A qualitative inquiry for the life-course experiences with leprosy in Taiwanese women

2.50
Hdl Handle:
http://hdl.handle.net/10755/160890
Type:
Presentation
Title:
A qualitative inquiry for the life-course experiences with leprosy in Taiwanese women
Abstract:
A qualitative inquiry for the life-course experiences with leprosy in Taiwanese women
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2006
Author:Shieh, Carol, DNSc, RN, C
P.I. Institution Name:Indiana University
Title:Assistant Professor
Contact Address:Environments for Health, 1111 Middle Drive, Indianapolis, IN, 46202-5107, USA
Contact Telephone:317-278-1575
Co-Authors:Hsiu-Hung Wang, PhD, RN, Professor
Problem: Leprosy in women is a complex health problem because of women's unique physiology and, in many cultures, their disadvantaged socio-economic status. Little has been reported about women's experiences with leprosy in Taiwan, where economic development and western influence have gradually changed the society's view of illness, family dynamics, and women's roles. This study used the narrative analysis method to explore stories told by Taiwanese women who had suffered from leprosy.

Design: Narrative analysis is a qualitative inquiry method; it provides researchers with a means to investigate how respondents in interviews impose order on the flow of experiences to make sense of events or actions in their lives.

Participants: Twenty-one women from a leprosarium, a long-term care center, and a community in Taiwan were invited to participate in either focus group discussions or individual interviews. The age range for participants was between 56 and 88 with an average of 68 years old. Physical impairments and disabilities of the participants varied from skin scars, claw fingers, and drop feet to facial disfigurement.

Data analysis: Stories were analyzed in two phases: structural and holistic content analyses. Structural analysis identified four life stages: before being diagnosed, after being diagnosed, living with leprosy, and the future. Holistic content analysis uncovered common themes in each life stage.

Findings: Findings indicated that discrimination and self-inflicted stigma were experienced throughout the life course of these women. At this stage of life, these women were facing not only physical impairments and disabilities from the leprosy, but also the usual chronic health problems of the elderly. These women preferred living in institutions to the community.

Implications: This study suggests that prevention of leprosy-related physical impairments is important, and a holistic health plan for older women recovering from leprosy should consider health education, prevention, and treatment for common chronic diseases.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleA qualitative inquiry for the life-course experiences with leprosy in Taiwanese womenen_GB
dc.identifier.urihttp://hdl.handle.net/10755/160890-
dc.description.abstract<table><tr><td colspan="2" class="item-title">A qualitative inquiry for the life-course experiences with leprosy in Taiwanese women</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2006</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Shieh, Carol, DNSc, RN, C</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">Indiana University</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Assistant Professor</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">Environments for Health, 1111 Middle Drive, Indianapolis, IN, 46202-5107, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">317-278-1575</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">wshieh@iupui.edu</td></tr><tr class="item-co-authors"><td class="label">Co-Authors:</td><td class="value">Hsiu-Hung Wang, PhD, RN, Professor</td></tr><tr><td colspan="2" class="item-abstract">Problem: Leprosy in women is a complex health problem because of women's unique physiology and, in many cultures, their disadvantaged socio-economic status. Little has been reported about women's experiences with leprosy in Taiwan, where economic development and western influence have gradually changed the society's view of illness, family dynamics, and women's roles. This study used the narrative analysis method to explore stories told by Taiwanese women who had suffered from leprosy. <br/><br/>Design: Narrative analysis is a qualitative inquiry method; it provides researchers with a means to investigate how respondents in interviews impose order on the flow of experiences to make sense of events or actions in their lives.<br/><br/>Participants: Twenty-one women from a leprosarium, a long-term care center, and a community in Taiwan were invited to participate in either focus group discussions or individual interviews. The age range for participants was between 56 and 88 with an average of 68 years old. Physical impairments and disabilities of the participants varied from skin scars, claw fingers, and drop feet to facial disfigurement. <br/><br/>Data analysis: Stories were analyzed in two phases: structural and holistic content analyses. Structural analysis identified four life stages: before being diagnosed, after being diagnosed, living with leprosy, and the future. Holistic content analysis uncovered common themes in each life stage. <br/><br/>Findings: Findings indicated that discrimination and self-inflicted stigma were experienced throughout the life course of these women. At this stage of life, these women were facing not only physical impairments and disabilities from the leprosy, but also the usual chronic health problems of the elderly. These women preferred living in institutions to the community.<br/><br/>Implications: This study suggests that prevention of leprosy-related physical impairments is important, and a holistic health plan for older women recovering from leprosy should consider health education, prevention, and treatment for common chronic diseases.</td></tr></table>en_GB
dc.date.available2011-10-26T23:12:25Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T23:12:25Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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