Adolescents' Experiences with Sickle Cell Disease Pain: Feeling Helpless but Determined to Endure

2.50
Hdl Handle:
http://hdl.handle.net/10755/160531
Type:
Presentation
Title:
Adolescents' Experiences with Sickle Cell Disease Pain: Feeling Helpless but Determined to Endure
Abstract:
Adolescents' Experiences with Sickle Cell Disease Pain: Feeling Helpless but Determined to Endure
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2002
Author:Fletcher, Cynthia
P.I. Institution Name:Purdue University
Title:Assistant Professor
Contact Address:School of Nursing, 1337 Johnson Hall, West Lafayette, IN, 47907-1337, USA
Contact Telephone:765.494.4037
This study examined adolescents' beliefs and feelings about what hindered or helped their coping with and adapting to their sickle cell disease (SCD) pain. Subjects were 68 adolescents with SCD (53% females and 47% males) who provided written responses to two open-ended questions: (a) "What hindered your coping with SCD pain" and (b) "What helped your coping with SCD pain"? Responses were analyzed to explore and describe underlying patterns and themes to gain an understanding of the adolescents' beliefs regarding factors that hindered or helped their adaptation to SCD pain. Analysis consisted of unitizing and categorizing the responses. The units of responses selected were phrases and sentences (e.g., "play games" and "forgetting about it during pain free periods"). Two main categories and four subcategories were identified for the "hindered" question, and three main categories and six subcategories for the "helped" question. Two opposing themes emerged from the data: helplessness and taking control. Helplessness occurred when emotional and physical effects of the SCD pain increased the adolescents' feelings of despair and suffering. Taking control reflected adolescents' attempts to successfully endure the psychosocially stressful and physically painful events and to preserve their piece of mind. The majority (95%) of the adolescents identified activities that helped them to take control or successfully cope during episodes of SCD pain. Findings suggest strategies for interventions to promote or enhance coping in adolescents experiencing pain from SCD.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleAdolescents' Experiences with Sickle Cell Disease Pain: Feeling Helpless but Determined to Endureen_GB
dc.identifier.urihttp://hdl.handle.net/10755/160531-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Adolescents' Experiences with Sickle Cell Disease Pain: Feeling Helpless but Determined to Endure</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2002</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Fletcher, Cynthia</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Purdue University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">School of Nursing, 1337 Johnson Hall, West Lafayette, IN, 47907-1337, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">765.494.4037</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">fletchec@purdue.edu</td></tr><tr><td colspan="2" class="item-abstract">This study examined adolescents' beliefs and feelings about what hindered or helped their coping with and adapting to their sickle cell disease (SCD) pain. Subjects were 68 adolescents with SCD (53% females and 47% males) who provided written responses to two open-ended questions: (a) &quot;What hindered your coping with SCD pain&quot; and (b) &quot;What helped your coping with SCD pain&quot;? Responses were analyzed to explore and describe underlying patterns and themes to gain an understanding of the adolescents' beliefs regarding factors that hindered or helped their adaptation to SCD pain. Analysis consisted of unitizing and categorizing the responses. The units of responses selected were phrases and sentences (e.g., &quot;play games&quot; and &quot;forgetting about it during pain free periods&quot;). Two main categories and four subcategories were identified for the &quot;hindered&quot; question, and three main categories and six subcategories for the &quot;helped&quot; question. Two opposing themes emerged from the data: helplessness and taking control. Helplessness occurred when emotional and physical effects of the SCD pain increased the adolescents' feelings of despair and suffering. Taking control reflected adolescents' attempts to successfully endure the psychosocially stressful and physically painful events and to preserve their piece of mind. The majority (95%) of the adolescents identified activities that helped them to take control or successfully cope during episodes of SCD pain. Findings suggest strategies for interventions to promote or enhance coping in adolescents experiencing pain from SCD.</td></tr></table>en_GB
dc.date.available2011-10-26T23:02:00Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T23:02:00Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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