Ethical Analysis of Factors Influencing Parental Enrollment of Their Child in a Non-therapeutic Clinical Research Trial

2.50
Hdl Handle:
http://hdl.handle.net/10755/160901
Type:
Presentation
Title:
Ethical Analysis of Factors Influencing Parental Enrollment of Their Child in a Non-therapeutic Clinical Research Trial
Abstract:
Ethical Analysis of Factors Influencing Parental Enrollment of Their Child in a Non-therapeutic Clinical Research Trial
Conference Sponsor:Midwest Nursing Research Society
Conference Year:2006
Author:Twomey, John, PhD, MSN, BSN, PNP
P.I. Institution Name:University of Iowa
Title:Post Doctoral Fellow
Contact Address:College of Nursing, 38 Westwind Rd, Wakefield, RI, 02879, USA
Contact Telephone:401-480-7109
Population: Healthy children drawn from a double-blinded controlled trial in which families with children receiving IVs are randomized to either a treatment group in which one or both parents receive training in distraction techniques or control group in which no training is given. Sample: Thirty parents from 30 families who enrolled their children, and ten parents from 10 families who declined enrollment of their children in a study of parental distraction behaviors during a painful procedure at the identified study site. Data collection: A semi-structured interview guide is used to conduct a phone interview that asks the parent to describe factors that affected their decision to enroll/not enroll their child in the study. Information from study files will be used to collect demographic data, e.g., parent age and educational level, child age and diagnosis. Data analysis Interpretive narrative analysis will be used to describe ethical implications for parents' reasons for enrolling their children in a nontherapeutic research trial.
Repository Posting Date:
26-Oct-2011
Date of Publication:
17-Oct-2011
Sponsors:
Midwest Nursing Research Society

Full metadata record

DC FieldValue Language
dc.typePresentationen_GB
dc.titleEthical Analysis of Factors Influencing Parental Enrollment of Their Child in a Non-therapeutic Clinical Research Trialen_GB
dc.identifier.urihttp://hdl.handle.net/10755/160901-
dc.description.abstract<table><tr><td colspan="2" class="item-title">Ethical Analysis of Factors Influencing Parental Enrollment of Their Child in a Non-therapeutic Clinical Research Trial</td></tr><tr class="item-sponsor"><td class="label">Conference Sponsor:</td><td class="value">Midwest Nursing Research Society</td></tr><tr class="item-year"><td class="label">Conference Year:</td><td class="value">2006</td></tr><tr class="item-author"><td class="label">Author:</td><td class="value">Twomey, John, PhD, MSN, BSN, PNP</td></tr><tr class="item-institute"><td class="label">P.I. Institution Name:</td><td class="value">University of Iowa</td></tr><tr class="item-author-title"><td class="label">Title:</td><td class="value">Post Doctoral Fellow</td></tr><tr class="item-address"><td class="label">Contact Address:</td><td class="value">College of Nursing, 38 Westwind Rd, Wakefield, RI, 02879, USA</td></tr><tr class="item-phone"><td class="label">Contact Telephone:</td><td class="value">401-480-7109</td></tr><tr class="item-email"><td class="label">Email:</td><td class="value">john-twomey@uiowa.edu</td></tr><tr><td colspan="2" class="item-abstract">Population: Healthy children drawn from a double-blinded controlled trial in which families with children receiving IVs are randomized to either a treatment group in which one or both parents receive training in distraction techniques or control group in which no training is given. Sample: Thirty parents from 30 families who enrolled their children, and ten parents from 10 families who declined enrollment of their children in a study of parental distraction behaviors during a painful procedure at the identified study site. Data collection: A semi-structured interview guide is used to conduct a phone interview that asks the parent to describe factors that affected their decision to enroll/not enroll their child in the study. Information from study files will be used to collect demographic data, e.g., parent age and educational level, child age and diagnosis. Data analysis Interpretive narrative analysis will be used to describe ethical implications for parents' reasons for enrolling their children in a nontherapeutic research trial.</td></tr></table>en_GB
dc.date.available2011-10-26T23:12:36Z-
dc.date.issued2011-10-17en_GB
dc.date.accessioned2011-10-26T23:12:36Z-
dc.description.sponsorshipMidwest Nursing Research Societyen_GB
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