Decisions for Extremely Premature Infants
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2004
Author:Kavanaugh, Karen, PhD, RN
Title:Associate Professor
Contact Address:Maternal Child Nursing, 845 South Damen- Room 848, Chicago, IL, 60612, USA
Co-Authors:Teresa Savage, PhD, RN, Research Assistant Professor; Sarah Kilpatrick, PhD, MD, Professor and Acting Chairman; Rob Kimura, MD, Professor and Director of Neonatology; Patricia Hershberger, PhD(c), APRN, BC, Assistant Professor & Doctoral Candidate
Limited research on parent involvement in life support decisions for extremely premature infants (22 to 25 weeks gestation) suggests that parents report much less involvement than health care professionals report them as having. Guided by O'Connor's Decision Support Framework, the purpose of this pilot study was to describe decision making/decision support needs of parents, physicians, and nurses regarding life support decisions made pre- and postnatally for extremely premature infants. Using collective case study, one prenatal, one postnatal and if the infant had died, one post death interviews were conducted with each parent, and with parents' permission, interviews were done with physicians and nurses who talked to parents about life support decisions for their infants. A total of 25 interviews were conducted with 6 cases (6 mothers, 2 fathers, 7 physicians, and 2 nurses). Data analysis focused on identifying themes within and across cases. Results of this study demonstrated that most but not all parents felt informed and wanted a shared model of decision making; most reported that they were satisfied with their level of involvement. Parents felt that to be involved in decision making they needed information and recommendations from the physician as well as hope and encouragement. In contrast, physicians informed parents but most physicians felt that parents, particularly the mother, was responsible for decisions, especially those decisions made prenatally. Physicians also reported that they used parameters to offer options to parents, and became very directive at certain gestational ages. Nurses reported that they believed parents needed information from the physician first, then they would reinforce or explain information. Nurses also provided hope and encouragement by sharing stories of other families they had cared for. The results of this study provide a beginning understanding of parents' desire for and needs related to involvement in decision making for their infant.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleLife Support Decisions for Extremely Premature Infantsen_GB
dc.identifier.urihttp://hdl.handle.net/10755/160262-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Life Support Decisions for Extremely Premature Infants </td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2004</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Kavanaugh, Karen, PhD, RN</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Associate Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">Maternal Child Nursing, 845 South Damen- Room 848, Chicago, IL, 60612, USA</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Teresa Savage, PhD, RN, Research Assistant Professor; Sarah Kilpatrick, PhD, MD, Professor and Acting Chairman; Rob Kimura, MD, Professor and Director of Neonatology; Patricia Hershberger, PhD(c), APRN, BC, Assistant Professor &amp; Doctoral Candidate</td></tr><tr><td colspan="2" class="item-abstract">Limited research on parent involvement in life support decisions for extremely premature infants (22 to 25 weeks gestation) suggests that parents report much less involvement than health care professionals report them as having. Guided by O'Connor's Decision Support Framework, the purpose of this pilot study was to describe decision making/decision support needs of parents, physicians, and nurses regarding life support decisions made pre- and postnatally for extremely premature infants. Using collective case study, one prenatal, one postnatal and if the infant had died, one post death interviews were conducted with each parent, and with parents' permission, interviews were done with physicians and nurses who talked to parents about life support decisions for their infants. A total of 25 interviews were conducted with 6 cases (6 mothers, 2 fathers, 7 physicians, and 2 nurses). Data analysis focused on identifying themes within and across cases. Results of this study demonstrated that most but not all parents felt informed and wanted a shared model of decision making; most reported that they were satisfied with their level of involvement. Parents felt that to be involved in decision making they needed information and recommendations from the physician as well as hope and encouragement. In contrast, physicians informed parents but most physicians felt that parents, particularly the mother, was responsible for decisions, especially those decisions made prenatally. Physicians also reported that they used parameters to offer options to parents, and became very directive at certain gestational ages. Nurses reported that they believed parents needed information from the physician first, then they would reinforce or explain information. Nurses also provided hope and encouragement by sharing stories of other families they had cared for. The results of this study provide a beginning understanding of parents' desire for and needs related to involvement in decision making for their infant. </td></tr></table>en_GB
dc.date.available2011-10-26T22:46:36Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T22:46:36Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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