2.50
Hdl Handle:
http://hdl.handle.net/10755/160344
Type:
Presentation
Title:
The Psychological and Social Impact of Home Parenteral Nutrition
Abstract:
The Psychological and Social Impact of Home Parenteral Nutrition
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2005
Author:Fitzgerald, Kathleen, PhD, RN
P.I. Institution Name:Loyola University Chicago
Title:Visiting Lecturer
Contact Address:School of Nursing, 5959 N. East Circle Ave. #2, Chicago, IL, 60631, USA
Contact Telephone:773-508-3259
An explorative study design was used to describe the psychological and
social impact of HPN using the Corbin and Strauss Chronic Illness
Trajectory Framework. Fifty subjects completed four quantitative
instruments and HPN Demographic Questionnaire by phone. Six subjects were
interviewed. The selection of the quantitative instruments was guided by
the Chronic Illness Framework concept of 'work' and descriptive reports of
patient adjustment to HPN. The instruments included Ferrans and Powers
Quality of Life Index (QLI), SF-36 Health Survey, Hospital Anxiety and
Depression Scale (HADS) and the Pittsburgh Sleep Quality Index (PSQI)).
The HPN Demographic Questionnaire included specific questions concerning
the underlying illness and the HPN daily infusion procedures. The
subject's trajectory phase and trajectory projection were determined from
the demographic and HPN data. Subjects were in the stable (n=18), unstable
(n=8), acute (n=9), comeback (n=11) and the downward phase (n=4) and the
short-term (n=13), long-term (n=33), and palliative (n=4) trajectory
projections. Results indicated quality of life, physical functioning, and
sleep quality to be lower than the normal population but similar to other
chronically ill populations. Surprisingly, the mental health scores were
similar to healthy populations. The content analysis of the
semi-structured interview data described physical limitations, social and
family life disruptions, disrupted sleep and complaints of fatigue.
Conclusions regarding the use of trajectory phasing and projections are
hampered by the small groups. Utilizing the Chronic Illness Framework to
guide instrument selection was very valuable. The results were viewed from
the perspective of the 'work' of subjects on HPN, not HPN treatment
outcome. Further research with a larger sample would be necessary to
evaluate the use of the trajectory phasing and projections.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleThe Psychological and Social Impact of Home Parenteral Nutritionen_GB
dc.identifier.urihttp://hdl.handle.net/10755/160344-
dc.description.abstract<table><tr><td colspan="2" class="item-title">The Psychological and Social Impact of Home Parenteral Nutrition</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2005</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Fitzgerald, Kathleen, PhD, RN</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Loyola University Chicago</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Visiting Lecturer</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, 5959 N. East Circle Ave. #2, Chicago, IL, 60631, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">773-508-3259</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">kfitzg4@luc.edu</td></tr><tr><td colspan="2" class="item-abstract">An explorative study design was used to describe the psychological and <br/> social impact of HPN using the Corbin and Strauss Chronic Illness <br/> Trajectory Framework. Fifty subjects completed four quantitative <br/> instruments and HPN Demographic Questionnaire by phone. Six subjects were <br/> interviewed. The selection of the quantitative instruments was guided by <br/> the Chronic Illness Framework concept of 'work' and descriptive reports of <br/> patient adjustment to HPN. The instruments included Ferrans and Powers <br/> Quality of Life Index (QLI), SF-36 Health Survey, Hospital Anxiety and <br/> Depression Scale (HADS) and the Pittsburgh Sleep Quality Index (PSQI)). <br/> The HPN Demographic Questionnaire included specific questions concerning <br/> the underlying illness and the HPN daily infusion procedures. The <br/> subject's trajectory phase and trajectory projection were determined from <br/> the demographic and HPN data. Subjects were in the stable (n=18), unstable <br/> (n=8), acute (n=9), comeback (n=11) and the downward phase (n=4) and the <br/> short-term (n=13), long-term (n=33), and palliative (n=4) trajectory <br/> projections. Results indicated quality of life, physical functioning, and <br/> sleep quality to be lower than the normal population but similar to other <br/> chronically ill populations. Surprisingly, the mental health scores were <br/> similar to healthy populations. The content analysis of the <br/> semi-structured interview data described physical limitations, social and <br/> family life disruptions, disrupted sleep and complaints of fatigue. <br/> Conclusions regarding the use of trajectory phasing and projections are <br/> hampered by the small groups. Utilizing the Chronic Illness Framework to <br/> guide instrument selection was very valuable. The results were viewed from <br/> the perspective of the 'work' of subjects on HPN, not HPN treatment <br/> outcome. Further research with a larger sample would be necessary to <br/> evaluate the use of the trajectory phasing and projections.</td></tr></table>en_GB
dc.date.available2011-10-26T22:51:14Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T22:51:14Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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